Treating Osteoporosis: What works for you?
Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Great info, @jakedduck1 It works against the immune system, which right off the bat tells me it is probably not appropriate for me. I don’t need to be less immune than the immunosuppressants already make me. Also, I read recently that when you are on immunosuppressants, you are at greater risk of cancer since your body’s ability to fight cancer off is part of your immune system also. Of course whenever a new drug is prescribed for me I run it by my transplant team to get their input and I am sure they would immediately say a big, resounding NO.
JK
Hi @curlylocks not sure if you saw my post. I am on Prolia because I didn't like the potential serious side effects of Forteo. I am 64 and after one year my bone density in my hip and spine increased significantly. The endocrinologist who originally wanted me to go on Forteo was very pleased with the results. I had -3 .3 or so in the hip and equally bad number in the spine. So she has me continuing on on Prolia which is convenient in that it is only two injections a year.
Hi Suemer, I am scheduled to go on Tymlos. The studies on this drug are minimal, at best, and the side effects are dangerous. However, with a 4.6 T score and a knee that needs replacement, my choices are limited. I am also seeing a doctor who practices "functional" medicine and prescribing specific types of bone supplements. I am hopeful to take Tymlos for a short period of time. At 72, one fall to my hip and I will not recover. Sometimes, we must have the courage to do what seems unthinkable. I was told by 3 medical people, Prolea will not build bone but will prevent further bone loss. Unfortunately, in my case, I'm beyond prevention. Life is short and I would like to extend me quality as much as possible!🐱
@jakedduck1 meant to say
Also just reread the article that@jakedduck sent and noticed that Prolia increased my bone density in both the spine and hip to the same degree as Forteo (11.6% and 6.4%). And you can stay on Prolia for at least 10 years.
Although Forteo was my doctor's first choice, I did not like the black box warning about osteosarcoma. That definitely factored into my decision to go with Prolia. (history of a variety of different types of cancer in my family including blood and bone cancers.)
Here is an article Re: Forteo
I don’t know anything about it but thought this article was thought provoking.
https://www.womenshealthnetwork.com/community/osteoblast/post/should-you-use-forteo-for-osteoporosis.aspx?
Jake
Forteo was my doctor's first choice because the bone density increase is significant and fast. Believe the maximum amount of time to be on it is 18 months.
Have you considered Forteo or Tymlos. Both of these meds actually build bone.
So, I am almost 65 and have been on Prolia for 21 months. My hip score was almost as bad as yours. My fear of a hip fracture and loss of independence (I know someone who never got out of her wheelchair), outweighed my fear of Prolia. (I have posted on this blog before but one more time, my hip score improved by 6.5 % and spine by just under 12% after 1 year.