1. < Diabetes & Endocrine System

Hyperaldosteronism second opinion

Posted by bjfons @bjfons, Jul 21, 2022

My son in Milwaukee had a blood pressure of about 250 and doctors were thinking that he may have Conn's Syndrome or hyperaldosteronism. They have done cat scans of his glands and put him on medicine to lower his BP. They say all is OK and he should just stay on meds. He is still having symptoms like mood swings, fatigue, muscle aches and excessive urination and I'm wondering if he can have a second opinion from the Endocrinologists at Mayo.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Jul 21, 2022

Hi @bjfons, Welcome to Connect. I've had high blood pressure since my mid 40s. I participated in a Mayo Clinic Heart Study in Rochester, MN in the 1980's and as a result they discovered the cause of my high BP was Primary Aldosteronism (Conn's Syndrome). They then switched my BP meds to hydrachlorathyazide and spironolactone and it's done well controlling my blood pressure. I don't think my BP was ever above 200 but it's been so long ago I don't remember.

If your son's doctors are not really sure of the diagnosis and you want a second opinion, Mayo Clinic would be an excellent choice. If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

Can his doctors give your son a referral to Mayo Clinic?

REPLY
1 reply
bjfons | @bjfons | Jul 21, 2022
In reply to @johnbishop "Hi @bjfons, Welcome to Connect. I've had high blood pressure since my mid 40s. I participated..." + (show)
@johnbishop

Hi @bjfons, Welcome to Connect. I've had high blood pressure since my mid 40s. I participated in a Mayo Clinic Heart Study in Rochester, MN in the 1980's and as a result they discovered the cause of my high BP was Primary Aldosteronism (Conn's Syndrome). They then switched my BP meds to hydrachlorathyazide and spironolactone and it's done well controlling my blood pressure. I don't think my BP was ever above 200 but it's been so long ago I don't remember.

If your son's doctors are not really sure of the diagnosis and you want a second opinion, Mayo Clinic would be an excellent choice. If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

Can his doctors give your son a referral to Mayo Clinic?

Jump to this post

Hi John,

Thanks for your response and I'll pass this on to my son. Do you have any names of doctors that you would recommend at Mayo in Rochester?

Bradlee

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Jul 21, 2022
In reply to @bjfons "Hi John, Thanks for your response and I'll pass this on to my son. Do you..." + (show)
@bjfons

Hi John,

Thanks for your response and I'll pass this on to my son. Do you have any names of doctors that you would recommend at Mayo in Rochester?

Bradlee

Jump to this post

Hi Bradley, The last vascular doctor that treated me at Rochester Mayo was Dr. Robert McBane but that was for diagnosing my lymphedema. My daughter has Long QT Syndrome and her doctor who she thinks very highly of is Dr. Michael J. Ackerman. You can find a list of all the Mayo cardiologists and their specialties on the website here – https://www.mayoclinic.org/appointments/find-a-doctor/search-results?searchterm=cardiologist&locations=Rochester%2C%20MN

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 30, 2022
In reply to @bjfons "Hi John, Thanks for your response and I'll pass this on to my son. Do you..." + (show)
@bjfons

Hi John,

Thanks for your response and I'll pass this on to my son. Do you have any names of doctors that you would recommend at Mayo in Rochester?

Bradlee

Jump to this post

Hi @bjfons, I added your discussion to the Endocrine System group (https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/) as well.

@dawn_giacabazi has written a fair amount about her experience with Hyperaldosteronism and is a patient at Mayo Clinic. Due to family issues, she's not active on the site at the moment, but you can click on Dawn's username to read some of her past posts.

I hope your son contacts Mayo Clinic.

REPLY
Please sign in or register to post a reply.