How to manage across geographies

Posted by jml6812 @jml6812, Jan 3 7:40pm

I assume that because this is MayoConnect that perhaps several of you live in Minnesota. Although my husband and I were born in MN and still have a small place there we now spent 7 months a year in Florida. My primary doctor is in Florida and I'm being treated at UofF Health in Gainsville where they have an NTM specialty clinic. I've been diagnosed with Bronchiectasis and Pseudomonas and Abscesses. I have a bronchoscopy coming up next week with cultures so expect to have a treatment plan after that. Currently doing airway clearance with Albuterol, 3% Saline and Aerobika PEP.

I'm wondering how I should manage things when I'm in Minnesota. I don't really have a doctor there anymore. Should I find an internist and have him/her connect with my FL Pulmonologist? Should I try to get into Mayo's specialty program? Does anyone know a good pulmonologist in the twin cities or at the UofM?

If any of you fly to warmer climates in the winter, how do you handle things?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@jml6812 Let me try to answer your question - it is a dilemma for many of us with chronic health conditions. Our primary care is back in Minnesota, with Health Partners/Park Nicollet, which offers nearly every specialty we need. Most of our conditions are either fairly stable or of long standing. We have a protocol in place for treating things like a bronchiectasis exacerbation, and can also schedule video visits as needed.
If we need urgent care while in our winter home, we visit the local stand-alone ER affiliated with our (teaching) hospital of choice. That way, we have rapid access to all the specialists in their network.
When we are in Minnesota, we visit all of our docs as needed, and make sure all tests are done and prescription refills are sufficient to last until spring.
When I was on the 3 antibiotics for MAC, I had specimen cups and sent my sputum samples as directed to the lab for culturing. When the results came back, the docs would call me and make any necessary changes.
The only areas where we have issues are PT and chiropractic care (we use a specialty type called NUCCA) and must travel a few hours to the nearest one. PT protocols here are not the same here, and I have not found one who is as good as mine - who practices manual manipulation, myofascial release, and designs specific stretches for my chronic pain. So, my first and last stops on any trip home are to his office. In between I try to maintain on my own.
When my husband had kidney issues a few years ago, we found him a specialist in Texas, but now that he is stable we manage the same way as my bronchiectasis.
I hope this helps.
Sue

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Thanks, Sue for the thorough explanation. That's pretty much what we do in reverse. Primary is here in FL and we use Park Nicollet urgent care and their network of specialists in MN. We don't really have much in the way of chronic illness that needs regular attention. The only exception until now is my LPR. My GI is here in FL we didn't have much luck finding an ENT in FL and had to go to the UofM to find one who really knew anything about it. After watching Dr. Huitt's presentation, I'm more and more convinced that's how I picked up my infections. Her plain spoken approach and practical recommendations have enlightened me. I guess we'll figure out our approach after my bronchoscopy next week and the cultures and see what my pulmonologist wants to do. My daughter's having a baby in late June and there's really no way I'm going to miss that! Thanks again.

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