Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

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@windyshores

I don't know why but all of a sudden my body is not rejecting Tymlos. Four days now on 6 clicks with few problems. Not 100% but so tolerable. Keep going!

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Yeah and keep going strong. Maybe Fall and cooler weather helps. Two days to go and one week at 3 clicks.is finished. Do you have a different lot of Tymmlos that could help? Thanks for the update and keep informed. KLH

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@kilh

@windyshores, well now I only have 9 days to go on 3 clicks and I can try for 4 clicks. I hope that works since you had trouble at 4 for a while. Six weeks ago I have my L 4-6 nerves were burned with radio frequently. So no feeling till the nerve endings grow back. which could take two years. So far no fractures that I know of. I guess the tortoise will stay behind and give the hare a little push forward from behind. As long as we stay well and healthy, we can do this. It is going to rain here all day today and tomorrow. So will be in the house making more applesauce. Take care and keep me informed. KLH

Jump to this post

I don't know why but all of a sudden my body is not rejecting Tymlos. Four days now on 6 clicks with few problems. Not 100% but so tolerable. Keep going!

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@windyshores

@klh here are your scores again: L1-4 -3.5, left femoral neck -2.8, and left hip -3.3 . That was two years ago. Mine are worse but more recent! My femoral neck is the worst. Be careful of your spine with a score in the -3.5 and lower range. (I am afraid I just fractured another one making a stupid movement tonight- we'll see.) I did 6 clicks today so two days in a row and it went, well, tolerably. I guess I am the hare afterall.

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@windyshores, well now I only have 9 days to go on 3 clicks and I can try for 4 clicks. I hope that works since you had trouble at 4 for a while. Six weeks ago I have my L 4-6 nerves were burned with radio frequently. So no feeling till the nerve endings grow back. which could take two years. So far no fractures that I know of. I guess the tortoise will stay behind and give the hare a little push forward from behind. As long as we stay well and healthy, we can do this. It is going to rain here all day today and tomorrow. So will be in the house making more applesauce. Take care and keep me informed. KLH

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@becsbuddy

@windyshores OUCH! I’ve heard that it’s very painful. Did you go to the ER or treat yourself?

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I fractured three lumbar vertebrae last April, waited a few days and got an X-ray to confirm. ER cannot do anything. FYI compression fractures don't show up for a few days. Yes painful. I am enduring side effects of Tymlos no matter what- hopeful.

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@windyshores

I think I fractured a vertebra last night ducking under a barrier. This is serious business. If I did, I have a total of 6 spinal fractures. Going to try to stick with 6 clicks and continue moving up. Have to ask doc if that is enough or if I should switch to Evenity.

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@windyshores OUCH! I’ve heard that it’s very painful. Did you go to the ER or treat yourself?

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I think I fractured a vertebra last night ducking under a barrier. This is serious business. If I did, I have a total of 6 spinal fractures. Going to try to stick with 6 clicks and continue moving up. Have to ask doc if that is enough or if I should switch to Evenity.

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@kilh

Hi, @windyshores the hare may have to slow a bit but not too slow or the tortoise might come too close. I will be curious how alternating will work and if it will let you move forward. We need to change history and have the hare win in the end.
Did you see my scores I finally got or do I have to post them again? Is there a chart somewhere online to show have bad one fails. Since I have been on Tymlos, I have broken off eight crowns leaving the roots still in my jaw. Today, I had two cut out on the top and then the one on the bottom I still have to have pulled out. We had rain most of the day and now all day tomorrow is forecasted. I hope your cold is going away and you feel better. Right now my two sockets are starting to hurt and I hate taking pain pills
Got my income taxes back from the CPA. Now I can call Radius and set up my free monthly refills for 18 months.
Better go put another ice pack on the jaw. Keep in touch about how your plan is working out. I will be looking up to the NE skies and my thoughts are with you on our journey. KLH

Jump to this post

@klh here are your scores again: L1-4 -3.5, left femoral neck -2.8, and left hip -3.3 . That was two years ago. Mine are worse but more recent! My femoral neck is the worst. Be careful of your spine with a score in the -3.5 and lower range. (I am afraid I just fractured another one making a stupid movement tonight- we'll see.) I did 6 clicks today so two days in a row and it went, well, tolerably. I guess I am the hare afterall.

REPLY
@becsbuddy

@flmargie I’m sorry to hear that you have osteoporosis, so do I. And you broke your jaw? How did this happen?There are so many drugs to treat osteoporosis and @windyshores and @kilh are talking about Prolia which is given, by injection, by the patient at home. The clicks are a measure of increasing the dosage. I’m currently on Fosamax, a weekly pill, but will change to Reclast, an infusion by the end of the month.
Osteoporosis treatment: Medications can help - Mayo Clinic
Sound confusing? It is! There are about 14 medications, given by different routes, at different time intervals. What has your doctor put you on?

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No we are discussing Tymlos, not Prolia. We give Tymlos injections to ourselves daily. The pens have 8 clicks for a full dose and some of us are starting with two and moving up.

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@windyshores

Oops I meant I am going to alternate 5 and 6 clicks for a week or two then try 6. It might take longer. We'll see...

Jump to this post

Hi, @windyshores the hare may have to slow a bit but not too slow or the tortoise might come too close. I will be curious how alternating will work and if it will let you move forward. We need to change history and have the hare win in the end.
Did you see my scores I finally got or do I have to post them again? Is there a chart somewhere online to show have bad one fails. Since I have been on Tymlos, I have broken off eight crowns leaving the roots still in my jaw. Today, I had two cut out on the top and then the one on the bottom I still have to have pulled out. We had rain most of the day and now all day tomorrow is forecasted. I hope your cold is going away and you feel better. Right now my two sockets are starting to hurt and I hate taking pain pills
Got my income taxes back from the CPA. Now I can call Radius and set up my free monthly refills for 18 months.
Better go put another ice pack on the jaw. Keep in touch about how your plan is working out. I will be looking up to the NE skies and my thoughts are with you on our journey. KLH

REPLY
@flmargie

what are you all clicking? New to the site and am osteoporotic. Have history of jaw fracture so in eligible for shots.

Jump to this post

@flmargie I’m sorry to hear that you have osteoporosis, so do I. And you broke your jaw? How did this happen?There are so many drugs to treat osteoporosis and @windyshores and @kilh are talking about Prolia which is given, by injection, by the patient at home. The clicks are a measure of increasing the dosage. I’m currently on Fosamax, a weekly pill, but will change to Reclast, an infusion by the end of the month.
Osteoporosis treatment: Medications can help - Mayo Clinic
Sound confusing? It is! There are about 14 medications, given by different routes, at different time intervals. What has your doctor put you on?

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