How do I go about going to get help for chronic pain?
Hello, I came across this support group very recently, and I had to get the courage to post; perhaps talking with people who've been through this hell like I have might make it easier for me to get the courage to go see a doctor.
My name is Devin, and I'm 22. I feel really embarrassed talking about this with people who have probably experienced worse than I have, but the pain is getting so bad that I can't ignore it anymore. I'm going to get a little personal in terms of context to explain, so please bear with me, it could get a little long.
I've been experiencing really terrible pain in my wrists, shoulders, back, hips, and legs since I was in second grade. So, basically, 7 years old. Maybe further back, but my memory doesn't exactly go that far.
I was never able to carry things very well. I was never able to walk or run very well. Even standing sometimes is painful.
I can stand and walk for maybe 10-15 minutes before I start experiencing stabbing pains in my sides and legs. Not just a normal ache you get when you exercise, this was an unbearable sharp pain that feels like I was speared in several areas. Sometimes the pain gets so bad that it just makes me want to cry. This was a repeated thing when I was young. My parents never picked up on it properly, and my school teachers never picked up on it, and often they would make that pain worse. While my parents made fun of me, my teachers often got angry and annoyed that I was noticably slower than the rest of my classmates.
The only thing I managed to get checked out for a doctor for was for my shoulders, and the doctor actually found that my shoulder blades were grinding against my ribcage. I ended up getting this checked out when I was 17, so even then it was over a decade later when the problem first occured. My parents still blame me for my reoccuring pain. My shoulder pain gets so bad that my arms actually shake uncontrollably (I think they actually described them as tremors). I can't carry anything remotely heavy because not only does it trigger the pain, but it makes my arms shake. I do not have very good muscles, and I'm unfortunately quite weak in the arms. Along with my shoulders, my wrists hurt and feel like they grind too. I can crack both my wrists *repeatedly*, and it's not like a normal "pop". The pain has been basically progressing into my fingers on top of it.
I haven't been so lucky with getting understanding from my parents when it comes to my physical pains. So, after a few times of trying to make it known that I was hurting when I was younger, my parents would blow me off by saying "You're too young to be having that" or commenting on the fact that I was out of shape. Eventually, I started hiding my pain, and just silently trying to get out of situations where I know I was going to experience it. Going to PE in school was hell, because the teachers didn't understand. Often, I'd participate for a short while, and then tell the teacher I needed to use the restroom, and I'd hide there for the rest of the class.
Whenever I went to the store with my parents, often they'd walk around for hours, and I'd be forced to stand with them, and I could only pull the "bathroom" card so many times before they started to look at me funny. And even when I expressed my pain, they'd repeat the same lines I quoted earlier, and they'd laugh at me. I was in so much unbearable pain, and I couldn't even cry in front of them without being called other names.
It got to a point where I just told myself to ignore it. Told myself if I just tried hard enough, it would just go away. I convinced myself for a very long time that I was the problem, and that I was just lazy and weak. It made me deeply depressed for a very long time, and I struggled to leave my room knowing that I'd end up in unbearable pain again if I was active for too long; it was a timer that basically went down everytime I decided to stand up.
Now, at 22, I can't ignore this pain anymore. I tried to work a job at a fast food place, and I felt embarrassed every single time I had to stop and sit down, even after being told I could for a few minutes. I was hospitalized recently for mental health reasons, and exercising felt like I was being stabbed with pitchforks, walking made me feel like I was going to snap in half (not to mention other issues occuring bathroom wise [incontinence] that I *think* my pain is partially causing! I tried to tell a nurse when I first went in, but I eventually backed out and lied because I was embarrassed and put on the spot in front of others. They ended up confused as to why it was in my file). I can't even sit or lay down comfortably anymore and its like all my bones that connect into joints grind together. I feel like I'm in a neverending hell, and it's so hard not to blame myself in some way because of how I grew up, and knowing how many people looked down on me for not being able to keep up with others, and viewing me as a lazy fat pest; a failure.
I'm scared of presenting my issues to a doctor. What if they don't take me seriously? And if they do, what if they don't find anything? What if it's all in my head? And if they do find something, what will everyone else in my family think? I feel like I'm in a lose situation no matter where I go. Them finding something would be a technical win, but my parents (whom I still live with) might view me even lower than they already do when it comes to my physical capabilities. I've tried to ease my mom into the conversation that I've been struggling for a long time physically, and she points at my weight and how weak I am and how I don't even try. I can't even bring myself to mention that it all started in early childhood, because I worry she'll laugh in my face.
