How do you do pt with EDS when you have fibromyalgia and me/cfs?

Have you tried using a stimulant? I have many of those conditions as well asMAC and migraines and I couldn’t function without them.

Don’t know if this helps. I’ve had fibro with post-exertion malaise for more than forty years. Im 77, overweight. I also have bone-on-bone OA in one knee. I finally found one no-stress exercise machine that I can use for thirty minutes, stop, and not experience the usual flu-like symptoms. I now exercise daily on it and am amazed that this one machine is more than tolerable. My PT put me on it twice a week for 10 minutes each time. Then I learned my YMCA has 3 of the machines and our senior center has two. It’s the Sci-Fit Recumbent Stepper - google it to see a video. You just sit on it, push your legs back and forth (less strain than a recumbent bike) and you can use the arm-exercise feature simultaneously, though it’s an option. I exercise both arms and legs. You go at your own pace and it counts your steps. I usually exercise at Level 1 and walk about 3400 steps in 30 minutes. It’s actually relaxing to use because while it’s not strenuous at a really relaxed pace, it’s easy to put just a bit more energy into it to boost your heart rate without becoming out of breath. Wheelchair users can use this machine, too, as the adjustable seat slides off the rails so the wheelchair can be wheeled and locked in place. It’s really helped to exercise my thigh muscles - strengthening them helps support and stabilize my knees. I recommend trying this machine. I think there’s something similar called the Nu-Step, made by a different company. I am so delighted to find one exercise I can do and sustain that doesn’t tire me out or leave me feeling sick like the flu.

I think talking to your physical therapist about it might be useful. My physical therapist modifies my exercises frequently depending on how I feel.

Check out the book The Fibro Manual. The doctor that wrote it actually has fibro. She also has a great podcast and YouTube channel. The proper warm up is key! Also, be careful not to overwork any one muscle group. Do a little of this, then a little of that.

The focus with hyper-mobile bodies is to strengthen your stabilizing muscles. This will help a ton! In fact, I have come across a guy on you tube that teaches stuff for the hyper mobile. He is called The Fibro Guy.

I was lucky enough to have a personal trainer that really focused on nervous system regulation first. As well as balance.

Pace yourself. Also, have a high protein breakfast in the morning and stay hydrated. Electrolytes are key!