How to get diagnosed.

Posted by codakay @codakay, May 31 11:10pm

Hi everyone,

I’m new to this starting in January. Everything I’ve read matches the bill(unfortunately ) to what’s going on with me. My Gp thinks I have it but he sent me to a neurologist. I can’t afford the 2k to get tested to rule it out . I got a referral for a rheumatologist. I’m just reaching out to see if anyone knows a faster way to get diagnosed. I don’t want the pain meds. I just need a diagnoses for work.

Also I’m on duloxetine. Tried gabapentin. Hated it.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

hraka13 | @hraka13 | Jun 15 1:25am

Dang. I take it not covered or dint have insurance?

codakay | @codakay | Jun 15 8:15am

In reply to @hraka13 "Dang. I take it not covered or dint have insurance?" + (show)

I have insurance, not the best insurance apparently haha.

profcnrn | @profcnrn | Jun 16 2:47pm

IMHO: There isn't a specific test for Fibromyalgia. It starts with engaged Q&A about what you are experiencing and connect the dots by a knowledgeable doctor. It becomes a R/O of associated Dx that have lab tests... Lupus, Sjogren
I definitely would ask the doctor to do a panel of Viral specific antibodies with assays. Reactivation of a virus (Epstein Bar, Shingles, Cytomegalovirus, Herpes 1-6 ---) all related and under the umbrella of Chicken Pox.
I was reading several books Chronic, Metabolical, Thyroid Healing - Hashimoto's PLUS support groups and YouTube podcasts by various healers. Different sources pointed to the "Viral Reactivation".
The labs my doctor ordered showed elevations in 3 viruses. He prescribed anti-viral Rx and LDN for pain.
I also add Meloxicam 1/2 tab (7.5mg) 2-3x a day for inflammation. I am also juicing and using herbal adaptogens for inflammation.
This protocol fully cemented for me about 1 week ago, so I'll keep you posted on my progress. It's been 3 years in search of a Dx, conventional treatment plus alternative. I use Epsom salt baths, NSAIDS as needed, massage, topical heat and cold packs...
I've also seen my share of Endocrinologists, Rheumatologists and PCP.
Don't give up. Ask questions. Educate yourself. Stay strong and pray.