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How long before URSO works for PBC?

Posted by webiondev @webiondev, Dec 17, 2019

Hey everyone

1. How long before URSO works for PBC?
2. What is the best dose?

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pjkb1health | @pjkb1health | Dec 18, 2019

For me, the Ursodiol worked quickly. I was put on a very high dose to begin with (1000 mg. per day), but your doctor will decide based on your size, weight, liver function blood tests, etc., what is best for you. He had me come back in a couple of months, and my blood tests had dropped into the normal range. He then reduced my dosage to 500 mg. per day, which has been what I have continued to take. I go back to monitor the blood tests every few months. So far so good, but my symptoms have persisted, especially extreme fatigue. Best of luck.

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1 reply
webiondev | @webiondev | Dec 19, 2019
In reply to @pjkb1health "For me, the Ursodiol worked quickly. I was put on a very high dose to begin..." + (show)
@pjkb1health

For me, the Ursodiol worked quickly. I was put on a very high dose to begin with (1000 mg. per day), but your doctor will decide based on your size, weight, liver function blood tests, etc., what is best for you. He had me come back in a couple of months, and my blood tests had dropped into the normal range. He then reduced my dosage to 500 mg. per day, which has been what I have continued to take. I go back to monitor the blood tests every few months. So far so good, but my symptoms have persisted, especially extreme fatigue. Best of luck.

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Thanks @pjkb1health I am taking sulbutiamine for fatigue.

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1 reply
pjkb1health | @pjkb1health | Dec 19, 2019
In reply to @webiondev "Thanks @pjkb1health I am taking sulbutiamine for fatigue." + (show)
@webiondev

Thanks @pjkb1health I am taking sulbutiamine for fatigue.

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Does that help you for the fatigue? I have never heard of it.

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1 reply
fighter | @fighter | Dec 19, 2019

Lunesta is good for fatigue in that it helps to sleep.

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1 reply
webiondev | @webiondev | Dec 19, 2019
In reply to @pjkb1health "Does that help you for the fatigue? I have never heard of it." + (show)
@pjkb1health

Does that help you for the fatigue? I have never heard of it.

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Yes it did.

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1 reply
pjkb1health | @pjkb1health | Dec 20, 2019
In reply to @webiondev "Yes it did." + (show)
@webiondev

Yes it did.

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Thank you so much.

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pjkb1health | @pjkb1health | Dec 21, 2019
In reply to @fighter "Lunesta is good for fatigue in that it helps to sleep." + (show)
@fighter

Lunesta is good for fatigue in that it helps to sleep.

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Lunesta may be ok if you have trouble with sleep. I have terrible fatigue and need energy. I do not need something to make me sleepy. Thanks

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1 reply
valm | @valm | Dec 30, 2019
In reply to @pjkb1health "Lunesta may be ok if you have trouble with sleep. I have terrible fatigue and need..." + (show)
@pjkb1health

Lunesta may be ok if you have trouble with sleep. I have terrible fatigue and need energy. I do not need something to make me sleepy. Thanks

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I’m the same way.. get up and eat breakfast wanna go back to sleep, etc.

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