I would love to hear commentary from people who have a hiatal hernia and what you do for it or have done for it. I was given a cardiac scan of my heart area for something and the scan 'accidentally' picked up that I have a hiatal hernia (totally unrelated to cardiac issues). I want to know what has worked for others. Yes, I have a doctor but feedback from actual patients is beneficial as well. I am not looking for medical advice for my own situation, just wondering about what has worked or not worked for you. Thanks.
I’m 27 and have hEDS, POTS, GERD etc among other things. I know hernias are common with EDS and that hiatal hernias can often cause GERD so I’ve been aware I could have one for a long while. GPs here don’t think they’re serious most of the time and have focused on treating the symptoms with omeprazole, antacids etc but it’s reached a point where that isn’t working anymore and my symptoms are worsening. I’m not sure if it’s reached a point where a doctor will take it seriously yet, or if there’s even anything that can be done about it - any advice would be appreciated!
I was first diagnosed with GERD aged 20, experiencing chest pain, reflux and stomach churning from excessive acid, which mostly stayed the same for a few years. My throat is also super sensitive and the slightest irritation can make it bleed.
But in the last two years , I’ve developed a chronic sore throat that’s worse in the mornings, voice changes, and it’s painful and difficult taking a deep breath into my diaphragm or singing. I also sometimes experience difficulty swallowing and nausea, and recently even threw up out of the blue with no cause almost like with gastroparesis. When I feel my diaphragm and take a deep breath, I don’t feel the movement which I’ve been told indicates a hernia. I’m not overweight and don’t eat a lot of food - I actually can’t because my throat is so tight sometimes - so it’s not diet or weight related. I also don’t know if this is relevant but I also aspirate drinks quite easily.
I know a sliding hiatal hernia isn’t considered a significant issue in the U.K. but I’m wondering if it’s definitely the sliding kind - I don’t know if you experience all those symptoms getting progressively worse with that?
I’m 27 and have hEDS, POTS, GERD etc among other things. I know hernias are common with EDS and that hiatal hernias can often cause GERD so I’ve been aware I could have one for a long while. GPs here don’t think they’re serious most of the time and have focused on treating the symptoms with omeprazole, antacids etc but it’s reached a point where that isn’t working anymore and my symptoms are worsening. I’m not sure if it’s reached a point where a doctor will take it seriously yet, or if there’s even anything that can be done about it - any advice would be appreciated!
I was first diagnosed with GERD aged 20, experiencing chest pain, reflux and stomach churning from excessive acid, which mostly stayed the same for a few years. My throat is also super sensitive and the slightest irritation can make it bleed.
But in the last two years , I’ve developed a chronic sore throat that’s worse in the mornings, voice changes, and it’s painful and difficult taking a deep breath into my diaphragm or singing. I also sometimes experience difficulty swallowing and nausea, and recently even threw up out of the blue with no cause almost like with gastroparesis. When I feel my diaphragm and take a deep breath, I don’t feel the movement which I’ve been told indicates a hernia. I’m not overweight and don’t eat a lot of food - I actually can’t because my throat is so tight sometimes - so it’s not diet or weight related. I also don’t know if this is relevant but I also aspirate drinks quite easily.
I know a sliding hiatal hernia isn’t considered a significant issue in the U.K. but I’m wondering if it’s definitely the sliding kind - I don’t know if you experience all those symptoms getting progressively worse with that?
Protonix worked better for me but I had a closing esophagus that they went in and dilated but I also have a sliding hernia. Breathing and stretching exercises help but u might want a barium xray to check esophagus cuz I had the same symptoms and more cuz I thought it was my heart so did the dr
I’m 27 and have hEDS, POTS, GERD etc among other things. I know hernias are common with EDS and that hiatal hernias can often cause GERD so I’ve been aware I could have one for a long while. GPs here don’t think they’re serious most of the time and have focused on treating the symptoms with omeprazole, antacids etc but it’s reached a point where that isn’t working anymore and my symptoms are worsening. I’m not sure if it’s reached a point where a doctor will take it seriously yet, or if there’s even anything that can be done about it - any advice would be appreciated!
I was first diagnosed with GERD aged 20, experiencing chest pain, reflux and stomach churning from excessive acid, which mostly stayed the same for a few years. My throat is also super sensitive and the slightest irritation can make it bleed.
But in the last two years , I’ve developed a chronic sore throat that’s worse in the mornings, voice changes, and it’s painful and difficult taking a deep breath into my diaphragm or singing. I also sometimes experience difficulty swallowing and nausea, and recently even threw up out of the blue with no cause almost like with gastroparesis. When I feel my diaphragm and take a deep breath, I don’t feel the movement which I’ve been told indicates a hernia. I’m not overweight and don’t eat a lot of food - I actually can’t because my throat is so tight sometimes - so it’s not diet or weight related. I also don’t know if this is relevant but I also aspirate drinks quite easily.
I know a sliding hiatal hernia isn’t considered a significant issue in the U.K. but I’m wondering if it’s definitely the sliding kind - I don’t know if you experience all those symptoms getting progressively worse with that?
