1. < Osteoporosis & Bone Health

Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

suemer | @suemer | Aug 26, 2018
In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)
@mohavegal

Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don't know what "family" it's in. Having horrible pain when lying down.

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How do I find a physician that can look into this for me? I have osteoporosis and am -4.5 at the hip and -2.5 at the spine. I have cardiac calcification and I am convinced that it's from years of taking too much calcium but it could be related to other issues as I have a number of auto-immune disease that the doctors say are idiopathic... Hashimoto's Disease, Gastroparesis, Membranous Glumerlonephritis, and osteoporosis.

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1 reply
suemer | @suemer | Aug 26, 2018
In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)
@mohavegal

Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don't know what "family" it's in. Having horrible pain when lying down.

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Did you see a physician at Mayo Clinic?

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lioness | @lioness | Aug 11, 2018
In reply to @lioness "@gailb Id like to ask about CB D cream I ordered some but am unsure if..." + (show)
@lioness

@gailb Id like to ask about CB D cream I ordered some but am unsure if you use it just when you have the pain or should it be more on a regular basis ? Since you have used it can you us some guidelines?Thanks

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@gailb thanks in the meantime I found her its teci1 I just emailed John to see if Mayo had any info on Epstein-Barr virus and fibromyalgia I had mono in 20,s now fibromyalgia wonder if theres any relationship between these 2?

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GailBL, Alumni Mentor | @gailb | Aug 11, 2018
In reply to @lioness "@gailb Id like to ask about CB D cream I ordered some but am unsure if..." + (show)
@lioness

@gailb Id like to ask about CB D cream I ordered some but am unsure if you use it just when you have the pain or should it be more on a regular basis ? Since you have used it can you us some guidelines?Thanks

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@lioness

Thanks for the referral about ART. I'll reply to her today. I'll see if I have any information about the woman for whom you are searching.

Gail
Volunteer Mentor

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lioness | @lioness | Aug 11, 2018
In reply to @jakedduck1 "@lioness How did you break your back? You mentioned having an injection. Was that a steroid..." + (show)
@jakedduck1

@lioness

How did you break your back? You mentioned having an injection. Was that a steroid like cortisone? They are very bad on bone health. If they are steroid injections I hope you haven’t taken them long term. How often do you have a scan. The Radiologist recommended I get scanned yearly. He also recommended 1200mg calcium and 400-800 IU of Vit D daily. I already take 6,000 IU vit D because of the three seizure meds I take.
I’d like to share an interesting website..
http://www.betterbones.com by Dr. Susan Clark PhD. She is a nutritionist but specializes in Osteoporosis. She has many utube videos.

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@jakedduck1 I was doing private duty had my lady who n tub when she got up her legs buckled and I tried to keep her from falling I was in a awkward position and my back gave way fractured L2 No I don't get injections only 3times a year o more altho now Dr wants me to come back more I won't know the downfall on your organs. Thanks for website I,ll look at it. I think I have emailed her.?Now I have a Bulging disc seeing a neurosurgeon in Sept.

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Leonard | @jakedduck1 | Aug 11, 2018

@lioness

How did you break your back? You mentioned having an injection. Was that a steroid like cortisone? They are very bad on bone health. If they are steroid injections I hope you haven’t taken them long term. How often do you have a scan. The Radiologist recommended I get scanned yearly. He also recommended 1200mg calcium and 400-800 IU of Vit D daily. I already take 6,000 IU vit D because of the three seizure meds I take.
I’d like to share an interesting website..
http://www.betterbones.com by Dr. Susan Clark PhD. She is a nutritionist but specializes in Osteoporosis. She has many utube videos.

REPLY
1 reply
lioness | @lioness | Aug 11, 2018
In reply to @lioness "@gailb Id like to ask about CB D cream I ordered some but am unsure if..." + (show)
@lioness

@gailb Id like to ask about CB D cream I ordered some but am unsure if you use it just when you have the pain or should it be more on a regular basis ? Since you have used it can you us some guidelines?Thanks

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@gailb Im looking for the lady but cant think of her name she had encephalitis Do you remember her handle? Also I replied to a new person gave her your handle in hopes you can tell her more about ART might help her .

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lioness | @lioness | Aug 10, 2018
In reply to @jakedduck1 "@hopeful33250 Hi Teresa, I called my doctors office and talked to receptionist. My belief is nothing..." + (show)
@jakedduck1

@hopeful33250

Hi Teresa,

I called my doctors office and talked to receptionist. My belief is nothing serious or that needs treatment is wrong. If it were my doctor would have me come in. Receptionist did say I have to be scanned every year going forward. This was my first scan and I’m 65. After being on seizure meds for 51 years I’m surprised my scores weren’t worse. Walked all day for years for 8-15 hours a day. That must have helped.
Thanks for replying Teresa.

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@Theresa yes walking ,swimming any kind of exercise is good especially if you do some weights .

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lioness | @lioness | Aug 10, 2018
In reply to @jakedduck1 "I had questions about why Osteopenia wasn’t mentioned in my recent scan since I was diagnosed..." + (show)
@jakedduck1

I had questions about why Osteopenia wasn’t mentioned in my recent scan since I was diagnosed with it previously. Today I went and picked up my Dexa Scan report. The report says “Low bone density or low bone mass are used in lieu of Osteopenia.” I never realized the terminology had changed. I earlier posted my T score was -1. After reading the report nowhere is -T 1 mentioned. I don’t know why the receptionist told me that.
It says “Low bone density.” The lowest T-score is
-3.1 at the left femoral neck.”
So my question, is it Osteopenia Osteoporosis or what.
Thanks for any help.
Jake

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@jakedduck1 I have had Osteopenia for allowing ng time and the Dr.told me its , precursor for Osteoporosis Now Ive alwaYs been active ,have had Osteopenia for 13+ years never developed into Osteoporosis..

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 10, 2018

@jakedduck1

Yes, you have had a very healthy lifestyle! I take it from your comment that seizure meds have an effect on bone density? I was not aware of that.

Teresa

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