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Hello, I am reaching out to see if anyone in this group is diagnosed with HPV P16 positive cancer We have unknown origin and are being treated for head and neck cancer. Anyone else with similiar presenation?.
Thanks Colleen, I am male so cancer was obviously Oropharyngeal for me. And yes mum's was also HPV positive. They tell me its not hereditary however it is very coincidental nonetheless.
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Chamst, HPV infections are not uncommon. So it is entirely possible for both your mom and you to have HPV-related cancers without it being hereditary.
I’d like to bring fellow members @ptlhrms @alpaca @loli @fxdwing and @catlyn into this discussion as they have experience with oropharyngeal cancer and HPV positive cancers.
Chamst, have you had a chance to discuss your concerns about radiation and dosage with the radiation oncologist?
Hi@chamst I belong to a biggish group in New Zealand and although my cancer was not HPV many of my friends have had an HPV-related head and neck cancer. It's due to a very common virus that most of us shake off but which for an unlucky few lurks for years or decades until it causes a cancerous tumour. Luckily, HPV-related head and neck cancers are easier to treat and have a better survival rate. Best of luck with your treatment.
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