I’m 27 and have hEDS, POTS, GERD etc among other things. I know hernias are common with EDS and that hiatal hernias can often cause GERD so I’ve been aware I could have one for a long while. GPs here don’t think they’re serious most of the time and have focused on treating the symptoms with omeprazole, antacids etc but it’s reached a point where that isn’t working anymore and my symptoms are worsening. I’m not sure if it’s reached a point where a doctor will take it seriously yet, or if there’s even anything that can be done about it - any advice would be appreciated!
I was first diagnosed with GERD aged 20, experiencing chest pain, reflux and stomach churning from excessive acid, which mostly stayed the same for a few years. My throat is also super sensitive and the slightest irritation can make it bleed.
But in the last two years , I’ve developed a chronic sore throat that’s worse in the mornings, voice changes, and it’s painful and difficult taking a deep breath into my diaphragm or singing. I also sometimes experience difficulty swallowing and nausea, and recently even threw up out of the blue with no cause almost like with gastroparesis. When I feel my diaphragm and take a deep breath, I don’t feel the movement which I’ve been told indicates a hernia. I’m not overweight and don’t eat a lot of food - I actually can’t because my throat is so tight sometimes - so it’s not diet or weight related. I also don’t know if this is relevant but I also aspirate drinks quite easily.
I know a sliding hiatal hernia isn’t considered a significant issue in the U.K. but I’m wondering if it’s definitely the sliding kind - I don’t know if you experience all those symptoms getting progressively worse with that?
If you are in the UK can you purchase an Iqoro with subsidy from the NHS? It's a device available in Europe that supposedly helps people with hernias combat GERD thru simple exercises using the device.
You can also check out Dr. Jamie Koufman's GERD advice on her website and FB page. She outlines a detox program involving low-acid/low-fat diet, and a few other steps, like sleeping with your head elevated. Good luck!
I would love to hear commentary from people who have a hiatal hernia and what you do for it or have done for it. I was given a cardiac scan of my heart area for something and the scan 'accidentally' picked up that I have a hiatal hernia (totally unrelated to cardiac issues). I want to know what has worked for others. Yes, I have a doctor but feedback from actual patients is beneficial as well. I am not looking for medical advice for my own situation, just wondering about what has worked or not worked for you. Thanks.
I would love to hear commentary from people who have a hiatal hernia and what you do for it or have done for it. I was given a cardiac scan of my heart area for something and the scan 'accidentally' picked up that I have a hiatal hernia (totally unrelated to cardiac issues). I want to know what has worked for others. Yes, I have a doctor but feedback from actual patients is beneficial as well. I am not looking for medical advice for my own situation, just wondering about what has worked or not worked for you. Thanks.
I would love to hear commentary from people who have a hiatal hernia and what you do for it or have done for it. I was given a cardiac scan of my heart area for something and the scan 'accidentally' picked up that I have a hiatal hernia (totally unrelated to cardiac issues). I want to know what has worked for others. Yes, I have a doctor but feedback from actual patients is beneficial as well. I am not looking for medical advice for my own situation, just wondering about what has worked or not worked for you. Thanks.
I had this surgery in 2019. It did wonders! As long as I do what I’m supposed to. Basically no straws and very limited carbonated drinks. But since a about try my 3rd week of Radiation I’ve been suffering from it again. I’m not sure if it’s my esophagus that is burnt or what. Once I get my new PET scan done if it’s not any better I will probably discuss this with my that I Gastroenterologist. Another thing that I found out after my surgery is that I couldn’t throw up. They had to repair my esophagus with part of my intestine because it was eroded so bad
Thank you for following up on this…sounds like I have to be really careful and seriously follow instructions with the small meals ( it’s hard to remember) so I don’t get to surgery stage…no surgery is fun, but this one sounds particularly awful…I hope everyone contributing has found some place comfortable with their tummies…
I would love to hear commentary from people who have a hiatal hernia and what you do for it or have done for it. I was given a cardiac scan of my heart area for something and the scan 'accidentally' picked up that I have a hiatal hernia (totally unrelated to cardiac issues). I want to know what has worked for others. Yes, I have a doctor but feedback from actual patients is beneficial as well. I am not looking for medical advice for my own situation, just wondering about what has worked or not worked for you. Thanks.
I just had a nissen fundaplication. I haven't felt this good in 14 years. Depending on the size of your hiatal hernia, you might need to raise your bed to a 30 degree angle to sleep. I can now sleep flat and have had no issues. The trade off for me is easy. No straws, no carbonated drinks (I haven't had any for 9 years) small meals , soft food, chew well. Drink after each bite. If I do eat bread dunk it in a liquid. My esophagus is weak and doesn't push food down like it should. Dr Edwards Jax Mayo is the best and made this as easy as possible. I suggest you use him.
If you have a large hiatal hernia, it would be best to have it repaired.
