How long before side effects from Hydrea start?

Posted by arecchie @arecchie, Oct 21, 2024

I just finished week two of Hydrea. How long before the side effects, if any, start? I'm trying to gauge when or if I'm getting the side effects.

Also, does anyone know if you lose some hair (thinning out) or a lot of hair? I know it's different for everyone, but a timeline and any help you can share would be appreciated.

Thanks so much.

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Profile picture for nande @nande

Yes, I’ve high platelets and recently had a bone marrow biopsy and aspiration.
I was asking about natural remedies to accompany taking hydrea. Mediations are truly a Godsend. Why would natural remedies be a problem with medications?

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Hi @nande. I jumped the gun with my comment and for that I apologize. I was concerned this was in reference to another reply where taking a prescribed medication for a blood condition was being discouraged and instructing to use a natural remedy instead. I didn’t realize that you were already following your doctor’s advice and taking the Hydroxyurea.

I agree, these meds are a godsend and I’ve been on chemo myself. Wouldn’t be here without it. 😁 It’s still a good precaution to check with your doctor before taking certain supplements, even something as common as curcumin/turmeric, ginger, ginkgo, pomegranate juice, etc.. Some can act as blood thinners, or potentially interfere with medications causing them to metabolize slower or faster, some can cause toxicity in the liver or kidneys, that type of thing.

I was cautioned to avoid supplements but just to eat healthy foods, rich in antioxidants and anti-inflammatory properties.
By the way, Welcome to Connect. It’s a wonderful forum for being able to talk with other people who have the same diagnosis. Here’s a link with a list of many of the conversations to get you started: https://connect.mayoclinic.org/search/?search=ET

When you had your consult after the biopsy, was there a mutation listed with your diagnosis such as JAK2 or CALR?

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @nande. I jumped the gun with my comment and for that I apologize. I was concerned this was in reference to another reply where taking a prescribed medication for a blood condition was being discouraged and instructing to use a natural remedy instead. I didn’t realize that you were already following your doctor’s advice and taking the Hydroxyurea.

I agree, these meds are a godsend and I’ve been on chemo myself. Wouldn’t be here without it. 😁 It’s still a good precaution to check with your doctor before taking certain supplements, even something as common as curcumin/turmeric, ginger, ginkgo, pomegranate juice, etc.. Some can act as blood thinners, or potentially interfere with medications causing them to metabolize slower or faster, some can cause toxicity in the liver or kidneys, that type of thing.

I was cautioned to avoid supplements but just to eat healthy foods, rich in antioxidants and anti-inflammatory properties.
By the way, Welcome to Connect. It’s a wonderful forum for being able to talk with other people who have the same diagnosis. Here’s a link with a list of many of the conversations to get you started: https://connect.mayoclinic.org/search/?search=ET

When you had your consult after the biopsy, was there a mutation listed with your diagnosis such as JAK2 or CALR?

Jump to this post

It’s good to know what to incorporate and what to stay away from. Thank you.
Yes, mutation in JAK2

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