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I am reaching out to those with DISH
I have recently been diagnosed with DISH and I see that an old discussion was active at one time, but I would like to talk to those who have been living with this disease for a few years and find out how you are doing. My diagnosis was just recently, but when my doctor emailed me about the results of my test for something else, he sent me the symptoms of DISH and it was an instant "OMG" so this is what I have been living with for 20 years and no one told me what it was. 20 years wondering what it was that caused my voice to instantly change, why I can not sing anymore, why my throat hurt, why I would wake up in the middle of the night because I could not swallow. I have tendons and ligaments that have turned to bone and osteoarthritis/ rheumatoid arthritis all through my body and now I find out about DIME, A whole new set of problems with my neck and spine. It is not a fun life, but a painful one.
How are any of you living with your diagnosis?
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God knows what he does. I am a true believer of it. Thank you so much I needed to hear that. I will keep updated. On 3/28 I am set to see the doctor. Hopefully I get some answers.
God knows what he does. I am a true believer of that. Thank you and will keep updated. Have an appt on 3/28 so hopefully will get some answers.
Thank you for that. Needed to hear that. God is awesome! I will keep updated
I'm not the kind of person that throws God's name around very often. God is personal to me. But you have God's attention.
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1 ReactionI have another question for the dish group. Has anybody had their teeth or jaw affected by dish?
Hi. My name is Jack and i have DISH. I'VE had dental problems but I don't know if it's from DISH. I haven't thought about it. What kind of problems are you taking about?
@vrodriguez138 just checking in to see how you are doing.
Not doing good. In a lot of pain but waiting for my appointment in 2 weeks. Thank you
Are you receiving some sort of pain management? I have a pain doctor who provides pain relieving medicine.
Yeah Gabepatin which doesn’t help. It swells my ankles. Doctor took me off it. I live in North Carolina though.