Trying to recover from a c.diff infection

Posted by acres @acres, Apr 12, 2016

I am trying to recover from a c.diff infection. This started with taking clindamycin in mid January and 3 days later I became ill with diarrhea and felt sick, loss of appetite etc…Went to the er twice, tested negative for c.diff on my 2nd visit. The Dr. told me to take imodium to rest my colon since I tested negative. That evening I had diarrhea and took the Imodium. Became constipated with pain lower right side. I went to a GI dr. pleading for help, I did another stool test and it came back positive for c.diff. I tried flagyl but could not tolerate the side effects. Tried vancomycin for 10 days. Did not work. Tested positive again, Went to a new gi doctor who prescribed dificid for ten days. I am 31 days post dificid and I have almost constant gut rumbling and urge to go. My 1st bm in the morning is usually semi normal, but after that they are always either pencil thin and or small pieces (2 to 5 times a day). This has been my routine since the vancomycin. I do not get dull blown diarrhea….. My dr. wants me to have a colonoscopy but I an scared that the cleansing will wipe out all my good flora. I currently take 2 florastor pills and 1/2 vsl3 per day. I eat fermented pickles for the probiotics as well….. I have many food intolerances since this whole mess began (fiber, many vegatables, dairy). I also have a strange taste in my mouth most of the time, have very little energy and fight with depression. My primary gave me Xanax .25 but I only take them at night when I cannot sleep…… Went to a nutritionist who put me on a no wheat, soy, dairy, gluten diet. Does not seem to be helping or hurting. I lost 20 pounds and cannot gain any weight (I weigh 120 at 5’7″)… I am thinking it might be sibo, or candida but cannot find a dr. to test for these….I am in the right place for help or advice ? The urge to go is awful and limits my once active lifestyle…..
Thank you, Scott

@femalegolfer

@pines YIKES! If it works – I would feel better – I would for sure pay the money…Waiting to hear from the Dr. is killing me.

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@femalegolfer I took the last Dificid on October 26, 2018. So far, NO more Cdiff. And I knock on wood every time I write or say that. I would never want another year like 2018 and 4 bouts of Cdiff. And I will think twice before ever taking an antibiotic again. My heart goes out to anyone who is taking Clindamycin.

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@baby1949

Please leave any information you might have on C-Difficile infections , thank you! I have many issues and C-Difficile seems to be a huge one for me. I get Constipation. I am simply terrified of my outcome on treatment. As I am older. And need Surgery for a Fribroid in my Uterus. I am past menopause age by 15 + years! Have C-Difficile after taking 3 Ceftin Antibiotic pills . Sincerely any information is highly appreciated. I have been ill for month and I am very weak right now.

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My first C. Diff infection lasted 3 months. Clindamycin was the cause. Treatment included Flagyl and Align as well as a low fiber diet. I had loose stools up to 12 times a day which made commuting and work difficult, but somehow I managed. Plain yogurt, cheese and homemade sauerkraut were all well tolerated. I avoided sugar and beverages that contained sugar.

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@citygirlannie

Thanks so much for the information. I will ask my doctor about The fecal microbial transplant.

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My son who is severely disabled was diagnosed with C-Diff from his last hospital stay four months ago and has been on Vancomyicyn ever since, I was told by doctor that this antibiotic only kills half the bacteria, so after careful research the fecal microbial transplant was his best option to rid him of this. Fingers crossed we go tomorrow for colonoscopy to do transplant.

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@thrasher3062

My son who is severely disabled was diagnosed with C-Diff from his last hospital stay four months ago and has been on Vancomyicyn ever since, I was told by doctor that this antibiotic only kills half the bacteria, so after careful research the fecal microbial transplant was his best option to rid him of this. Fingers crossed we go tomorrow for colonoscopy to do transplant.

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@thrasher3062 I've heard nothing but good results from the FMT. Vancomycin didn't work for me either. I think part of the problem with vanco is that it also kills the good bacteria. I think the reason I had good results with Dificid is that is ONLY kills the Cdiff spores. The worst part for your son is probably doing the cleanse today for tomorrows procedure. I'm saying a prayer for him. Please give us an update how he does.

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Can someone please tell me why we have to have 3 or more relapses before a doctor will offer fmt? If fmt is so successful, why not offer it after the first relapse? It blows my mind! Personally, the more I think about it, I think the makers of vancomycin and the other drugs they use are responsible. After all, think of all the antibiotics we take before fmt is offered. Makes me mad! My guess is it's about money. If​we did fmt after the first relapse, we wouldn't spend all this money on antibiotics first! Plus, who knows what we will have to deal with health wise after taking hundreds of vancomycin?

