How to know what spine surgeons and their reviews are honest?
A friend of mine was helping me look up some surgeons I have had appointments with and one of them had very brief reviews, like "Good" or he is a great surgeon, etc. None of them had any first name with last initial as I have seen in some other review sites. So, how do I know anything about his work?
Another surgeon I am going to see had two or three horrible reviews, like, "he ruined my life." But how do I know that is real? Any knowledge of how these things work please let me know.
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@marcd2k
What a shame that you have had such a tough time. I hope that you are able to find the care that you need.
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1 Reaction@gravity3 Hello, thanks for writing. Yes, it has been a real eye opener for me and my wife seeing how poorly the healthcare system is being run. We have been told on more than one occasion by our insurance carrier that we have a very good plan. It turns out, you can save a lot of money by not having insurance, and then paying cash for visits or procedures.
The main thing is to not give up. Just because someone tells you they know the answer, or that they don't know the answer, until you find out what the actual medical problem is and how to treat it, you keep moving. Keep reading, watching videos, writing to people, ask questions, etc.
This has been my full time job since July of 2023. I read, watch, call, and write to everyone I feel could have an idea for what is wrong, or who to see next. I have been to more than 30 doctors, and this is why.
Several gave up before even seeing me in person, several more gave up after a single visit, or a single procedure, was done, but there was no change to my condition. I've had two doctors that I felt were actually trying, to the point they got upset when something didn't work. And it took me about 2 years to find a Primary doctor that actually listens and returns calls / messages, and cares about what is happening.
Onward we go...
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2 Reactions@marcd2k Shucks yes those are supposedly good hospitals, esp Cedars-Sinai.
@ccchang Exactly, and Cedars has actually been the worst overall. When this started in July of 2023, my wife drove me to the ER because my low right side back pain was so bad, like a knife was stuck in my back. They performed a CT scan of my abdomen and pelvis looking for kidney stones, but all of my organs were normal, and no stones were present.
The ER doctor then proceeded to either lie to me, or mis-diagnose me, either way, not a good look for Cedars. First, a little context at the ER. I was there from about 1pm until 5pm, so actually not the longest ER visit, but still as much fun. While I was waiting to be brought to the CT scan room, there were nurses and doctors rushing around, and I heard a couple of them comment on how busy it was that day. So, when an ER employee says it is hectic, it is hectic.
This is what I believe happened...since I was not in distress to where I was rolling on the floor screaming, and they needed to clear out some patients because it was that busy, I was given a line of BS by the attending physician.
He told me the CT scan showed Diverticulosis in my colon (I researched all of this when I got home, didn't know details at the ER). He actually drew on a piece of paper, showing me what happens in the colon, especially after a certain age (I was 60 at the time), little pockets bulge out and this is where food/waste can get stuck. If there is no problem with trapped food, and there is no infection (which is Diverticulitis, when you need anti-biotics), there are no symptoms. So, no pain in the abdomen or low back, and the only way to find Diverticulosis is when another scan (like my CT scan) is run.
There were two problems with this diagnosis. First, after telling me false information about my condition, I asked him what do I do, and all he said was "eat more broccoli", then walked away. So, I was sent home with the same pain I arrived with, and as I stated, either lied to, or mis-diagnosed.
The reason I say this is two-fold; Diverticulosis has NO SYMPTOMS, as there is no infection, and no trapped matter in your intestine / colon. The only time you will have pain from this condition is when it progresses to Diverticulitis (an infection). And the pain from this condition will be in the LOWER LEFT ABDOMEN, not the LOWER RIGHT SIDE of my BACK. And this is why I say it was either a lie (he didn't know what was wrong, but needed to clear out some room in the ER), or it was a mis-diagnosis, where he didn't know the difference between the two conditions. Not sure which is worse, would have to ask the hospital which situation they would rather explain to their patients.
This was all the VERY FIRST DAY of my now more than three year journey into medical H E DOUBLE TOOTHPICKS. I have been going through multiple hospitals, I've seen multiple doctors, and they all have their problems, even the "elite" ones. But the way I've been treated overall has been very disappointing, so it doesn't help just because I changed hospitals / doctors, someone will still mess something up.
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1 ReactionI just had Fusion done - I interviewed a few and selected my surgeon - I trust my surgeon, can recommend, but where are you located?
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1 Reaction@marcd2k Oh no, what a terrible experience! Maybe UCSF or Mayo (Phoenix)? I hope you're able to find a good doctor. I've seen many doctors too - all kinds.
@sean2026 Oh yes, can you let me know your surgeon? I'm in Hawaii so am hoping yours is on the West Coast.
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1 Reaction@ccchang My wife and I are talking about traveling out-of-state as well as out of the country. Medical Tourism, as it is called now, is booming. There are specific countries that are known for specific specialties. I'm thinking of starting with Mayo, and there is also Scripps, I believe it is called, in San Diego. Then international from there. Thanks for writing!
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1 ReactionHi. It's a big decision, I appreciate. I would be inclined to make another appointment with one of the surgeons who advises against surgery and ask them to explain their thinking.
I had a surgeon who explained to me, in a similar circumstance, why he advised against surgery -- my arthritis was too diffuse, in too many locations on my spine -- for an operation to succeed. I am ever grateful for his advice. I had just seen a surgeon who immediately scheduled me for surgery the following week!, which I believe would have gotten me in a very painful situation with a need for additional surgeries.
So, I think it's best to have a second meeting with one of the 2 surgeons against operating and find out why. I hope you get enough information to make a comfortable decision!
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5 ReactionsIf you're in NJ or Pa, I can recommend a neurosurgeon
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