Hypothyroidism Diagnosis: Not sure what to do at this point

Posted by rneedham1 @rneedham1, Jan 14, 2020

Hello. For reference I am a 27 y/o female. I recently had some blood tests done that showed my TSH levels at an 8.26 so my Dr. reordered the blood tests. I had the same tests done the next day as well as additional tests for T4 and T3 and everything showed normal the second time around with my TSH levels at a 4.12. I don't understand what would cause this fluctuation and additionally my doctor seems to think I am fine. However, I have been having the following symptoms for at least the past year and feel like they might be related to a thyroid issue. I don't know what to do at this point…My symptoms include:

-Shakiness, dizziness, sweating, weakness, light headedness whenever I start to feel hungry
-Severe lack of sex drive
-Overly emotional, feeling tearful, almost crying for no reason
-Feelings of being lost, hopelessness that seemingly come out of nowhere
-Brittle, breaking nails and hair breakage
-Feelings of anxiety
-Feeling cold often even when others feel warm or hot
-Decreased Appetite
-Mood swings, snapping at my SO
-Random loss of desire to do things I enjoy

I'm not sure what to do at this point. I am frustrated and I am tired of having these symptoms and being told I am fine.

Interested in more discussions like this? Go to the Diabetes & Endocrine System group.

No, they only do the TSH lab test. I have asked several time with a few different doctors for more (per my aunt's recommendation) but get critized by them for asking and made to feel like I do not know what I am talking about. Thanks for the link. I think I should print this out and take it with me to help with the discussion. With my supplements though, I think I better stop for a couple week before the lab test if they were to be ordered as to not skew the results. The very first endocrinologist I saw put me on meridian and that was helpful but I was told they will not keep me on this. Plus, this was taken off the market with thoughts it was causing heart valve issues. Then any endo I saw after that only wants to concentrate on my diet, then when I show them I eat pretty good and healthy, then they jump to the lack of exercise issue. I usually note the fact that I was recently on a research study that required me to ride a stationary bike for 12 weeks, for 5 days a week for 60 minutes while they monitored my heart rate to make sure it was maintained at a certain level. After the 12 weeks I gained over 10 pounds and no weight was ever lost in those 12 weeks.

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@mri8191

No, they only do the TSH lab test. I have asked several time with a few different doctors for more (per my aunt's recommendation) but get critized by them for asking and made to feel like I do not know what I am talking about. Thanks for the link. I think I should print this out and take it with me to help with the discussion. With my supplements though, I think I better stop for a couple week before the lab test if they were to be ordered as to not skew the results. The very first endocrinologist I saw put me on meridian and that was helpful but I was told they will not keep me on this. Plus, this was taken off the market with thoughts it was causing heart valve issues. Then any endo I saw after that only wants to concentrate on my diet, then when I show them I eat pretty good and healthy, then they jump to the lack of exercise issue. I usually note the fact that I was recently on a research study that required me to ride a stationary bike for 12 weeks, for 5 days a week for 60 minutes while they monitored my heart rate to make sure it was maintained at a certain level. After the 12 weeks I gained over 10 pounds and no weight was ever lost in those 12 weeks.

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@mri8191 If you take biotin stop taking it a few days before any TSH test, it can affect the results. My endo told me it does not affect your thyroid, just the test, and then only if they use a certain method for the test.
You must be in pretty decent shape. I can't go more than about 40 minutes on my recumbent bike, and about the same maximum on a treadmill or elliptical. It's amazing that you gained weight, assuming that your intake was the same.
JK

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Look at symptom of Parathyroid

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Hello @rneedham1

It has been a while since you last posted. I hope you have some relief from your symptoms. Will you post an update as you are comfortable doing so?

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These symptoms line right up with those I share with members of my Pernicious Anaemia (vitamin B-12 Deficiency) support group on Facebook. See if docs will do a vitamin deficiency panel. Such deficiencies are prevalent among sufferers of pituitary gland issues.

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Are you on blood thinner Xarelto? I had similar issues, then same thing happened with Thyroid medication. Higher the dosage the worse the side effects.

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@contentandwell

@mri8191 If you take biotin stop taking it a few days before any TSH test, it can affect the results. My endo told me it does not affect your thyroid, just the test, and then only if they use a certain method for the test.
You must be in pretty decent shape. I can't go more than about 40 minutes on my recumbent bike, and about the same maximum on a treadmill or elliptical. It's amazing that you gained weight, assuming that your intake was the same.
JK

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Thanks for the information on the Biotin supplement, I will stop a few days before bloodwork tests. I am off thyroid meds and my OD, has me on Kelp, 150 mg day.
The Xarelto blood thinner and thyroid medication had some side effects, it also increased my blood pressure and sugar.

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@eileena

Have the test again. Some foods induce the elevated levels on the TSH test. First look up the foods that would elevate it, and look at those that lower it and examine your diet. Perhaps you inadvertently made the correction with your diet and then you were very close to borderline.

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helo I am abera my TSH level in report is 6.2 is it very much high?

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@abeera

helo I am abera my TSH level in report is 6.2 is it very much high?

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Hello @abeera and welcome to Mayo Clinic Connect.

@mri8191 @dorisena and @contentandwell are fellow Connect members and may be able to offer you support.

While we wait, I thought I would share some information that may be helpful.

– What is TSH Test?
https://www.webmd.com/women/what-is-tsh-test#:~:text=TSH%20levels%20typically%20fall%20between,you%20have%20an%20underactive%20thyroid.
When was this test done and what did your doctor recommend?

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@amandajro

Hello @abeera and welcome to Mayo Clinic Connect.

@mri8191 @dorisena and @contentandwell are fellow Connect members and may be able to offer you support.

While we wait, I thought I would share some information that may be helpful.

– What is TSH Test?
https://www.webmd.com/women/what-is-tsh-test#:~:text=TSH%20levels%20typically%20fall%20between,you%20have%20an%20underactive%20thyroid.
When was this test done and what did your doctor recommend?

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I am not able to help because I have not really learned the details about TSH. My thyroid was removed because of cancerous nodules and I am on throid medicine for the rest of my life. My endocrinologist kept saying my one number must remain low so I don't get more cancer, but I know I can't get more cancer in a thyroid that has been removed. Keep asking your doctor your questions. I have low energy and fight it daily but doctors insist it is because of the diabetes which I manage quite well. My blood sugar is between 100 and 115 every morning. I only take one metformin at night and I am thinking I can quit that if I am more active, depending on my bad back. Basically I do not "doctor" my chronic issues but concentrate on diet and exercise. I wish I slept better at age 86. I am working on it.
Dorisena

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@amandajro

Hello @abeera and welcome to Mayo Clinic Connect.

@mri8191 @dorisena and @contentandwell are fellow Connect members and may be able to offer you support.

While we wait, I thought I would share some information that may be helpful.

– What is TSH Test?
https://www.webmd.com/women/what-is-tsh-test#:~:text=TSH%20levels%20typically%20fall%20between,you%20have%20an%20underactive%20thyroid.
When was this test done and what did your doctor recommend?

Jump to this post

@amandajro and @abeera
I just looked back as far as I could in numerous portals to see what my TSH was prior to being on medication and I can't find that – I was able to go back to 2012. I've been on the medication for quite a while. Now when I see my endocrinologist he says my numbers are "spot on"

I am on what I think is the smallest possible dose of levothyroxine and it does what I need. It was a slightly higher dose but apparently my number has improved.

I wish I could be more help but that's all I have. I must say too, of all the medications I take, this one is one of the few that is totally non-problematic.
JK

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