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How do you use the Bololo?
Hi all, I just got the Bololo baby bottle sterilizer after so many positive comments here. Trying to sort out the most effective & time-saving use ... So all input welcome and thanks!
If you have the Bololo...
How often do you sanitize?
How many nebulizer sets do you sanitize at once?
Do you still soak in soapy water first?
Do you leave the "extended" function on? If so why, if not why? Meaning it turns on heat every so often to keep parts sanitized as they are stored in the machine. Not sure if all the machines have this?
And I can't find a way to turn off the extended function without turning off the machine altogether. So if I turn on the machine when I go to bed, it kicks on and makes some noise periodically (I have it in my room).
Thanks and best to all.
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@pacathy why did you stop covering the vents after it's dry and the machine has cooled?
I've become as overwhelmed in the past few days as I was on the first day of diagnosis just a little over 3 months ago on the best way to make sure we are cleaning and sterilizing to reduce the possibility of infections and kills germs on our equipment. I understand different groups have different ways based on their comfort level - I'm just having trouble wrapping my head around all the science surrounded with NTM's, MAC, etc. luckily so far I'm infection feee just dealing with Bronchiectasis like that isn't enough on its own 🤦♀️ I do appreciate this group for what feels more like a true support group. Learning who to trust about information has been one of my biggest hurdles. I've always been a huge personal patient advocate for myself and questioning is how I feel comfortable in my efforts to gain more knowledge. But so many have so many different answers 😢
@kate2025 I stopped because the paper towels kept slipping off. I think it's low risk because it's under a cabinet and on different wall than sink. Putting a clean kitchen towel over it would also work and is easy.
I think it's confusing because there are several options that work. I keep tweaking what I do. Jennifer Honda from National Jewish just did a class on coping with environment that might help. https://m.youtube.com/watch
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3 ReactionsI totally agree with your statement!! This group is phenomenal!!! Many of us have recieved more valuable and informative feedback/information from this community than from any medical professional. This includes myself. I learned of all the different AC techniques not from a Doctor or Respiratory Therapist, or Physiotherapist, but from this group and/or webinars and you tube. I always thought it would be nice if you could get appointments with a Respiratory Therapist or Physiotherapist periodically to make sure your airway clearance methods are being done correctly. Also the only guidance you’ll ever get about cleaning and sterilization is from the manufacturer of whatever device you decide to use. I believe a liability factor comes into play there. I wish there were just Respiratory Therapist or Physiotherapist offices around much like Physical Therapist and Occupational Therapist are in some areas. Does anyone know of any? Anyway the only final answer I believe you’ll get is “You have to experiment and see what works best for you everybody is different”. While that is a very valid point, I wonder sometimes if it is just a way of saying we don’t know the correct answer. Anyway please stay with this group you’ll receive so much valuable support and information and you can apply the advice given to you, to see if it helps, best wishes & Gid Bless.
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6 Reactions@pacathy thank you. Will watch.
@pacathy thank you so very much. I just watched. It really helped in the balancing aspect of it all. Something I struggle with, trying to make EVERYTHING sterile and potentially limiting myself to the point of anxiety sets in and becomes all consuming.
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2 Reactions@kate2025 I've thought about this today. It's pretty confusing at first and it's impossible and frustrating trying to make life sterile. Do the things with biggest return that are recommended by the scientist who do the work .
I also like the philosophy of our mentor, Sue, who says she wants to live and enjoy life and not let the disease define her.
I've ended up trying to make my life simpler and doing the things with biggest impact first.
I had hot water heater turned up to 135 right away. That reduces concern about warm tap. (Falkenham) I'm in city and he said most municipalities don't have it in cold water, though I mostly drink boiled.
I plan to ask plumber about filters next time he's out-again to make it simpler.
I took the head off my shower, but a rainfall shower head works, too (per Falkenham).
I boiled things for a while, but got the Bololo, which again makes life simple and frees time.
Hang in there. You'll figure out a routine-and will probably keep tweaking it like the rest of us. : )
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6 Reactions@pacathy thank you. I watched the utube video that Dr Honda gave about this subject and the visual charts were helpful for the biggest concerns, moderate and low level to find balance as we will never live in a 💯 sterile environment. I'm sure I will get there and find peace.
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1 ReactionQuestion about the Bololo: do you use or keep in place the round white baby bottle holders? Or do you remove them? Do you use the accessories tray in addition or only the large tank?
@pacathy: Did I read you right? Dr. Falkenham said that most cities don't have MAC in the cold water? That is great information! Does this mean that one can rinse fruits and vegetables in cold water and not be coating them with MAC? This could make life a lot easier. I am pretty comfortable with my equipment cleaning regime, but instead of having to boil water, if I could use cold tap water to rinse the equipment after the soak in Dawn and before putting it into the baby bottle sterilizer, that would cut down on significant work . I do not find boiling water to be an easy thing to do.
I live in a condo and have no way of upping the temperature of water into my unit. I bought a LifeStraw Home dispenser right away for drinking, thinking that would give me time to explore a point-of-use filter for the kitchen and for the shower. I'm still in the midst of that search, but I would probably shift my focus to the shower filter first if the cold water tap is ok.
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1 Reaction@bernadene24 I'll double check with him. I think he did, but maybe I didn't hear correctly. I though most issues were in the warm water. I emailed him. I just reviewed a couple papers he did and he didn't say that, so I may have misheard. I listened to a lot of info while I was getting diagnosed a couple years ago and definitely got the impression it was more the warm water in showers and taps that was biggest issue. I've been rinsing food in cold water since then. In the email, I specifically asked about rinsing food and equipment in cold (after equipment soaped in hot).