1. < Brain & Nervous System

I am awakened by what feels like a vibrating bed.

Posted by shiver @shiver, Nov 1 7:34am

About 6 weeks ago I started waking up several times a night to cover up my little Shih-Tzu, thinking it was him shivering. I was literally waking up to what felt like the old-fashioned vibrating bed, (and I did not put in a quarter) for those of you not old enough to know -- these really existed once upon a time.
I only realized within the last week that this is me and not him, and this morning I opted to grab the computer and look up internal vibrations and found this. My tremors are in my torso, and it really does feel like my bed is vibrating. Cubby will be happy to know that Mom will stop covering him up. I would put my hand out to rest it on him and it would stop. So my movement or altering my position did make it stop, because it was me.
This is getting worse and I'm starting to experience the internal tremors when awake. I see where this can be caused by anxiety and stress, but this is causing anxiety and stress for me, first because I thought something was wrong with Cubby and took him to the vet, but now realizing it is me and this came out of nowhere, I have two medical issues that could be causing it, and would like to know if others are having similar circumstances.
One, I have an artificial aortic valve, that was put on a "recall" list two years after I got it in 2018. I get it checked out November 18th to see if there are any signs of deterioration, and to find if that, in itself, can be the cause.
Two, and what I feel could be more of the culprit, is that I have severe gastroparesis, where food in the stomach doesn't digest and can hang around causing toxins in the system. There are lots of things I can no longer eat, because they simply don't digest. Main question here is are there others on here having internal tremors that notice they are prevalent when you have eaten something you shouldn't have, or eaten too much, (which isn't a lot) causing delayed digestion?
Is there a different group with regard to internal tremors with lack of digestion, or are all of them caused by something going on in the cerebellum?
If there is anyone with similar issues, please let me know if there was anything you have done that helped.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

shiver | @shiver | Nov 2 8:26am
In reply to @gently "https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/#:~:text=It%20looks%20like%20others%20who,to%20your%20other%20GI%20problems. More entertaining to read your post than to experience your tremors. I had to like..." + (show)

Thank you for the links. It took a while to realize it was me and not Cubby. She thought he might be having scary dreams, but my little guy talks in his sleep, with that little muffled bark or growl, and I think I would hear something if he was having a bad dream. It was illuminating when I finally realized it was me and looked it up and found that internal tremors exist!!!
Thanks again for the links.

REPLY
bobbelu | @bobbelu | Nov 2 9:06am

I had a similar problem with my legs vibrating during the night. After much research and meetings with my doctor, I realized the problem was my left leg. About 4-5 years ago, I had an outbreak of shingles on my left leg and left foot. The vibration seems to be because of the nerve damage in that leg. Nothing can be done, so I just roll over to a different position!!! Also, my left foot gets very cold at times. Nerve damage cannot be reversed..

REPLY
saronoff | @saronoff | Nov 2 12:58pm

I recommend you take a look at this MC discussion thread, which could give you some insight into your condition: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/?pg=2

I have SIBO, which is related to motility issues (e.g. gastroparesis). I've been experiencing internal vibrations for over 6 months now. At first this was scary but now I'm used to it. The vibrations are the worst at night when I'm in bed. Initially, they were intermittent, but now they're pretty consistent throughout the night. The vibrations do improve and have even gone away when my SIBO improves, so I can say there appears to be a direct relationship between these two things.

SIBO is very hard to eradicate. I went through a round of the recommend (and extremely expensive) anitbiotic Xifaxan, which didn't help. Diet is everything when it comes to SIBO: Absolutely no sugar or gluten; probably a good idea to eliminate all grains, dairy, and soy, too. Together with an herbal SIBO protocol, I've found relief. Two companies offer herbal products that have been studied and have scientific evidence supporting their use for SIBO; for more info see: https://pmc.ncbi.nlm.nih.gov/articles/PMC4030608. After a period of time (8 - 12 weeks), I can begin to deviate from this diet for a day or two each week, although I must be very careful with sugar, since bacteria feed on it. But if I deviate for too long my SIBO returns and I have to start over again. It's discouraging but at least I know I can find relief if I adhere to a strict diet.

I highly recommend you get tested for SIBO. It's a breath test and is widely available. Here's the test I took: https://www.triosmartbreath.com/?gad_source=1&gclid=Cj0KCQjwm5e5BhCWARIsANwm06gdlUV64rZ7NRmjfTuFvPYNbPvmxg9-LXn7KEQQVLKFYGPoPUd5OTgaAmUPEALw_wcB. This will help you determine if SIBO may be the root of your problem, or if you need to keep looking elsewhere for answers.

