Prostate and Bladder Issues: What to do?

Posted by ch665296f @ch665296f, Apr 19, 2016

I am a 68, nearly 69, year old man that has had bladder issues for years. I had green light prostate surgery 8 yrs. ago which helped for a while. Now, my prostate has had some regrowth and I have developed several bladder diverticulum. I have had just about every bladder test possible. I also have some incontinence issues, and manage by wearing diapers when necessary. I'm ok with that. My urologist had me on a combination of tamsulosin and finastride, but have not realized much of a difference. I'm a bit afraid of some of those drugs because I have read that they could mask the development of a more serious prostate cancer.

My urologist suggests that I may be a candidate for surgery, but what kind? Turp or total removal of the prostate? I have also read that turp sometimes needs to be repeated. Don't want that to happen either. What to do?

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@kayak461

May 3rd was the big day for me, I had HOLEP Surgery at the JAX Mayo Hospital. I was there because my enlarged prostate was growing up and into my bladder which would have eventually caused problems as urine could back-up into the kidneys. I learned at 6:00 PM on May 2nd when to report to the Hospital. I reported 30 minutes prior to the scheduled time, I was called for surgery prep just before 12:30. As usual, the staff here is wonderful, I don’t think you can find a better place to have specialized treatment for many reasons. The prep nurse reviewed everything with me, double checking history, condition, tests. Dr. Dora came by to discuss things and make sure I had answers to any questions. The Anesthesiologist came and explained things and answered questions. Mayo has the process down! Efficient but never rushed. I was wheeled into surgery, an epidural was administered, and I have no memory beyond them preparing to administer the epidural. The procedure lasted 61 minutes, at least 53 grams of Prostate was removed. I woke up in recovery, and it took me 4 hours to become stable enough to be discharged. The Mayo Clinic Campus has a Courtyard Marriott Hotel within a few hundred yards of the Mayo Hospital, and because I was not local, I utilized a service called the Care Hotel. This means that I was transported to the hotel, taken to a room that was private, a nurse on staff until 11:00PM, and three ways of getting help if I needed it. So my wife and I stayed there in that room overnight. If I needed help, an I-Pad linked to the nursing staff for video link was by my bed. A special phone was available so that one button would call the nursing staff if I needed help or if something went wrong. I didn’t sleep very well that night primarily due to the Foley Catheter in place. You pee allot of bloody urine the first night which is completely normal, it can continue for a few weeks. I disliked the Foley catheter a great deal and was eager to have it removed. The following morning, I went back to Urology for my appointment where the Foley was removed. I felt liberated! Later that day, and after drinking about 80 oz of water, urinating several times, I went back to urology where they checked my urine retention status….mine was good and therefore I was effectively released! The timeline….I reported to surgery at 12:30 on Tuesday, and 26 hours later I was good to go. The Doctor asks that we stay Wednesday night in the area before driving 3 hours to our home. I’m home now, following the Doctors plan for recovery. I will go back to see him in 3 months. I am already urinating so much better, emptying my bladder, and the outlook for the future looks bright! I’m taking a stool softener to minimize any strain to the area while healing. The blood in the urine is looking much better! I’m still tender and sore, but I am improving everyday. While driving home I received the notice that my Pathology report was available. Of the 53 grams of prostate removed and submitted, all tissue was found to be free of any malignancy. I can’t say enough good things about the Mayo Clinic. It’s fabulous! You are in a good place when you’re at the Mayo!

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Thanks for reporting your experience, kayak. Sounds like you are another satisfied customer of the Mayo Clinic! 🙂 My doctor recommended having a new PSA test done 3 months after surgery to "reset my baseline number" because you can still develop prostate cancer after this type of surgery. My last PSA before surgery was 6.7 My new number three months after surgery is 0.32! That is the lowest PSA I have ever had going all the way back to my first one probably 30 years ago. Quite a dramatic change. I am glad to hear it all went well for you. Please check back again in a couple of weeks and let us know how you are doing.

