How do you deal with iron infusions and side effects?

Posted by lildiva4jc @lildiva4jc, Oct 3, 2023

My 1st iron infusion went fine. The 2nd one, they had to rush me down stairs to the ER. I had a reaction. I had to have IV fluids and then everything was OK. But it was scary. Now I'm having low white blood cell counts, and no energy and my primary doctor doesn't want me to take B12. Should I talk to my Hepetalogist?

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That's a scary thing to happen! I'm having my second iron infusion tomorrow. Going to be on pins and needles! My oncologist is putting me on 1000 mcg B12.
I think this stems from my gastric bypass in 2000.
The best of luck to you!🤗

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So what kind of reaction did you have? I have one scheduled for next Tuesday. I've had some anaphlactic reactions to meds recently and seem more sensitive to things overall.

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@sjgray

That's a scary thing to happen! I'm having my second iron infusion tomorrow. Going to be on pins and needles! My oncologist is putting me on 1000 mcg B12.
I think this stems from my gastric bypass in 2000.
The best of luck to you!🤗

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Well, had my second iron infusion today without any problems! If they could just get me with ONE poke instead of 2 or 3 pokes with needle, I would be so very thankful!

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I would have low B-12 and low ferritin/iron if I wasn't treated with supplements.
Two B-12 injections started to get me out of initial trouble (low B-12 with high methylmalonic and high homocysteine blood levels). Immediately after the two injections, I switched to taking B-12 sublingually each night (WonderLabs Advanced B-12 Sublingual).
For my dangerously low ferritin and iron levels, I refused getting iron infusions (because I had read about allergic reactions) so my hemotologist started me on FERREX (by prescription) . The ferrex helped get my levels back to normal within a month but played havoc with my intestines. After several years of searching and experimenting (with no help from my hematologist) while continuing to take Ferrex, I was able to replace it with a simple over-the-counter Iron supplement (NovaFerrum Iron Dietary Supplement 50 mg capsules).
If I didn't take the B-12 and iron supplements, my reserves would drop to below normal because of an absorption problem that may be due to extensive pelvic/abdominal radiation done 33+ years ago --- similar to short bowel syndrome. Taking these two supplements for MANY years has been easy peasy for me.
My blood levels are still checked at least twice a year and this was how my MGUS was detected.
When I had low B-12 and low ferritin/iron, I felt absolutely horrible so I hope this may be helpful.

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