Also, if you're not already, I recommend testing your stomach acid (you can read about this by doing a web search) and possibly supplementing with hydrochloric acid (HCl), digestive enzymes, and apple cider vinegar (ACV). These things have helped me with digestion, although not a total cure. There is a direct link between low stomach acid and SIBO. Motility issues are also linked to SIBO, so you may want to consider taking something for that condition, too.

Best of luck to you in your journey back to health.

REPLY
2 replies
shiver | @shiver | Nov 2 5:37pm
In reply to @saronoff "I recommend you take a look at this MC discussion thread, which could give you some..." + (show)
@saronoff

I recommend you take a look at this MC discussion thread, which could give you some insight into your condition: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/?pg=2

I have SIBO, which is related to motility issues (e.g. gastroparesis). I've been experiencing internal vibrations for over 6 months now. At first this was scary but now I'm used to it. The vibrations are the worst at night when I'm in bed. Initially, they were intermittent, but now they're pretty consistent throughout the night. The vibrations do improve and have even gone away when my SIBO improves, so I can say there appears to be a direct relationship between these two things.

SIBO is very hard to eradicate. I went through a round of the recommend (and extremely expensive) anitbiotic Xifaxan, which didn't help. Diet is everything when it comes to SIBO: Absolutely no sugar or gluten; probably a good idea to eliminate all grains, dairy, and soy, too. Together with an herbal SIBO protocol, I've found relief. Two companies offer herbal products that have been studied and have scientific evidence supporting their use for SIBO; for more info see: https://pmc.ncbi.nlm.nih.gov/articles/PMC4030608. After a period of time (8 - 12 weeks), I can begin to deviate from this diet for a day or two each week, although I must be very careful with sugar, since bacteria feed on it. But if I deviate for too long my SIBO returns and I have to start over again. It's discouraging but at least I know I can find relief if I adhere to a strict diet.

I highly recommend you get tested for SIBO. It's a breath test and is widely available. Here's the test I took: https://www.triosmartbreath.com/?gad_source=1&gclid=Cj0KCQjwm5e5BhCWARIsANwm06gdlUV64rZ7NRmjfTuFvPYNbPvmxg9-LXn7KEQQVLKFYGPoPUd5OTgaAmUPEALw_wcB. This will help you determine if SIBO may be the root of your problem, or if you need to keep looking elsewhere for answers.

Also, if you're not already, I recommend testing your stomach acid (you can read about this by doing a web search) and possibly supplementing with hydrochloric acid (HCl), digestive enzymes, and apple cider vinegar (ACV). These things have helped me with digestion, although not a total cure. There is a direct link between low stomach acid and SIBO. Motility issues are also linked to SIBO, so you may want to consider taking something for that condition, too.

Best of luck to you in your journey back to health.

Jump to this post

Thank you so much for all these links. I take a vinegar solution for digestion that the Amish make, but I cannot use it daily without getting ulcers. There is a "natural" antibiotic called Oil of Oregano. It is made by Joy of the Mountains, it's organic, and has the highest amount of the active ingredient that there is. I started taking this daily 4 days ago. It goes under the tongue with a water chaser, and it feels hot, but I am taking it for SIBO, without being tested for it. I was researching why the gastroparesis was getting worse, and despite being seen by a gastroenterologist for years because of the gastroparesis, NEVER did SIBO come up in discussion. Yet, in my own research I find it and I don't mind telling you it made me angry because it hits all the issues I am having. Now, to find out the internal tremors also come with it -- Unbelievable !!!! I was pretty certain it was something to do with my digestion, because the bloating has been getting super bad.
Thank you so much for this. It did make me quite antse at first when I realized it was me and not Cubby vibrating, because my artificial aortic valve was placed on a recall list two years after I got it, and I thought it might have been the valve deteriorating. When I looked online for internal vibrations, I was stunned to find this exists. It shouldn't be so difficult to get this information. Had I known about SIBO 10 years ago, I could have done so much to get rid of it with the Oil of Oregano, before it got so bad that I've had to eliminate so many foods that are good for me.
You might me interested in reading the information about Joy of the Mountains Oil of Oregano. Totally natural antibiotic. I looked up "taking Oil of Oregano for SIBO" and there it was!!!
Thank you, Thank you, Thank you.

