Anyone hire help to stay with you during bone marrow transplant?

@nancycecilia the Mayo Clinic requires you to stay there for 100 days and you are required to have someone with you 24/7 or you can’t have a bone marrow transplant at the Mayo Clinic . I want to have it there .

What exactly do you want the person to do for you? A sitter is just there to make sure you’ve got someone available but maybe limited assistance.

Is this for home or while you’re in the hospital?

Not sure they allow someone in the room while you’re vulnerable to infection. Sorry not more helpful but you might ask your medical team about it.

@leslie2121
Remember one thing - you are a patient going through a difficult time. A sitter can sit next to you, give you water if allowed. But you should find out whether this is permissible as your immunity is probably low. Take one day at a time and don’t try to plan everything to the last detail. Have an honest conversation with doctor and the social workers who advise patients. Express your concerns and desire. Then you can make your decision.
I was supposed to leave the hospital a certain day. Unfortunately I developed a horrible reaction to an antibiotic that was given to me. I waited that night, frustrated, in pain and tired. I called my children and my doctor. I basically told everyone that I was leaving under my responsibility. Thankfully they believed me and I was discharged with a nurse who would come to my home twice a day to administer antibiotics for about three weeks. The antibiotic was infused through triple line. In retrospect I got what I wanted but I would have been better off staying until all infusions were finished. So please take it one day at a time. And just ask questions but don’t overthink everything.

@leslie2121
Remember one thing - you are a patient going through a difficult time. A sitter can sit next to you, give you water if allowed. But you should find out whether this is permissible as your immunity is probably low. Take one day at a time and don’t try to plan everything to the last detail. Have an honest conversation with doctor and the social workers who advise patients. Express your concerns and desire. Then you can make your decision.
I was supposed to leave the hospital a certain day. Unfortunately I developed a horrible reaction to an antibiotic that was given to me. I waited that night, frustrated, in pain and tired. I called my children and my doctor. I basically told everyone that I was leaving under my responsibility. Thankfully they believed me and I was discharged with a nurse who would come to my home twice a day to administer antibiotics for about three weeks. The antibiotic was infused through triple line. In retrospect I got what I wanted but I would have been better off staying until all infusions were finished. So please take it one day at a time. And just ask questions but don’t overthink everything.

I am so happy for you that they can treat you and your son might be a donor! That is actually beautiful he is your son!
My story would be funny if the diagnosis had not been so devastating then. I had a very bad ear pain for the first time in my life and my doctor refused to give me a third round of antibiotic. He said I had to see an ENT. I wont bore you again mentioning closures, but God for some reason lead me to contact my grandchildren’s pediatrician. We got an appointment, the performed an extraction of fluid from back of my head and it came back as lymphoma and I was sent to hospital to oncologist. After many tests both invasive and regular the diagnosis was mantel cell lymphoma. I had a node surgically removed and the biopsy confirmed diagnosis. Started chemo in patient every other week, since they were able to use my cells I spent a whole day in bed on a machine like for dialysis, took blood from one side, removed cells, and returned blood in other side. I believe they collect about 15 million cells which is immediately worked on and frozen until the day of transplant. I felt no pain during transplant. Only issue my pressure dropped but it was immediately brought up. The day after I stayed in bed and then I began walking. I tried to entertain myself by talking to anyone I encountered in the hall. Sometimes I think I’m crazy, but it worked, if I encountered I would say something like in my next life I’m going to marry you. And everyone laughed. Since I walked so much I would tell the supervisor for my floor that I took attendance. I think that having faith, trying to find something to smile about (difficult) and just being positive and taking one day at a time helps so much. Today a lot of my treatment is a fog and I don’t remember specifics. That is our body’s way of allowing us to move forward. I hope something I wrote can help you. If you like to write again, don’t be bashful! I wish you the very best. Don’t lose your faith or desire to go forward one day at a time.