I feel insane, and I feel stuck. I know the obvious option is to just call the doctor, but I'm scared. I kept so much of my pain to myself for 15 years because I had learned that nobody was going to stop for me and that I was the problem. I'm nervous for every single possible outcome that might occur.
I apologize for the long post and the personalness. This is the first time I've opened up about this to people in this way.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
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I am so glad you found a place to express your long term pain. Since you are 22, you can schedule an appointment with a doctor yourself. Is there a large teaching hospital in your area? That would be a good place to start because they are more team oriented and more familiar with complicated cases. Whatever you do, don’t give up or blame yourself. It is your time to find answers for this problem. My heart goes out to you and I am so sorry the adults in your life have not taken notice or care of you in this situation. Wishing you courage and answers.
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11 Reactions@parrot53 Oh yeah, I know I can schedule an appointment myself, it's moreso getting the courage to do so, haha. I do not think I have a large teaching hospital in my area, I live in a small town with admittedly not very good medical care, and in order to get to a *good* hospital, I'd have to at least go 3 hours out, ha. Thank you though, I really appreciate it.
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2 Reactions@berrysirens you can do this! Three hours is a small voyage compared to the pain and humiliation you have suffered for years. Again, you can do this. Don’t give up on yourself. You are just as important as the rest of us.
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10 ReactionsYou certainly must go to the doctor it’s imperative. Since you’ve never had any exam, you could just say you’re looking for a physical exam and describe your pain. There’s nothing to be embarrassed about many people have pain. If they don’t find anything of significance, there’s a lot of other avenues to pursue so I would encourage You strongly in the end, you’ll have more information and hopefully a path to follow. You shouldn’t have to live in this pain all alone.
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8 ReactionsPlease go and see your primary doctor.....he may very well refer you to a Rheumatologist or a pain clinic that
can help you. There is hope. Don't give up. Blessings & Prayers......*I apologize on behalf of the people who
disregarded your pain or made fun of you. How that must have hurt you.
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7 ReactionsDude, please go get some help. Explain your pain to an impartial doctor, let them take it from there. Also, maybe look into some Physical Therapy, and if you can find/get a good counselor/therapist, that can help immensely, too!
Peace, good luck my friend!
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6 Reactions@barry
Pain is real. Pain is insufferable. Living in silence is something I intimately understand. I have been dealing with this for 7 years now. I once had a pain specialist tell me, "I will never understand the pain that you suffer, and no one else will because they don't feel it". For me, it was a very profound statement. For a silent ailment, people do not have empathy, care or concern because it simply is not real to them. The longer you wait, the worse mental health can become because one of the side effects of pain can be deep depression and withdrawal from life. Do not wait another day to see a caring professional. I too suffer riding in a car. It is one of the most difficult parts of my day when I must go out. It does not matter if you must drive, or drive to get on an airplane. You owe it to yourself to seek help and directly deal with your pain. In the end, it does not matter what anyone else thinks. My own family too for many years did not understand. But you are more important to yourself. Your health is more important to yourself. There is no shame, no embarrassment, no negativity addressing this. You don't need to tell others you are seeking help until you are ready to do so. If you cannot find a source, as others said, find an advanced hospital, if you cannot, reach out to Mayo, save your money to make the trip to Minnesota, Florida or Arizona, it will be the best money that you will spend in your life time. I relocated from another country to work specifically with Mayo, and it has been life changing. While I will live with pain life long, I now have the understanding and the name of my enemy and have learned many many tools to deal with it every moment of every day. Do not hesitate another day. Make the call today.
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16 ReactionsPlease call a PAIN clinic for an appt. There are so many treatments that can help! Will
treatment alleviate all your pain; probably not. But treatment can help a lot. Good luck..
🙏
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5 ReactionsHang in there, Good things are coming your Way… ✨🙏✨
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4 ReactionsSince 1987 I’ve been seeking alternative ways to reduce chronic pain. Sometimes successful to use nine or a lot less. Later years now, more chronic pain, post sinus cancer surgeries, radiation, TBI’s and present rules of medication distribution have me on Rx meds on schedule rather than as needed. May you be 100% validated looking for relief. Could be an ice pack to surgeries to a million therapeutic ideas or interventions but if you have to use Rx pain meds, don’t settle for less than what you need. You need to feel normal, not high or emotional so be sure to find and stick with what works for you, even if the dose needs increasing over time. Everyone with chronic pain hates their meds and would take less if possible. When taking Rx meds for pain, our chances are 0-.05% of becoming addicted rather than people taking those meds for recreational use. It not a game. Find the right Dr with the empathy to help and trust you to be responsible. We don’t want to be a burden to society but an asset. DON’T GIVE UP OR GIVE IN TO DOUBTERS.
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5 Reactions