REPLY
shiver | @shiver | Nov 2 5:46pm
In reply to @saronoff "I recommend you take a look at this MC discussion thread, which could give you some..." + (show)
@saronoff

I recommend you take a look at this MC discussion thread, which could give you some insight into your condition: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/?pg=2

I have SIBO, which is related to motility issues (e.g. gastroparesis). I've been experiencing internal vibrations for over 6 months now. At first this was scary but now I'm used to it. The vibrations are the worst at night when I'm in bed. Initially, they were intermittent, but now they're pretty consistent throughout the night. The vibrations do improve and have even gone away when my SIBO improves, so I can say there appears to be a direct relationship between these two things.

SIBO is very hard to eradicate. I went through a round of the recommend (and extremely expensive) anitbiotic Xifaxan, which didn't help. Diet is everything when it comes to SIBO: Absolutely no sugar or gluten; probably a good idea to eliminate all grains, dairy, and soy, too. Together with an herbal SIBO protocol, I've found relief. Two companies offer herbal products that have been studied and have scientific evidence supporting their use for SIBO; for more info see: https://pmc.ncbi.nlm.nih.gov/articles/PMC4030608. After a period of time (8 - 12 weeks), I can begin to deviate from this diet for a day or two each week, although I must be very careful with sugar, since bacteria feed on it. But if I deviate for too long my SIBO returns and I have to start over again. It's discouraging but at least I know I can find relief if I adhere to a strict diet.

I highly recommend you get tested for SIBO. It's a breath test and is widely available. Here's the test I took: https://www.triosmartbreath.com/?gad_source=1&gclid=Cj0KCQjwm5e5BhCWARIsANwm06gdlUV64rZ7NRmjfTuFvPYNbPvmxg9-LXn7KEQQVLKFYGPoPUd5OTgaAmUPEALw_wcB. This will help you determine if SIBO may be the root of your problem, or if you need to keep looking elsewhere for answers.

Also, if you're not already, I recommend testing your stomach acid (you can read about this by doing a web search) and possibly supplementing with hydrochloric acid (HCl), digestive enzymes, and apple cider vinegar (ACV). These things have helped me with digestion, although not a total cure. There is a direct link between low stomach acid and SIBO. Motility issues are also linked to SIBO, so you may want to consider taking something for that condition, too.

Best of luck to you in your journey back to health.

Jump to this post

Thank you for all the information. This helps a lot. Great site for getting help and finding sanity. I'm all for helping myself, but it should not be so difficult to find this type of information. I didn't know SIBO existed until about a week ago when I was looking up why the gastroparesis was getting worse. Then I find out from this other individual that she got SIBO and then also started the internal tremors. I just saw my gastroenterologist two weeks ago, and we had the discussion about this getting worse and the bloating causing so much pressure on my heart, but not one mention about SIBO. I thought Cubby was the one vibrating when I saw him, as I just found out it's me and not Cubby this last week. Thanks again for the information.

REPLY
willows | @willows | Nov 3 7:32am

Can your Dr. get a medication called domperidone. I have a prescription for it and it has been an absolute changer for my gastropersis. It’s available in Canada with a prescription. I have been taking it for years with no side effects. Do discuss this with your doctor. I do have internal tremors at night mostly but they are mild.

REPLY
1 reply
shiver | @shiver | Nov 3 9:11am
In reply to @willows "Can your Dr. get a medication called domperidone. I have a prescription for it and it..." + (show)
@willows

Can your Dr. get a medication called domperidone. I have a prescription for it and it has been an absolute changer for my gastropersis. It’s available in Canada with a prescription. I have been taking it for years with no side effects. Do discuss this with your doctor. I do have internal tremors at night mostly but they are mild.

Jump to this post

Thank you Willows. When my sister died she had a bunch of Domperidone left behind, as she was diabetic with gastroparesis. I have never been diabetic, but I certainly have the gastroparesis. I took it but I did not get relief from the fullness, or from the stomach failing to empty. I took it for about 8 weeks but then quit, and saw very little difference, other then I was no longer so tired after stopping. Thank you for letting me know what worked for you.

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willows | @willows | Nov 3 10:51am

I am sorry it didn’t work for you. I am in really bad stomach pain if I go 48 hours without Domperidone. I can’t manage without it. I also have a hiatus hernia. My Dr. Initally, after an endoscope, prescribed a high dose for a number of months, 8 pills a day, and then gradually reduced. Now I am down to 3 pills day which is what is an optimal dose. I had an EKG before bin prescribed the Domperidone.

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