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Hypermobile Ehlers Danlos Care Team at Mayo Clinic?
Does the Mayo Clinic in Arizona treat Ehlers Danlos Syndrome and it's comorbidities? I am awaiting genetic testing for it. I have three doctors who think I have the hypermobile version and the possibility of the vascular version because of my family history. I am looking for a care team and saw that Mayo has care teams for EDS, but it didn't say which of it's 3 locations offered it. Even though I live out of state, the Arizona campus would be very convenient because my sister lives right next to it, so I would have lodging and support while I was out there.
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@cindyhowell, welcome. Mayo Clinic treats patients with Ehlers-Danlos syndrome and hEDS at all three Mayo Clinic locations. The comprehensive EDS Clinic is located at Mayo Clinic in Jacksonville, FL. https://www.mayoclinic.org/departments-centers/ehlers-danlos-syndrome-clinic-florida/overview/ovc-20522975
In Florida, the Mayo EDS clinic offers comprehensive evaluation by doctors with expertise in caring for people with every form of EDS, including the rare and complex — EDS of known genetic causes, hypermobile EDS and hypermobility spectrum disorders (HSD). They evaluate, diagnose and develop care plans tailored to the needs of each person. Ongoing care continues with your local team closer to home.
To learn more about EDS care at Mayo Clinic, you can call the Ehlers-Danlos Syndrome Clinic in Florida appointment office at 904-944-3149