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HIPEC and gastric cancer

Posted by jake264 @jake264, Jul 30, 2023

Can anyone give me their experiences with HIPEC? Thank You

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jake264 | @jake264 | Aug 23, 2023
In reply to @jake264 "I have stage 4 Mets to colon which seems to be resolved for now, have atypical..." + (show)
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I have stage 4 Mets to colon which seems to be resolved for now, have atypical cells in peritoneum, and recently had Mets to ovaries, which they removed. It was strange bc after I yelled to Mayo initially, they said I had to send my records and they would decide if they wanted to see me. I didn’t submit my records bc I felt it was such a long shot. They called me like 2 weeks later and offered my appointments and said they had all my records, which I never released. (HIPPA). So not sure what happened.

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What is MCKSS?

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Lissa | @sonic997 | Aug 23, 2023
In reply to @jake264 "I have stage 4 Mets to colon which seems to be resolved for now, have atypical..." + (show)
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I have stage 4 Mets to colon which seems to be resolved for now, have atypical cells in peritoneum, and recently had Mets to ovaries, which they removed. It was strange bc after I yelled to Mayo initially, they said I had to send my records and they would decide if they wanted to see me. I didn’t submit my records bc I felt it was such a long shot. They called me like 2 weeks later and offered my appointments and said they had all my records, which I never released. (HIPPA). So not sure what happened.

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That’s interesting to m ow. With so many different procedures available, how do you know who to go to?

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davidday1965 | @davidday1965 | Aug 23, 2023
In reply to @sonic997 "I have been trying to get appt with Dr Grotz and it’s been quite frustrating. I..." + (show)
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I have been trying to get appt with Dr Grotz and it’s been quite frustrating. I have stage 4 adenocarcinoma - diffused gastric cancer. I will keep on trying, because he seems to be terrific! Thanks for sharing Dave

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Best of luck keep trying one of my oncologist got me in to have him do my surgery at the time I have not heard of him they call Dr.Grotz ( The Man ) and I will have to agree I am living proof 🙏🏻🙏🏻😁

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Lissa | @sonic997 | Aug 24, 2023
In reply to @jake264 "Hi Lisa, I’m seeing Dr Grotz next Tuesday. Not sure I even want to go thru..." + (show)
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Hi Lisa, I’m seeing Dr Grotz next Tuesday. Not sure I even want to go thru HIPEC. Are you doing chemo at this time. I’m on FLOT with OPDIVO. It’s a huge surgery. Been watching lots of u tube videos and scaring the crap out of myself.

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I’m on FOLFOX. I haven’t watched any of the videos but it all sounds scary. I understand

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Lissa | @sonic997 | Aug 24, 2023
In reply to @davidday1965 "Best of luck keep trying one of my oncologist got me in to have him do..." + (show)
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Best of luck keep trying one of my oncologist got me in to have him do my surgery at the time I have not heard of him they call Dr.Grotz ( The Man ) and I will have to agree I am living proof 🙏🏻🙏🏻😁

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Thank you. Did you have HIPEC with him?

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Lissa | @sonic997 | Aug 24, 2023
In reply to @jake264 "What is MCKSS?" + (show)
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What is MCKSS?

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MSKCC is memorial Sloan Kettering cancer center. They are very rigid (imo) with “standard of care”. Tell me about you and how it went there please

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jake264 | @jake264 | Aug 24, 2023

I e never been to Sloan. I will let you know next week how it went at Mayo

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davidday1965 | @davidday1965 | Aug 24, 2023
In reply to @sonic997 "Thank you. Did you have HIPEC with him?" + (show)
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Thank you. Did you have HIPEC with him?

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No Hipec he did my total gastrectomy in August of 2022

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Lissa | @sonic997 | Aug 24, 2023
In reply to @davidday1965 "No Hipec he did my total gastrectomy in August of 2022" + (show)
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No Hipec he did my total gastrectomy in August of 2022

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You are doing well? Did you have any Mets
Pls?

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davidday1965 | @davidday1965 | Aug 25, 2023
In reply to @sonic997 "You are doing well? Did you have any Mets Pls?" + (show)
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You are doing well? Did you have any Mets
Pls?

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No no Mets when he did my total gastrectomy he had 27 of my lymph node’s checked for cancer of any kind and All came back negative I am very thankful I still get my CT and bloodwork every 3 months. Be well Dave

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