How can I find a physician to help with Tarlov cyst pain?

Posted by jdp3 @jdp3, Aug 17, 2025

I have large Tarlov cyst and other perineural cysts and a lot of lower back and sacral area pain and finally some providers have recognized the cysts are likely more than just “incidental”. Where do I go from here? They were a chiropractor and a physiatrist. I’m not hopeful that I’ll find help where I live because one of them told me spine surgeons don’t usually deal with cysts. I’m so tired of trying things that don’t address the root cause of my pain, and it only gets worse. I’d like to learn more and hopefully find a physician who is capable of helping me

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Profile picture for rrenaut @rrenaut

I was told 18 months ago that these cysts are not an issue. New MRI shows 2.8cm on s2

My symptoms started with not being able to sit due to left side pain
Now standing hurts too

Bladder issues and bowel

Any ideas - New Mexico

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@rrthey are an issue and get worse I'm having a second opinion appt tomorrow but I def am having surgery because my pain is terrible now

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Profile picture for kaybro123 @kaybro123

@rrthey are an issue and get worse I'm having a second opinion appt tomorrow but I def am having surgery because my pain is terrible now

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@kaybro123 two or three NS operate on tarlov cysts. If allowed I will post?
Dr. in Dallas, TX.
Dr. In Sacramento CA.
A doctor in UPenn? I believe.
I have a very symptomatic TC , it’s been relatively quiet and stable for a while but after a long day at t(e soccer field watching my grandchildren it’s become very painful and I’m on a walker.
I’m trying to rule out all other causes now. Best of luck with your recovery!

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Profile picture for kaybro123 @kaybro123

@rrthey are an issue and get worse I'm having a second opinion appt tomorrow but I def am having surgery because my pain is terrible now

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@kaybro123 Please let us know how you succeed and what State, or Country! Good luck

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I have small Tarlov in my lower back, snd I suppose it causes nerve pains in the nights. I’ve got some help from pain physiotherapist, who releases the excitement in the muscles in the lower back.

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