How do you get some answers?

Your tests will continue to show 'normal' as all of mine did until I found the right person. Figuratively speaking, after going through the entire medical community around Charleston, SC and the Mayo Clinic in Rochester I refused to give up and turned to 'Dr. Google' and 'Dr. YouTube'. Very grateful for all the attempted help along the way, but nobody could help me, even Mayo (unless they've change their approach). I selected Dr. Bruce Paterson and his team, took his targeted blood test and surprise, the test showed many elements (for me 14) out of bounds. Some slightly, and some 100x! I was never so happy to have been called abnormal :). If you know about something you can usually fix it. I am about 4 months into his process and feeling much better, returning to normal for the first time since November 2021.

Hi Diver, I’ll buy you a ginger ale any time - to thank you for sharing you valuable information about drinking only water! So glad you have no more pain! I’ve recently had mild bowel discomfort, thinking coffee and diet coke caused it, so I’m going to give them up now and drink only water, thanking you for having the courage to relegate yourself to drinking only boring boring boring water.

That’s great news, richard’s, and thanks very much for clarifying and elaborating! Very thoughtful of you! 1. Is it Dr. Paterson or Patterson?
The Dr. Paterson (one t) I found on line is not in Houston. 2. If Patterson is as good as you say, why should I not just see him instead of Mayo where you were disappointed? 3. I could not understand your explanation about Mayo’s “approach.” Could you clarify?

i would bet you have long covid based on these symptoms.
i have been where you are, going through every blood test, lots of CT and MRI scans and finding everything inside normal. looking for everything without accepting the obvious.
there is a lot of good information on this site. follow up on the links that relate to you. it will give you ammunition to deal with your health providers. continue to be insistent. thank them for their concern and all they doing for you.
last year my health provider set up a Long Covid group in my area. i was referred to it and it has been very helpful.
this process takes good luck and persistence.

Although this paper is a couple of years old, it does discuss Dr. Patterson (about 1/2 way through). He WAS, at least, in California.
https://pmc.ncbi.nlm.nih.gov/articles/PMC9456722/
I'm really getting the impression that the various approaches and treatments largely amount to throwing a plate of spaghetti at the wall to see what sticks.
It's Chronic Fatigue Syndrome / "Yuppie Flu" circa 1990's--I went through that, too--redux, IMHO.

I guess it's challenging for doctors and researchers since the symptoms vary so wildly from patient to patient, but, geez...

Make sure to wear your BS detector gear.

That’s great news, richard’s, and thanks very much for clarifying and elaborating! Very thoughtful of you! 1. Is it Dr. Paterson or Patterson?
The Dr. Paterson (one t) I found on line is not in Houston. 2. If Patterson is as good as you say, why should I not just see him instead of Mayo where you were disappointed? 3. I could not understand your explanation about Mayo’s “approach.” Could you clarify?

@stuartkjones4 1. It is Patterson, Dr. Bruce Patterson. 2. and 3. You should ask Mayo what their success rate is curing Long COVID, ask them what do they test for, ask them what their treatment regimen is, make them explain why you should give them a try. It may well have changed (it likely has) since September 2023. If you come away from those conversations loaded with good information, then you have a choice. I as have many many others spent countless hours since contracting LC reading, watching, listening on the topic of LC. I figuratively speaking, went through every Doctor in Charleston, SC 2 major medical groups. As I was undergoing a myriad of tests (all returning 'normal' results of course) I asked multiple medical professionals "is there anyone focused on Long COVID?". Their answer was no. I found professionals trying to help, and I am grateful for their help, but nobody really knew what to do.

Following local medical community and Mayo Rochester and years of continuing to have symptoms I turned to what I affectionately call Dr. Google and Dr. YouTube. Warning, there are plenty of snake oil salesman out there. But I did find tons of worthy YouTube videos demonstrating there are caring individuals in the world with working theories on cures. There were 2 that drew my attention, because they talked root cause, and I am a root cause person. One was triple therapy (blood thinning approach) and the other was vascular inflammation (Dr. Bruce Patterson's approach). There are others, but these are the 2 that talked a root cause to LC symptoms. What I like to call 'the murder weapon', there is something that is causing our symptoms at the bottom of it all. Dr. Bruce Patterson's working theory made the most sense to me especially because since the beginning of COVID, scenes knew it was an inflammatory action causing problems. I hope my answer helps and best wishes on your choice and your journey. Don't ever give up . . .

@stuartkjones4 1. Dr. Patterson's working theory is that vascular inflammation is the root cause of LC symptoms. He has developed a blood test measuring markers that verify vascular inflammation and other things. His blood test is the first and only blood test that showed my blood was abnormal. I was out of normal bounds on 14 elements, some 100x. His approach is a series of drugs and life style changes that cure vascular inflammation. 2. All of my symptoms have improved. I had PEM, Exercise Intolerance, Brain Fog, Rocking Sensation, Head Sensation. I couldn't exercise without a crash which then caused me to sleep for hours. A couple of my more troubling symptoms was a lack of motivation and an inability to focus on things for more than about 5 seconds. I don't know if those are additional to my listed symptoms or in addition. 3. As mentioned "His approach is a series of drugs and life style changes. I would add that he states an 80% cure rate and once you are done with his program you stay cured. 4. Dr. Patterson is in Houston, and all of his appointments (and those on his team) are virtual. Full disclosure, I don't work directly with Dr. Patterson. Like any good Manager, he divides his work amongst his team by symptom type. Once your initial blood tests are available, a decision is made whether you see Dr. Patterson or another Doctor on his team. There are tons of YouTube videos with Dr. Patterson. I highly recommend you spend the hours it takes to more fully understand what is possible.

@stuartkjones4 1. It is Patterson, Dr. Bruce Patterson. 2. and 3. You should ask Mayo what their success rate is curing Long COVID, ask them what do they test for, ask them what their treatment regimen is, make them explain why you should give them a try. It may well have changed (it likely has) since September 2023. If you come away from those conversations loaded with good information, then you have a choice. I as have many many others spent countless hours since contracting LC reading, watching, listening on the topic of LC. I figuratively speaking, went through every Doctor in Charleston, SC 2 major medical groups. As I was undergoing a myriad of tests (all returning 'normal' results of course) I asked multiple medical professionals "is there anyone focused on Long COVID?". Their answer was no. I found professionals trying to help, and I am grateful for their help, but nobody really knew what to do.

Following local medical community and Mayo Rochester and years of continuing to have symptoms I turned to what I affectionately call Dr. Google and Dr. YouTube. Warning, there are plenty of snake oil salesman out there. But I did find tons of worthy YouTube videos demonstrating there are caring individuals in the world with working theories on cures. There were 2 that drew my attention, because they talked root cause, and I am a root cause person. One was triple therapy (blood thinning approach) and the other was vascular inflammation (Dr. Bruce Patterson's approach). There are others, but these are the 2 that talked a root cause to LC symptoms. What I like to call 'the murder weapon', there is something that is causing our symptoms at the bottom of it all. Dr. Bruce Patterson's working theory made the most sense to me especially because since the beginning of COVID, scenes knew it was an inflammatory action causing problems. I hope my answer helps and best wishes on your choice and your journey. Don't ever give up . . .

Thanks for your very thorough and thoughtful reply, Richards. Your deserve a medal for your research work, and a CURE.
I will certainly take your advice about questioning Mayo. Thanks for that! You mentioned two types of potential treatments - Dr. P’s and the triple blood thinning approach. 1. What is the latter; 2. Who’s doing it; 3. Did you try it; 4. If not, why not; and, 4. Does it help at all?