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When will the CDC update their guidance on immunocompromised people and how much protection were getting from these vaccines. Are we still at risk even after vaccination?
1 more side note. My wife is in a Facebook group that has discussions about topics we have been chatting about. I’m not a Facebook person but if you are type in Facebook Transplant vaccine study group. There are 150 members.
Here is NPR story about the study. https://www.wbur.org/hereandnow/2021/05/12/transplant-coronavirus-vaccine
Yes, I bet they would love as many people as possible. This is email to the study group. They usually respond within a day. Just like Mayo they are wonderful, dedicated people that have been great to work with. I encourage anyone that is interested to reach out and ask to be added to T and C cell studies. Feel free to pass this around. The more people we have involved the better!
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@zon, Thank you. I'll let you know what I find out.
I meant to say T and B-cells. (I see where you copied my error) Sorry.
Thanks to both of you for additions. It was a lot of info to process. I received email that I’m going to be added to T,B-Cell studies. I will update information as time goes on. For reference in this study I didn’t receive any antibodies from either shot. I take 750 mico in the AM & 500 PM and 1.5 tac in the Am 1 in the PM. 3 years post transplant.
I’m glad you’re in the next study. I had the Pfizer vaccine, I’m just 8 months post- transplant, I take MFF, and I’ll be 62 next month…I’m figuring I have little protection. At least I live in Vermont where more than 70% of adults have been vaccinated!
The overall take away from Zoom was don’t assume you have immunity even if you are one of the people that registered a high amount vs study population. Sounds like other studies are in the works to study T cells and memory B cells. Those might be better paths to immunity. Time will tell. Some bullet points and I would encourage anyone else on the zoom to add thoughts.
Transplant patients are Less likely to develop immune response if taking Mycophenolate or Azathioprine. More likely if you got Moderna, younger and the farther you are out from transplant. They did see a better jump in people in the second shot to 54%. 46% didn’t receive any antibodies from either dose. Blood was collected by two different labs so when comparing results to other people might not have same variables.
People that are getting 3rd shot. France has approved people to get 3rd shot. Some people in study have decided to get 3rd shot. If you are getting 3rd shot they would like to study your blood before and after. They encouraged people to not do that unless you consult Transplant team. Vaccine is very safe. Vaccine Probably isn’t our way out of this.
Assume Risk is still great and keep doing the things that have gotten us this far. One immunologist said his opinion was this is here to stay, like the flu. Doesn’t think concept of Herd immunity is something that will work. Also expects a booster that will be programmed to combat variants sometime in fall. Wear Masks and socially distance should be the norm. Everyone should decide own level of risk. I know in our household those discussions have been active. My wife and I constantly review were we both are. My whole household is vaccinated but have college age kids that are now finally able to rejoin friend groups some of whom are not vaccinated.
Lastly, I Tremendous faith in our Doctors and health providers, Immunologists and scientists that are working their backsides off. These are the same people that dedicated lives to help us be were we are and I have the upmost respect for the work they are putting in. They will continue to work hard to find the answers we all waiting for. This is tough but have all dealt with hard situations and I wish everyone the best.
This is so depressing!
I am 5 months post transplant at Mayo. Like you, take 750/500 Mycophenolate and 3/3 Tacrolimus.
I had longed to do some international travel, but it sounds like from your take away that it would not be recommended.
I have had 2 Pfizer vaccines, as have most of my family.
My 4 month biopsy was perfect, and I am so thankful to my cousin for donating and for Dr Prieto for my kidney transplant and bilateral nephrectomy.
It just makes me sad that this virus will limit our freedom.
I’m so glad you are doing so well. Dr Prieto was also my surgeon!! What a great group of docs and nurses we had! I had to cancel a two week trip to Italy in April when the virus blew up. I’m so looking forward to the day we get replan the trip. I fear it will be longer then we would like. The longer we get from transplant the better our immune systems will be. Best wishes on continuing great recovery
Hope our country can get that vaccination number super high! Will make all the difference! 70% is great start!!
Yes. I have to say our Governor and his administration have been remarkable throughout the pandemic, from mask mandate to guidelines and vaccination rollout based on science and our state’s demographics. While also addressing the needs of businesses and working with our tourism sector, which is a huge part of our economy. He’s still holding twice weekly press conferences aired on public radio and streamed!
I'm a 70 yr old double transplant patient (Liver and Kidney) 2 year out.
I also watched the zoom meeting and I know I do not have antibodies (Moderna). I also had to delay a trip to see family in Europe. Based on the Zoom meeting, I hope a monoclonal antibody infusions works. We will just have to continue having to be careful. I live in Las Vegas where we have 300.000 tourists many weekends – so it's very difficult to go out anywhere.
I found this attached link to a recent Mayo Clinic study to be of particular interest. My son is a heart transplant recipient, vaccinated and 1 year out from transplant. Our masks and protocols are staying in force.
Thank you, Brenda. This Mayo article presents a clear message to all transplant patients.
1) Continue to use the safe practices. Don’t let your guard down. And 2). Researchers are working on learning more about how to protect us.
Im glad that you are keeping up with the latest information and that you are working alongside of him to stay safe as possible. I am right now feeling pressure from others who feel that I am being too careful. It causes friction and I don’t like that.
I like to use articles like this one to try to get them to understand.
lol athenalee, I'm in the same boat. I had the Pfizer vaccine, I'm just 7 months post-transplant, I'm 62 years old and I take MMF. Still, I'm hoping for the best but prepared for the worst 🙂
I'm not sure if my immune system will mount an antibody response or not, but I think it's doubtful. It's a little disconcerting to think that our safety may lie in the hands of anti-vaxxers. I'm really hoping they come up with alternative treatments that are effective because I don't want to live the rest of my life as a hermit if it can be helped.
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