HIPEC

Posted by linda4765 @linda4765, Dec 11, 2018

Has anyone had HIPEC surgery?

@linda4765 Let me welcome you to connect. I have not had this type treatment, however I found this study released by Mayo Clinic that maybe helpful for you. It has numbers you can call with question you may have. I believe this what you are talking about?

Hope this helps? Wishing you the Best.
Jackie

https://www.mayoclinic.org/es-es/medical-professionals/cancer/news/cytoreductive-surgery-and-hipec-offers-effective-treatment-for-selected-patients-with-peritoneal-carcinomatosis/mac-20429726

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Hello @linda4765 ,
I would like to add my welcome also to you as you have recently joined Connect.
If you are comfortable sharing more, is this type of procedure something that has been recommended for you?

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@hopeful33250

Hello @linda4765 ,
I would like to add my welcome also to you as you have recently joined Connect.
If you are comfortable sharing more, is this type of procedure something that has been recommended for you?

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It’s being considered. They have to do some scans and tests to see how many nodes/lesions I have and whether I would qualify. It’s pretty serious surgery I think.

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I’d also like to hear from any patients who have actually had hipec. I will be in undergoing it in January 2019 to treat appendix cancer that has metastasized, and Dr Grotz in Rochester stated he has done approximately 1 per week since Sept of 2017. I’m surprised that no one on connect has an experienced response as, yes, it sounds like an intense and rather rare surgery. Would love to read some testimonies. Thanks

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Hello @juliedl

I can understand your wanting to hear from others who have had this surgery. It is great to hear what others have to say about their experiences. Perhaps in the near future someone will post and share what they know.

I am impressed with your doctor's experience with this rare surgery. While I have not experienced this type of cancer, nor this type of surgery, I have had a rare form of cancer, neuroendocrine tumors, and I have had three surgeries for these lesions since 2003. I know when you are dealing with something rare the anxiety increases because there is no one nearby who has ever even heard of it before.

I do think that your doctor's experience should provide you with some sense of confidence. My first two surgeries were done by a good oncology surgeon, however, he had never done this type of surgery before and the last surgery, just two years ago, was done by a surgeon who had a lot of training in the technique but said that he had not done a lot of these either.

If you are comfortable doing so, could you share a bit more about previous surgeries, treatments, etc. I would be interested in getting to know you better. Those of us with rare disorders often feel better when we have other people in our corner.

Liked by Lisa Lucier

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@juliedl

I’d also like to hear from any patients who have actually had hipec. I will be in undergoing it in January 2019 to treat appendix cancer that has metastasized, and Dr Grotz in Rochester stated he has done approximately 1 per week since Sept of 2017. I’m surprised that no one on connect has an experienced response as, yes, it sounds like an intense and rather rare surgery. Would love to read some testimonies. Thanks

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Hi! I would also like to hear from anyone who has had this surgery! My dr is suggesting it for a couple of enlarged lymph in the peritoneal area. I underwent right colectomy and a liver resection in July 2016, followed by chemo. One year later I had radiation to treat one spot on my lung. My liver and lungs have been clean-now this lymph has enlarged! I am healthy and strong – just not sure if I will be that way after HIPEC? And I can’t find anyone who’s actually had the surgery?

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Hello… In August 2018 I was diagnosed with appendix low grade mucinous neoplasm; had appendix removed. In Nov 2018 another tumor was found in my colon; I had an ileocecal resection. Please go to PMP appendix cancer support group on FaceBook or google ACPMP… a lot of the members have gonethrough HIPEC…

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Welcome to Mayo Clinic Connect, @jellen619,

Are you comfortable sharing a few more details about yourself? What has been your recovery experience after the resection?

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@kanaazpereira

Welcome to Mayo Clinic Connect, @jellen619,

Are you comfortable sharing a few more details about yourself? What has been your recovery experience after the resection?

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My recovery has been good. I'm learning what foods are best not to eat because of the reaction I get from them. My bowel habits have really changed. My new bathroom habit is normal bowel movements about 5 times a day verses going 1 or 2 times a week. There are days when certain foods trigger a bathroom episode; I find myself rushing to the bathroom and staying there for sometime; my back side ends up feeling like its on fire and raw. They say this is caused by bile salts. I have been blessed with the outcome of this disease and right now have to do every 6 months CEA test and CT scans for the first 3 years and than yearly as long as there is No Evidence of Disease.

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Anyone had HIPEC surgery?

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Hi @zelengirl and welcome to Connect. You may have noticed I moved your post to this existing discussion so that you can read about others experience with HIPEC surgery. Simply click VIEW AND REPLY in your email notification in order to find your post.

I wanted to tag fellow Connect members @jellen619, @tressa and @juliedl in hopes they will return to Connect to share their experiences.

Back to you @zelengirl, will you be undergoing this surgery soon? Or are you considering it?

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I haven't had the surgery but my sister-in-law had it in 2018. They did surgery for cancerous abscess in her abdomen and then HIPEC. She was in her early 70's when she had the surgery and HIPEC, and had chemo in the fall of 2019 as prevention for recurrance and is doing very well, in fact, she and my brother are heading to Israel 1/19/2020. Of course she was in great shape when she had this all done, which is an important factor.

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@annadibk

I haven't had the surgery but my sister-in-law had it in 2018. They did surgery for cancerous abscess in her abdomen and then HIPEC. She was in her early 70's when she had the surgery and HIPEC, and had chemo in the fall of 2019 as prevention for recurrance and is doing very well, in fact, she and my brother are heading to Israel 1/19/2020. Of course she was in great shape when she had this all done, which is an important factor.

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@virgo 1952. Always nice to hear a recovery story. I have a question for anyone out there who might have had the same situation or knowledge that I don’t have. I’ve shared with others that after my colon resection I finally was tested for c-diff and it was positive. I probably had it when I was discharged home after the surgery. So, I had a round of antibiotics for ten day’s and the dr prescribed another round for ten days. So, I’m three days into my second round. My question is: when I Asked about the follow up, the nurse told me she the dr read going to make a referral to a gastro specialist if I was still having loose bowels and frequency issues. Anyone else have this happen? I’m curious in the fact that a colon resection would lead to a digestive condition (colitis, IBS, crohns???) I’m thinking my bowel is so irritated with 2 1/2 months poor eating and crazy eating schedule (not eating so I could get out to my appts) fasting for colonoscopy, exploratory, surgery, etc.I wondering if it could be managed by diet and would resolve itself in time. Anyone have any words of wisdom for me?

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