How does your family handle your autoimmune diseases & illness?

I find it’s so hard to communicate with my family exactly how I’m feeling. And it’s so frustrating at times. I’ve been sick many years now. I’ve had more bad times than good the past 10 years especially, so they’re just so use to it. I’ve nearly come to death’s door literal 3x in 4 years between the years of 2019 & 2023. And that not the first time I’ve been there. So some just expect I’ll make it back every time, some have my damn funeral planned 😂.

But what frustrates me is I have 7 autoimmune disorders & take 23 prescriptions which have to be taken several times daily some of them. Most of them cause drowsiness. Being autoimmune it’s is just exhausting. But my family knows this. And they SAY they understand I’m tired because of all my medication, because of my diseases, then in the next breathe call me lazy because I don’t want to go shopping. No I don’t want to go walk around Salvation Army to see if they have a bunch of shit i don’t want thanks. No Walmart can wait…the thought of all those ppl and germs…ugh in either of those places. I think of the ppl & the germs. I think of covid. I’ve had it 3x now…it’s not fun. I avoid going out unless it’s more intimate like lunch with a friend.

Anyways no one understands what you’re going through unless they’re going through it. And I tell them because my mom says oh I’ve been with you for 10 years I know what it’s like….i say you may see what it’s like but you don’t know what it’s like because you can’t feel it.

How does your family cope? How fo you cope with your family?