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@ngorman25

Can someone please tell me why we have to have 3 or more relapses before a doctor will offer fmt? If fmt is so successful, why not offer it after the first relapse? It blows my mind! Personally, the more I think about it, I think the makers of vancomycin and the other drugs they use are responsible. After all, think of all the antibiotics we take before fmt is offered. Makes me mad! My guess is it's about money. If​we did fmt after the first relapse, we wouldn't spend all this money on antibiotics first! Plus, who knows what we will have to deal with health wise after taking hundreds of vancomycin?

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I couldn’t agree more with you. I was on a lot of vancomycin and it did have nasty side effects. It is ridiculous you have to be almost dead to get a FMT. Hard to believe we are in the US.

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@0558

I couldn’t agree more with you. I was on a lot of vancomycin and it did have nasty side effects. It is ridiculous you have to be almost dead to get a FMT. Hard to believe we are in the US.

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For me, it's not only the side effects but the long term effects I worry about. I am scheduled for fmt on Monday, March 25. Not looking forward to it as I asked my gastro doctor what happens if it doesn't work? His answer was, "we do it again"!

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@pines

@femalegolfer I took the last Dificid on October 26, 2018. So far, NO more Cdiff. And I knock on wood every time I write or say that. I would never want another year like 2018 and 4 bouts of Cdiff. And I will think twice before ever taking an antibiotic again. My heart goes out to anyone who is taking Clindamycin.

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I just finished my first 10 day round of vancomycin and after only 3 days am having the same issues I had before learning it was C-diff. I am so disappointed. Mine came about after taking clindamycin for 10 days in January. I am angry that dr’s are so quick to prescribe that drug and also angry at myself for blindly taking! I can’t get ahold of my dr now until Monday to see what next steps are.

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@lindac61

I just finished my first 10 day round of vancomycin and after only 3 days am having the same issues I had before learning it was C-diff. I am so disappointed. Mine came about after taking clindamycin for 10 days in January. I am angry that dr’s are so quick to prescribe that drug and also angry at myself for blindly taking! I can’t get ahold of my dr now until Monday to see what next steps are.

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@lindac61 I'm so sorry to hear you ended up with Cdiff after taking Clindamycin. That's the same thing that happened to me when I took it for a sinus infection. I took vancomycin for 10 days and within 5 days, Cdiff returned. I then did the vanco pulse and taper for 6 weeks. But after 3 weeks, Cdiff came back. I then did 10 days of Dificid (fidaxamicin) and that was last October. It's a pricey med, but it worked for me. I also take S. Boulardii (Florastor) every day which my GI suggested. I'm in hopes, by now, that my good bacteria has returned the flora in my gut to normal. But I still worry at the least little change in BM's. If I relapse again, I want to do the capsule form FMT. I read the info on the Open Biome web site. Although, I haven't discussed it with my GI. I just thank the good Lord that Dificid seems to have killed the Cdiff spores. It's the one drug that doesn't also kill your good bacteria at the same time.

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I was told that Vancomycin only kills half the C-Diff bug and once you come off it C-Diff will always come right back. My son just did the FMT and was told it has a 85% success rate so fingers crossed.

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I hope it is successful for your son!!

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@pines

@lindac61 I'm so sorry to hear you ended up with Cdiff after taking Clindamycin. That's the same thing that happened to me when I took it for a sinus infection. I took vancomycin for 10 days and within 5 days, Cdiff returned. I then did the vanco pulse and taper for 6 weeks. But after 3 weeks, Cdiff came back. I then did 10 days of Dificid (fidaxamicin) and that was last October. It's a pricey med, but it worked for me. I also take S. Boulardii (Florastor) every day which my GI suggested. I'm in hopes, by now, that my good bacteria has returned the flora in my gut to normal. But I still worry at the least little change in BM's. If I relapse again, I want to do the capsule form FMT. I read the info on the Open Biome web site. Although, I haven't discussed it with my GI. I just thank the good Lord that Dificid seems to have killed the Cdiff spores. It's the one drug that doesn't also kill your good bacteria at the same time.

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So glad it seems like you may have solved it! Wishing you the best. After reading the posts this morning I did go purchase S. Boulardi and will start taking that to help. I had no idea there were so manh of us suffering this way!!

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@lindac61

So glad it seems like you may have solved it! Wishing you the best. After reading the posts this morning I did go purchase S. Boulardi and will start taking that to help. I had no idea there were so manh of us suffering this way!!

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@linda61 There are alot of people who have this and recurring bouts I've never had it but worked with those who did in nursing Back then they used Diflucan I don't know if they do now or not also new operation about fecal transplant it was a post on here Good luck

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@lioness

@linda61 There are alot of people who have this and recurring bouts I've never had it but worked with those who did in nursing Back then they used Diflucan I don't know if they do now or not also new operation about fecal transplant it was a post on here Good luck

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Thank you!

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@lindac61

Thank you!

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@linda61 your welcome

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