How can I keep myself upright while sleeping?

Posted by cjj2 @cjj2, Feb 1 9:38am

Seems like this would be a simple thing to do, but even with a wedge pillow I seem to slide down. Reflux wakes me up. I stop eating 4 hours before bedtime, but continue to drink water. I had an Ivor Lewis esophagectomy 4 years ago. For the past few months, I have had an irritated feeling in my throat & a dry cough. More recently, I have had occasional problems swallowing liquids - seems to go down the wrong way & sets off violent coughing. I’m worried about aspirating, but that’s another issue.
Any ideas for better upright sleeping?

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Profile picture for cjj2 @cjj2

@earle
Hi, Earle!
Thanks for your message. The info about the bed is very good to know as another possible solution. I’m glad you mentioned pressure sores because it’s always in the back of my mind with this issue of having to sleep more upright. I may be thinking too far ahead on this because I can still shift positions easily when at rest, and I am relatively active during the day.
Thanks again!
Connie J.

Jump to this post

@cjj2 I'm fairly active during the day now, but at the time I developed them, we got stuck on the airplane trip from hell and I was stuck in a wheelchair with no padding. A trip which was supposed to be a two-hopper, totaling 3 hours turned into a 9 hour ordeal. They can develop very quickly. One person posted two hours...

REPLY

I had my esophagus removed 5 years ago and I aspirated almost nightly until now. I haven't in months. Here's what I do and it works. Eat small snacks during the day. As soon as I finish eating dinner I sit down and have 1.5 Gaviscon tablets (don't have mint flavour because it irritates the stomach-1.5 works for me but you can change the amount).
After dinner I sit up and wait till the stomach is empty of food. It takes at least 2 hours for food to empty the stomach. Then I go to bed and have one more Gavison. I use a wedge pillow. I have NOTHING to eat till breakfast. No bagels, chips, chocolate.....nothing. If you eat anything you will probably aspirate. I think this will work for you. Oh ya....I changed my schedule to early dinners as I was tired earlier in the day. PS. Next week my surgeon hopefully will tell me I'm cured. Keeping my fingers crossed. 🤞
Good luck.

REPLY

All I can think of is a recliner...you could just rent one for a week..

REPLY
Profile picture for jorenee @jorenee

All I can think of is a recliner...you could just rent one for a week..

Jump to this post

@jorenee
Hello!
My husband bought one from Costco a couple weeks ago. Now, if I could just get him out of it…😄
Connie J.

REPLY
Profile picture for doglover888 @doglover888

I had my esophagus removed 5 years ago and I aspirated almost nightly until now. I haven't in months. Here's what I do and it works. Eat small snacks during the day. As soon as I finish eating dinner I sit down and have 1.5 Gaviscon tablets (don't have mint flavour because it irritates the stomach-1.5 works for me but you can change the amount).
After dinner I sit up and wait till the stomach is empty of food. It takes at least 2 hours for food to empty the stomach. Then I go to bed and have one more Gavison. I use a wedge pillow. I have NOTHING to eat till breakfast. No bagels, chips, chocolate.....nothing. If you eat anything you will probably aspirate. I think this will work for you. Oh ya....I changed my schedule to early dinners as I was tired earlier in the day. PS. Next week my surgeon hopefully will tell me I'm cured. Keeping my fingers crossed. 🤞
Good luck.

Jump to this post

@doglover888
Hello!
Thanks for your message. I am so glad you found something that works!
My doctor scheduled me for an upper endoscopy to check things out. I’ll ask if I can add Gaviscon to my routine.
Thanks very much,
Connie J.

REPLY
Profile picture for cjj2 @cjj2

Hi!
Thanks very much for your message. Can you share the brand name with me? I got my wedge pillow from Costco.
Thanks,
Connie J.

Jump to this post

I got my wedge at Amazon. It's a dark blue and cost around $40. Sorry I can't give you more info. I don't have the paperwork. Good luck!

REPLY
Profile picture for doglover888 @doglover888

I got my wedge at Amazon. It's a dark blue and cost around $40. Sorry I can't give you more info. I don't have the paperwork. Good luck!

Jump to this post

@doglover888
That works for me.😊

REPLY

Try raising entire bed from pillow side a few inches.
I raised mine about five inches and that seems to help with bilis reflux. I sleep well.

REPLY
Profile picture for manuelo @manuelo

Try raising entire bed from pillow side a few inches.
I raised mine about five inches and that seems to help with bilis reflux. I sleep well.

Jump to this post

@manuelo
Hello!
Thanks very much for your help.
Connie J.

REPLY
Please sign in or register to post a reply.