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@rfherald

Well. after a PSA test of 10.4, Digital rectal exam, a Urinary flow test, a Postvoid residual volume test, a Cystoscopy, and a Prostate biopsy, the urologist gave me a choice of Rezum or Urolift. I thought I would ask the Mayo Connect community for advice. Rezum? Urolift? Something else?

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Have you had a TRUS (trans rectal ultrasound ) or an MRI to get a more accurate estimate of the size of your prostate? I ask because they don't seem to recommend Rezum or Urolift for larger prostates over 90 grams. Mine was 120 grams with an obstructing medium lobe which required either HoLEP or BiPolEP. I had BiPolEP and I am completely satisfied with the results.

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@jetjock

Have you had a TRUS (trans rectal ultrasound ) or an MRI to get a more accurate estimate of the size of your prostate? I ask because they don't seem to recommend Rezum or Urolift for larger prostates over 90 grams. Mine was 120 grams with an obstructing medium lobe which required either HoLEP or BiPolEP. I had BiPolEP and I am completely satisfied with the results.

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Yes, I had a TRUS and have an MRI scheduled in seven weeks. He wanted to have a better picture of the prostate. He said my prostate was 67 ml and it should be under 80 for urolift. Urolift may not last as long as Rezum which takes 3 months to fully recover from.

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@rfherald

Yes, I had a TRUS and have an MRI scheduled in seven weeks. He wanted to have a better picture of the prostate. He said my prostate was 67 ml and it should be under 80 for urolift. Urolift may not last as long as Rezum which takes 3 months to fully recover from.

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All I could add to this is that a friend had Rezum procedure and is now very happy about 2 years out. He did say it took months before he saw improvement.

My first urologist wanted to do Urolift with prostate size over the limit but he thought he could add extra clips. That’s why I have a new urologist.

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It’s tough to make the decision on which procedure to go with. If you haven’t already done so, I would recommend getting a second and a third opinion on how you should proceed. In my case I visited three Urologists once I was told by the VA that I must have my prostate removed, and due to my prior laparoscopic surgeries they could not perform the surgery. First thing I did was investigate, reading, YouTube, whatever research tools I could find to read up on the topic of prostate removal. I reached out to the Mayo Clinic Urology Department and booked an appointment 2 1/2 months out. In the mean time, I visited a Urologist who did the Rezum and Urolyft surgeries. He was quick to recommend Rezum. It bothered me that the “steamed” prostate tissue was left to die and decay in my body. He identified the possibility of Sepsis and the need to be on antibiotics before and after the procedure to compensate. Next I went to a well rated Urologist who also performed Rezum, Urolyft, TURP, Robotic, and several other procedures……he came straight out and said that there was only one procedure for me….HOLEP….and only a few Doctors in Florida can perform it. He’s the Doctor that told me Rezum would not work for me given the medium lobe growing up into the bladder. He recommended a Urologist at the Mayo…..which happened to be the same Doctor I had an appointment with weeks later. I can’t tell you which to choose, I can tell you I am happy with the procedure I chose. All of the enucleated prostate tissue removed was sent to pathology. I was given a 5 day prescription for an antibiotic following surgery. I do not have a catheter, I do have blood in the unlined (expected) but it will stop soon, I’m having very little leakage now 4 days after surgery and I am certain that will end soon. I believe in second and third opinions. Good luck friend, let us know what plan you settle on. I’m rooting for you!

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@bill5letsfixthis

All I could add to this is that a friend had Rezum procedure and is now very happy about 2 years out. He did say it took months before he saw improvement.

My first urologist wanted to do Urolift with prostate size over the limit but he thought he could add extra clips. That’s why I have a new urologist.

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Re: Rezum, that is similar to what my Urologist said. Plus I would have to be catheterized for three days. It sounds like Rezum is significantly more involved than Urolift. He said Urolift is a same day procedure and you walk out of the office. I would like to hear from someone if Urolift is effective (only one or two trips to the biffy each night) and lasts until I don't need it any more.