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Hi,
I’m 27 and have hEDS, POTS, GERD etc among other things. I know hernias are common with EDS and that hiatal hernias can often cause GERD so I’ve been aware I could have one for a long while. GPs here don’t think they’re serious most of the time and have focused on treating the symptoms with omeprazole, antacids etc but it’s reached a point where that isn’t working anymore and my symptoms are worsening. I’m not sure if it’s reached a point where a doctor will take it seriously yet, or if there’s even anything that can be done about it - any advice would be appreciated!
I was first diagnosed with GERD aged 20, experiencing chest pain, reflux and stomach churning from excessive acid, which mostly stayed the same for a few years. My throat is also super sensitive and the slightest irritation can make it bleed.
But in the last two years , I’ve developed a chronic sore throat that’s worse in the mornings, voice changes, and it’s painful and difficult taking a deep breath into my diaphragm or singing. I also sometimes experience difficulty swallowing and nausea, and recently even threw up out of the blue with no cause almost like with gastroparesis. When I feel my diaphragm and take a deep breath, I don’t feel the movement which I’ve been told indicates a hernia. I’m not overweight and don’t eat a lot of food - I actually can’t because my throat is so tight sometimes - so it’s not diet or weight related. I also don’t know if this is relevant but I also aspirate drinks quite easily.
I know a sliding hiatal hernia isn’t considered a significant issue in the U.K. but I’m wondering if it’s definitely the sliding kind - I don’t know if you experience all those symptoms getting progressively worse with that?
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2 ReactionsProtonix worked better for me but I had a closing esophagus that they went in and dilated but I also have a sliding hernia. Breathing and stretching exercises help but u might want a barium xray to check esophagus cuz I had the same symptoms and more cuz I thought it was my heart so did the dr
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1 Reaction@badbodybabe, as you research your health issues, I thought you might find useful posts in these related discussions:
- Hiatal Hernia. What helps? https://connect.mayoclinic.org/discussion/hiatal-hernia-what-helps-surgery-or-no/
- Need reassurance of symptoms:IBS, GERD, gastritis, sm hiatal hernia: https://connect.mayoclinic.org/discussion/need-reassurance-of-symptomsibs-gerd-gastritis-sm-hiatal-hernia/
- Ehlers Danlos Syndrome (EDS) & HSD, calling all types! https://connect.mayoclinic.org/discussion/edshsd-calling-all-types/
You may also be interested in this expert Mayo Clinic blog:
- Ehlers-Danlos Syndrome Blog https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/
If you are in the UK can you purchase an Iqoro with subsidy from the NHS? It's a device available in Europe that supposedly helps people with hernias combat GERD thru simple exercises using the device.
You can also check out Dr. Jamie Koufman's GERD advice on her website and FB page. She outlines a detox program involving low-acid/low-fat diet, and a few other steps, like sleeping with your head elevated. Good luck!
I would love to hear commentary from people who have a hiatal hernia and what you do for it or have done for it. I was given a cardiac scan of my heart area for something and the scan 'accidentally' picked up that I have a hiatal hernia (totally unrelated to cardiac issues). I want to know what has worked for others. Yes, I have a doctor but feedback from actual patients is beneficial as well. I am not looking for medical advice for my own situation, just wondering about what has worked or not worked for you. Thanks.
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1 ReactionThanks for posting this question, I would also like this information!
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1 Reaction@cantbelievethis and @ch47, A lot of members shared their experience in an older discussion from 2016 which has posts from 2020 and one from 2022 here:
--- Has anyone had surgery to repair hiatal hernia?: https://connect.mayoclinic.org/discussion/hiatal-hernia-sugery/
@rcgmlka7, @friz, @donnatownsend, @drdinsmore, @billjudis and @bea4me have discussed hiatal hernia surgery in other discussions and may have some experience to share with you.
I had this surgery in 2019. It did wonders! As long as I do what I’m supposed to. Basically no straws and very limited carbonated drinks. But since a about try my 3rd week of Radiation I’ve been suffering from it again. I’m not sure if it’s my esophagus that is burnt or what. Once I get my new PET scan done if it’s not any better I will probably discuss this with my that I Gastroenterologist. Another thing that I found out after my surgery is that I couldn’t throw up. They had to repair my esophagus with part of my intestine because it was eroded so bad
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Helpful -
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5 ReactionsThank you for following up on this…sounds like I have to be really careful and seriously follow instructions with the small meals ( it’s hard to remember) so I don’t get to surgery stage…no surgery is fun, but this one sounds particularly awful…I hope everyone contributing has found some place comfortable with their tummies…
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Like -
Helpful -
Hug
3 ReactionsI just had a nissen fundaplication. I haven't felt this good in 14 years. Depending on the size of your hiatal hernia, you might need to raise your bed to a 30 degree angle to sleep. I can now sleep flat and have had no issues. The trade off for me is easy. No straws, no carbonated drinks (I haven't had any for 9 years) small meals , soft food, chew well. Drink after each bite. If I do eat bread dunk it in a liquid. My esophagus is weak and doesn't push food down like it should. Dr Edwards Jax Mayo is the best and made this as easy as possible. I suggest you use him.
If you have a large hiatal hernia, it would be best to have it repaired.
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Like -
Helpful -
Hug
6 Reactions