How is a cancerous tumor in a diverticular graded?

Posted by markburns @markburns, 3 days ago

I had a diverticular on my bladder containing a cancerous tumor surgically removed with safe margins. 8 months later a polyp on a stalk was removed during a follow-on cystoscopy.

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RC ASAP is my recommendation. Diverticula have no muscle wall. So once it grows it is automatically PT3 and can reach nodes very easily. Or worse: PT4 with growth elsewhere.

This sounds like papillary. Very often you will also find CIS.

I regret not having an annual or semiannual cystoscopy after I was diagnosed with a diverticulum in 2018.

The urologist in NC at the time emphasized it was benign and congenital.

It turns out there is an increased risk for bladder cancer because of urine stasis in diverticula.

Now I am dealing with two TURBTs, PT3AN1M0, RC, DDMVAC and now nivolumab to hopefully eradicate low MRD so there is no recurrence.

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@jaxfl

RC ASAP is my recommendation. Diverticula have no muscle wall. So once it grows it is automatically PT3 and can reach nodes very easily. Or worse: PT4 with growth elsewhere.

This sounds like papillary. Very often you will also find CIS.

I regret not having an annual or semiannual cystoscopy after I was diagnosed with a diverticulum in 2018.

The urologist in NC at the time emphasized it was benign and congenital.

It turns out there is an increased risk for bladder cancer because of urine stasis in diverticula.

Now I am dealing with two TURBTs, PT3AN1M0, RC, DDMVAC and now nivolumab to hopefully eradicate low MRD so there is no recurrence.

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Thank you!

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Were any lymph nodes removed and checked during your surgery? My husband had this done at Mayo Clinic and 1 of 29 nodes removed was positive for tumor. It was graded per those results. As a very aggressive tumor, it continued to recur in the bladder until total cystectomy was done. Recurrence was resistant to BCG and Keytruda, and he chose radical cystectomy with neobladder to try for a cure. So far so good.

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