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Hyperthyroidism: Share your experiences

Posted by rjtx @rjtx, Oct 5, 2019

Hi, I just found this forum and hope to get some shared experience. My wife (age 50) has low TSH 0.11 ulU/Ml, Free T4 at 1.49 ng/dL (range 0.89-1.76 ng/dL). Free T3 4.40 pg/Ml (range 2.3-4.20 pg/Ml) (elevated). She lost 10 lbs and has trouble sleeping which is why her PCP ordered such tests. Her PCP wants her to see an endocrinologist. we are in process of setting this up.
But I wonder if anyone has had similar issue and can share your experience on seeing doctor and treatments (what works and what doesn't). Even we are going to rely on the doctor, we want to research as much as we can before seeing doctor with questions ready. thank you so much.

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annmac9 | @annmac9 | Apr 17 2:57pm
In reply to @mcmurf2 "yes.. I went from 27 years of hypo to very bad hyper a year ago. lost..." + (show)
Profile picture for mcmurf2 @mcmurf2

yes.. I went from 27 years of hypo to very bad hyper a year ago. lost 40 lbs. shook bad, don't sleep, and would actually go into a what I call a 'comatose' state for up to 2 hours. I could not drive. it was awful. In my case, I was told I"d have to wait it out ( for the thyroid medicine I was on to get out of my body.). I have my first endo appt in 5 months next week. I have no idea where I'm at right now. 2 months ago, I was still in the hyper lab ranges. BUT.. I am not shaking now anymore, and my wt has stabilized. I still don't sleep though..... I will keep watching this message board. ( I am 55).

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@mcmurf2
I forgot to mention I have hypertension so of course the anxiety is affecting my blood pressure

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Cheryl, Volunteer Mentor | @cehunt57 | Apr 17 11:44pm

I have a history of hyperthyroidism / Graves Disease (about 25 years ago). I was treated with methimazole. My endocrinologist told me that hyperthyroidism can change to hypothyroidism over time. I have never heard of the opposite happening (Hypothyroidism switching to Hyperthyroidism.)
I was on methimazole for about 4 years; then my Dr. discontinued it but continues to monitor me. My labs are still normal.

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Briteyes | @ltrumble | Apr 26 6:42pm
In reply to @annmac9 "@mcmurf2 I also was hypo for years and turned hyper recently I stopped taking liothyronine 4..." + (show)
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@mcmurf2
I also was hypo for years and turned hyper recently
I stopped taking liothyronine 4 days ago but my anxiety is still driving me crazy and I wake up at night
How long did it take you to normalize. I’m 70 years old

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@annmac9
Hi I don’t know all my details. But I would love to keep up with your outcome. I’m 69 and I think I had hypo about 8 years ago. My PCP put me on 25 mcg of synthroid. I took it once daily for 8 years. I have been in excellent health over those 8 years. 6 months ago I experienced shaking and high blood pressure. From the end of February this year up today I have been experiencing all the symptoms of my agitated depression, which I was diagnosed with 10 years ago. I’ve been in remission from that over the last 10 years. PCP had my blood work done in January and late March. Both results showed normal thyroid levels. So i found a psychiatric doc who started treating my relapse of agitated depression. The best part of finding this psychiatric doc, was she noticed on my lab work, that my free T 4 was slightly high. She told me that this could be contributing to my anxiety symptoms. She got in contact with my PCP and hopefully tomorrow someone will lower my synthroid med. I have lost 20+ lbs, I weighed 135 on February 18. No appetite, having trouble sleeping for 8 weeks. Your email caught my attention when you asked how long before your anxiety starts to settle. I would love to know that as well. I’m so nervous waiting for my online call with this new psychiatric doc tomorrow. Please reply

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