How do you, as a parent, deal with the anger? Son has sarcoma

As a parent of a 29 year old Ewings Sarcoma (bone) patient, I understand your anger and pain. After 14 cycles of chemo at a major cancer center, and some hope in Feb. this year, when he got a good 3 month post chemo checkup, there was hope. Unfortunately, after being back to work for only 2 weeks, my son woke up semi-paralyzed and 3 brain tumors were discovered. Six weeks after that, 2 new brain tumors were discovered. The sarcoma specialist told my daughter-in-law that Ewings Sarcoma rarely spreads to the brain. Unfortunately, in this case, it has. All our lives feel like a living nightmare. I am truly sorry for your loss. It certainly isn't fair.

Absolutely recommend you need to get a counselor who can help you get through these difficult times.

I just wanted to express my sincere feelings of support for anyone who is dealing with Sarcoma !!!

It's the worst cancer out there and is increasingly prevalent amongst young adults. Soft tissue Sarcoma can grow right back after it has been surgically removed, and can baffle Sarcoma Specialists !!!

I know, because my daughter who was 29 went to the ER on December 26th, 2024 and passed away from Sarcoma and its complications on March 6th, 2025 - 71 days and 2 invasive neurological surgeries between her shoulder blades to remove the Sarcoma tumors from the under side of her T2 vertebrae !!!

Sarcoma SUCKS !!!

God be with you all that are dealing with Sarcoma !!!

@elmarie, being a young adult diagnosed with cancer can be lonely. There is a virtual support group for young people with cancer led by social workers at Mayo Clinic, Arizona. Your daughter is welcome to join. She doesn't have to be a Mayo patient.

They meet the first Thursday of every month. The next meeting is on June 5. See details here:
- Young Adult Cancer Support Group Meeting: Y.A. Me Too https://connect.mayoclinic.org/event/aya-adolescents-and-young-adults-support-group-meeting-y-a-me-too-1-5d5a2cb5/

How are you coping @bkayk? And your son? My heart goes out to your family! Not knowing is another kind of death sentence. The fact that my daughter can't be a carefree young woman with unlimited dreams of her future is so unfair! Her father is a Neurosurgeon, and I am a pharmacist, and we can do NOTHING to cure her. My whole outlook on life changed. If people complain about nonsense, I want to hit them! Everything seems insignificant against my daughter's cancer. My priorities have drastically changed as well. Why couldn't it rather have happened to me? I had a normal knee replacement in 2022, and everything went smoothly. My knee is fantastic. Why!!!!

My daughter, now 24, had a complete synovectomy in her left knee in Dec 2023. In March 2024, they had to do a knee replacement as the chondrosarcoma infiltrated her knee. She had 3 seedings around the knee in Sept and Nov 2024. She also had a Staph infection, which took months to beat. In January 2025, a CT scan showed it had metastasized to her lung. It was removed, and she also received a new prosthesis. She is having her next CT scan in early June. Her cancer is very aggressive; we do not get time to adjust! Chondrosarcoma doesn't respond to chemotherapy or radiation, it is "detect and destroy."
She manages her diagnosis as well as you can imagine. She took a sabbatical leave this year and will return to the University next year. As a family, we stand together, but it is VERY difficult. We haven't got an idea what is lying ahead. There is not much literature on the destruction path of Chondrosarcomas especially now that it has metastasized.

I think that is a normal reaction to a scary diagnosis. Last year one on my older grandkids (a 20 something) was diagnosed with a malignant brain tumor. She was so angry and I couldn’t blame her.
It’s just that it makes it hard for us to know what to do or say. 😥

Thanks for the hug. My wife, like you, had been helping to care for her parent (mother) before our son's diagnosis. So it's been very hard on her. I hope he was diagnosed at an earlier stage than our son.

Also, same child at age 14 had non-malignant melanoma on back and upper arm that appeared as a black/purplish blister on arm and a raised mole on back with the dark eye in the center. The DR. scraped the arm in the office and removed it non-surgically, but the one on back was surgically removed. I have read now to that Sarcoma can appear on skin as brown, red or purplish lesions. Idk if they are in this case connected to this diagnosis, but I am very concerned about it possibly appearing on the skin that long ago and now as a tumor in the leg. Something has to be done to cure cancer. Prayers for you and your loved one.

I found out about my adult child who was diagnosed Dec. 2024. Also played college basketball. It's a heart-wrenching gut punch. Not sure what to expect. I don't know what to say or do right now as I've been also caring for a parent right before I found out about the cancer and chemo treatments. Praying for you and your son. Stay informed as much as possible.