Sharing symptoms and experiences

Hello out there ! My husband was diagnosed with PD about 3 years ago. He's 73 years old, I'm 68. We first noticed one of his hands shaking and its been doing that for 3 years. He retired "again" about 5 months ago. Doesn't seem to be interested in anything but TV and sleeping ALOT in his chair and it's not even a recliner. Getting more rigid and walking slower. Confirmed about 3 months ago that he needed hip replacement surgery but the Dr. didn't push it. Dr. said my husband would know when and if he chooses to have it. Has a small crack in his hip. Arthritis probably the Culprit. Getting more nervous and not talking as much but he's never been a big talker but it's definitely a change. Still drives, shops for groceries and pays our Bills. He has night jerks in his sleep and sometimes yells out or sometimes mumbles then laughs. I bought a body pillow to put between us as his twitching wakes me up. He's going to his Dr. next month. Any suggestions how I can Woo him into taking me with him to his appt.? We've been married 12 years. Known him 5 years longer than that. I told him I needed to go to get more involved in his health as I will be the one here when things get worse unless
something happens to me first. He won't respond. Makes me so sad and I just want to throw up my hands in the air. I love him very much but living with a very negative person and feeling like I'm with Don Rickles Jr. sometimes is more than I think I can stand. That's why I searched for a support chat line. Maybe someone out there can give me a suggestion that's been where I am right now on this crazy journey called PD.

I am 73; diagnosis of PD 03/2018 and on carbi/levo 25 tid since then. I am doing well. My MDS says I have objectively improved over past 18 months. I exercise daily.My worst symptoms are voice issues and s weating. Voice doing okay with loud PT.Sweating is awful: I have to change clothing a couple times per day. I walk around the house with a hand towel for my very wet hands. By the time I finish watching a movie in bed the towel I sit on is wet. Coupled with this is temperature dysregulation: I shiver a lot and my hands and feet are always cold. I wear layers of clothing and of course they get damp from the sweating. which, while worst in hands, is total body.I would greatly appreciate any suggestions.thank youkeith

Hello @keithbeck999 and welcome to Mayo Connect. While I've had PD for several years, now, I have not heard of Hyperhidrosis before. I did a bit of research and found some information from Mayo Clinic's website. Here is the link,
--Hyperhidrosis
https://www.mayoclinic.org/diseases-conditions/hyperhidrosis/symptoms-causes/syc-20367152
There is a tab that can take you to Diagnosis and Treatment, which you may find helpful.

You might also find The Davis Phinney Foundation website helpful in finding information about PD non-motor symptoms. As you probably know, the symptoms of PD tend to have different categories: Motor Symptoms and Non-Motor Symptoms. Here is a link that will give you more information about Non-Motor Symptoms:
--The Parkinson's You Don't See
https://davisphinneyfoundation.org/events/#1656100928285-a5c15265-8aba
The Davis Phinney Foundation also posts Webinars on different topics that explore different problems and treatments that people with PD face on a regular basis.

Like you, I exercise on a regular basis and that really helps the motor symptoms, however, the non-motor symptoms have to be treated differently. I've also seen a speech therapist for the voice problem as well as an otolaryngologist for a paralyzed vocal cord.

I'm wondering if you've seen a dermatologist regarding hyperhidrosis or if it has just been assumed that this is related to your PD diagnosis? Has any testing been done as mentioned in the treatment section of the Mayo Clinic article (iodine-starch test and sweat test)?

I am relatively newly diagnosed as of last fall, have had what I thought was dry eye from before my diagnosis. As time has gone on things have gotten worse. I have visited two different Optometrists and been told it is dry eye. One mentioned that my meds could be part of the problem, so I thought I would ween down on my CL and see if that helped, unfortunately things got much worse. I have since gone back up on my CL and am back to where I was before. That being having problems mostly while driving, not so much during everyday work activities. I have read a lot about Blepharospasm, and it sounds very much like what I have going on. I am just curious if anyone else has had these problems and who they saw for help? Who would have thought tht my eyes would be my biggest problem.