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@ch665296f

Since I started this thread, I have had a robotic prostatectomy, gleason 7, combined with a diverticulotomy which was very large. The surgery was on April 11. I had issues with previous incontinence before the surgery, and continue to do so. I have tried most meds, kegel exercises, self cathing...not a lot of success. I continue to manage by wearing diapers of some kind. I am 70 yrs. old, and really do not want any other kind of surgery...artificial sphincter, and a lift were suggested. Is it acceptable to manage as I am? I'm at the point where it doesn't bother too much. Some days are better than others. I just don't want to take a chance and go without protection.

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I had a very similar history. I am 69 but surgery was in 2016. My incontinence brought me to the artificial sphincter surgery but it is not controlling my incontinence. I have bad bladder spasms and they do not respond to two different medications. My next step is botox injections and I have a scope and Urodynamics test to qualify me for the injections. I too am wearing guards and diapers and it is frustrating. I don't believe the AUS device has helped me that much and the real problem is the bladder spasms which nothing has worked. Avoid the surgery.

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There is a new procedure called P.A.E. Prostate Artery Embolization.
They don't go through the urethra, they go through the ephemeral artery in the groin or the wrist with a catheter that injects tiny beads into the prostate to cut off part of the blood supply to reduce the size of the prostate. This is performed by an Interventional Radiologist, using x-ray guided imaging to position the beads. I've been reading a lot on this, I'd love to hear from someone who has had this done. I've only seen a couple of non-promotional videos. No sexual problems, retro-ejaculation, incontinence. I have a 99cc prostate and they have has success with prostates larger than mine with the PAE. It's an in-office under light sedation procedure. This is the second time I've posted this and I've had to reset my password here three times.

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@delmar418

There is a new procedure called P.A.E. Prostate Artery Embolization.
They don't go through the urethra, they go through the ephemeral artery in the groin or the wrist with a catheter that injects tiny beads into the prostate to cut off part of the blood supply to reduce the size of the prostate. This is performed by an Interventional Radiologist, using x-ray guided imaging to position the beads. I've been reading a lot on this, I'd love to hear from someone who has had this done. I've only seen a couple of non-promotional videos. No sexual problems, retro-ejaculation, incontinence. I have a 99cc prostate and they have has success with prostates larger than mine with the PAE. It's an in-office under light sedation procedure. This is the second time I've posted this and I've had to reset my password here three times.

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Thanks for posting. I have had the Rezum procedure done recently and am waiting for good news. In the meantime I continue looking around in case I need a backup. How has PAE treated you? How long from the procedure until you were back to normal? What was/is "normal?" Will the prostate be completely gone in time? As an aside, can PAE be a treatment for prostate cancer?

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@rfherald

Thanks for posting. I have had the Rezum procedure done recently and am waiting for good news. In the meantime I continue looking around in case I need a backup. How has PAE treated you? How long from the procedure until you were back to normal? What was/is "normal?" Will the prostate be completely gone in time? As an aside, can PAE be a treatment for prostate cancer?

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Hey there, I am exploring the PAE option after doing research on the internet. After watching the outcomes of others and reading in various other forums to make comparisons, I'd rather opt for this than the others- providing it's available to me here in Europe. I have not had any procedure other than an indwelling urethral catheterization going on three months. I see this urologist this coming Monday. Maybe I'll get some answers. A PAE for P. Cancer? This is a good question. I can only guess at this point that they would need to have the exact location of the cancer. If they can do this with the radioactive seed implants, maybe. But this treatment is for shrinking the prostate without taking finasteride and tamsulosin and other bladder-specific drugs. I would ask this question definitely.
On your end, I'm happy you're already planning a back-up, they say everybody is different- doesn't this make us the same? I hope EVERYTHING turns out in your favor with a LASTING outcome. Please keep us posted, often. I'm hoping that you'll hear good news!

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