Hodgkin Lymphoma was stable, now new activity

Posted by hnipper1 @hnipper1, Jul 23, 2022

My Hodgkin Lymphoma, Stage II, above the diaphragm, with no mets, was diagnosed in January 2020. It has been treated with AVD, Brentuximab-vidotin, and now Nivolumab for 18 months. A PET scan on June 3 showed new activity in a subcarinal lymph node near the esophagus. This is the first sign of spread to a new node. Has anyone else had experience with this type of spread? Until now, the tumor has been 'stable'.

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hnipper1 | @hnipper1 | Nov 14, 2023

In reply to @hnipper1 "CT scan is tomorrow, Thursday, 11/9. Fingers crossed. Probably will see the interpretation by Monday." + (show)

Glad to say the interpretation was consistent with a relatively stable tumor. No new growth and no mets. The lung problem seems to be infectious (as I guessed) so we will see what develops with that area. My O2 sats are still very high (yesterday's was 100%) so pulmonary function is OK. My treatment for lymphoma in lieu of bendamustine is still a question as my platelet count has dipped to 57. I still got nivolumab last week, by the way, and that is good as it held the lymphoma steady for the most part. Next steps are to send the scans to the Mayo heme-onc consultant, so that will take a few days. Updates to follow.

hnipper1 | @hnipper1 | Nov 18, 2023

In reply to @hnipper1 "Glad to say the interpretation was consistent with a relatively stable tumor. No new growth and..." + (show)

Had more nivolumab yesterday and my labs showed my platelets are bouncing back into the 70’s. Updates to follow as warranted. Happy Thanksgiving to all!