hiv with below normal wbc and below normal neutrophils absolute.

Posted by chris8515 @chris8515, Dec 14, 2018

is this indicative of my hiv has moved to aids ? or does this just mean you have a bacterial infection and your cd4 count could still be ok. i get labs done every few months. i have been positive for 12 years .the last time i had labs done was october and my cd4 counter was 798 with in the last few moths i have become very tired weak very bad headaches . i have gone to the emergency room atleast 20 times in 2 months for the headaches weakness and being extremely tired . they cant find a cause. i know my body and i know something is up. i went to urgent care tonight. they took blood and told me that my wbc count was slighty below low normal and my neutrophils absolute was below low normal as well. thanks for anyones advice

Hi, @chris8515, and welcome to Mayo Clinic Connect. Sorry to hear you've become very tired and weak, are experiencing bad headaches, and no cause has been found.

I'd like to introduce you to some other members who may have some insights on your situation with your white blood cell count being slightly below low normal and absolute neutrophil count below low normal, and your concerns about whether your HIV may have progressed to AIDS. Please meet @airsleeper @johnbishop @hopeful33250 @oldkarl @jenniferhunter @1nan.

While awaiting other members joining in, I'd also like to share some Mayo Clinic information on HIV/AIDS https://www.mayoclinic.org/diseases-conditions/hiv-aids/symptoms-causes/syc-20373524

Was an infectious disease specialist involved in your HIV diagnosis, @chris8515? If so, what has that doctor said about your current situation?

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my last cd4 check was when i was admitted into mayo clinic back on oct 14th , there infectious team ran all my hiv numbers and they were fine, as i said i am not on any medication. since oct 14th i till now i have lost 20 pounds , having alot of trouble breathing . no interest in food or drink yet i for myself to eat and drink. i have presented to mayo clinic er no less than 20 times in the last few months as my symptoms have gotten worse and worse . they have run cbc panels in the er and said your numbers look good. with in the last week my breathing has become different , im having trouble swalloing, im tired but dont sleep im starting to wonder if i am at the point that i want to discontinue food and drink and it seems to not be doing much but just bying me time even tho everytime i go to mayo they say its ok. my hiv dr did order a bunch of blood work last week but they couldnt draw it there so i had to go to quest which means i wont even get any results till later this week. i did finally get tired of mayo messing around with my emotions and health so i went to an offsite urgent care place that runs simple blood tests in house and thats where i got the results my wbc was below low normal and my absolute neutrophils were below low normal. the dr say there is some type of bacterial infection going on based on your blood work. but because he isnt an hiv dr and cant run all those tests he put me on a broad spectrum antibiotic . i have been on them since friday and i dont feel any better . once i get my results for quest later this week if i can hold on that long then maybe the blood work from quest will reveal something . i even asked the er dr at mayo this week is it possible that my immune system has become so weak from fighting the hiv as well as battling the meningitis and now my hiv has gotten worse or turned into aids she said no i dont think its that your labs look fine and she sent me home, so again thats when i went to the urgent care off site because i know my body better than anyone . i have to assume if i was that ill or dying even tho mayo er didnt bother to get the hiv dr involved that if i was that bad off my blood work numbers just from a cbc would reflect something terrible if it were like end stage aids or something correct ?

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Hi @chris8515 — I would like to add my welcome to Connect along with @lisalucier and other members. I don't really have an answer for you but one of the tools I use to find research and medical information is Google Scholar (https://scholar.google.com/). I did a search on the phrase "aids diagnosis and treatment" and it came up with a lot of information that may be helpful. Here is a link to the search results:
https://scholar.google.com/scholar?hl=en&as_sdt=1%2C24&as_ylo=2018&as_vis=1&q=aids+diagnosis+and+treatment&oq=AIDS+diagn

Hope you find an answer soon.

John

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@chris8515

my last cd4 check was when i was admitted into mayo clinic back on oct 14th , there infectious team ran all my hiv numbers and they were fine, as i said i am not on any medication. since oct 14th i till now i have lost 20 pounds , having alot of trouble breathing . no interest in food or drink yet i for myself to eat and drink. i have presented to mayo clinic er no less than 20 times in the last few months as my symptoms have gotten worse and worse . they have run cbc panels in the er and said your numbers look good. with in the last week my breathing has become different , im having trouble swalloing, im tired but dont sleep im starting to wonder if i am at the point that i want to discontinue food and drink and it seems to not be doing much but just bying me time even tho everytime i go to mayo they say its ok. my hiv dr did order a bunch of blood work last week but they couldnt draw it there so i had to go to quest which means i wont even get any results till later this week. i did finally get tired of mayo messing around with my emotions and health so i went to an offsite urgent care place that runs simple blood tests in house and thats where i got the results my wbc was below low normal and my absolute neutrophils were below low normal. the dr say there is some type of bacterial infection going on based on your blood work. but because he isnt an hiv dr and cant run all those tests he put me on a broad spectrum antibiotic . i have been on them since friday and i dont feel any better . once i get my results for quest later this week if i can hold on that long then maybe the blood work from quest will reveal something . i even asked the er dr at mayo this week is it possible that my immune system has become so weak from fighting the hiv as well as battling the meningitis and now my hiv has gotten worse or turned into aids she said no i dont think its that your labs look fine and she sent me home, so again thats when i went to the urgent care off site because i know my body better than anyone . i have to assume if i was that ill or dying even tho mayo er didnt bother to get the hiv dr involved that if i was that bad off my blood work numbers just from a cbc would reflect something terrible if it were like end stage aids or something correct ?

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Hello, @chris8515 – if you have concerns regarding your care at Mayo Clinic, please contact the Mayo Clinic Office of Patient Experience tomorrow:
Office of Patient Experience
Mayo Building, lobby level
8 a.m. to 5 p.m., Monday–Friday
507-284-4988

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thnaks everyone

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