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Anyone have Primary Aldosteronism (Conn syndrome)?
I have PMH of hypertension and the main reason is primary aldosteronism , which is caused by a tumor on the left adrenal adenoma, and after i had left laparoscopic adrenalectomy, the ( Aldosterone/plasma activi ration produce from right adrenal adenoma is still high resulting in hypertension ( 110+, 150 +), my doctor start to give me ( eplerenone 50 mg X 2 day ) and after 2 weeks raised the dos to ( eplerenone 50 mg X 4 day ) but my blood pressure still not responding.
any thoughts?
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In 2022 I suddenly started having high BP -always had very low BP), fatigue, sense of thirst, frequent urination, all the good stuff. For 2 years, doctors at UCHealth (where I was being treated for breast cancer) claimed it is my anxiety + reaction to therapy. In 2024 a good cardiologist suspected PA, and after all tests I was diagnosed with PA in Feb. 2024. CAT scan found no tumors, and I have postponed AVS until I speak with a nephrologist too. 100mg Spironolactone daily: fixed potassium levels, no high blood pressure, all good with urination etc. My limited experience gives me the impression of most specialists are still in the dark about the disease (so, not comprehensive testing or medical exploration), and insurance companies are happy to oblige. Good luck with your journey, and I wish you the best.