Treating Osteoporosis: What works for you?

Google it…a plant based calcium supplement. Strontium is another supplement to boost absorption of calcium.

To clarify, on the Algae Cal and Strontium your bone density scores are no better and no worse 3 years later?

To clarify, on the Algae Cal and Strontium your bone density scores are no better and no worse 3 years later?

I agree with you. I stopped Prolia because of 9 hemorrhagic UTIs in one year. My doctor also told me you can’t stop… 3 years later I am doing ok with bone density scores about the same - Algae Cal and Strontium supplements, weight bearing exercise every morning and walking 5 days a week. All these drugs have terrible side effects.

Hi,

I took 2 shots of prolia and had the same severe bone and muscle pain, especially in my legs and the pain was the worst when lying down. I also experienced hair loss due to prolia. I told my endocrinologist I was stopping it. (Many drs say you cannot stop it but that is not true). My doctor is chairman of endocrinology at a large hospital complex in the Washington, D.C. area. I asked him to calculate my risk of broken bones if I stopped. Given that I have severe osteoporosis, he calculated that I had a 10% chance of a broken hip and a 25% chance of any broken bone in the next 10 years. I will take that chance as I feel great without the prolia. (I had been on other osteoporosis drugs prior to prolia but they all made me sick.) He did describe ergocalciferol, Vitamin D and Vitamin B12 which I faithfully take and I also stay active. I walk about 7000 steps/ day (except in snow or rain) and am generally active and busy.

Remember this is your body and the medical profession is closely allied with drug companies. Do what makes you feel good and is best for you.

Kaye

I don’t understand the ‘clicks’ My injection pen is just one button to push slowly. I push it and count to ten. My doctor did not understand the half dose request. She said before you count to 5 you probably have the full dose already. I think I will call Tymlos about this. I have only done two doses and have experienced about 30 min of heart palpitations.

My doctor is head of endocrinology at one of the top hospitals in the world.
He knows I am sensitive to meds and was totally on board with me starting low. But I suggested it after having a bad reaction to the full dose. I also called Tymlos and told them they are losing customers because many cannot tolerate full dose and give up. This is a hormone, so your body adjusts to it.

If you are not sensitive to meds go ahead and try the full dose or a half dose and maybe you do better than I did. If you do react, don't give up on the drug and start lower.

If your MD doesn't support this I would either get a new doctor or understand that you can do what you want. It won't take long to get to the dose prescribed.

Do you ever take half a pill that is prescribed? These decisions are ours to make. Docs have to follow protocols and Tymlos was studied at full dose. They need evidence, not anecdotes. But the point is to get to full dose, and avoid stopping altogether, for some of us.

Docs like mine are flexible, but not all are. I told my doc that I was doing this and he was delighted. Even more delighted with me at 7 clicks now.