I am having a VERY difficult time with Klonipin withdrawal

Posted by lisalynn @lisalynn, Jun 29, 2023

I have been on Klonipin for a BIG Panic disorder for over 15 years. I recently had to wean down off of 3 to none fast. The withdrawal was the worst thing that has ever happened to me. I have my normal prescription now. However, at a lower level. But, I am still having a withdrawal symptom that is plaguing me. I am still taking it, but half of what I had been. I hear my Heart thumping in my ears, very loud and fast, 120 beats per minute. Did anyone else have that symptom? Or describe their withdrawal? Oh, and I NEVER want to speak to that new and cold Psychiatrist I have.
Struggling. Thanks.

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Profile picture for beracha @beracha

I also have been told by my dr that some cannot get off completely. I considered that I may be one of them. This is my journey. We all have different issues but all share supporting eachother. That's why we are in this chat. Blessings to you in your journey.

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That is correct...we are here to support each other.

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I was recently denied a refill of klonopin and had to stop abruptly. This sent my body into shock and all of my symptoms from over the past four years came back. I am now back on it to bring my system back to a stable place. Once I have been there for awhile, I plan on doing a very slow taper. I have many questions but first and foremost, how do I know what my current dosage should be to get back to where I was? Should all panic and anxiety symptoms go away, or will some continue to linger? How long does it take before I know I am at the right dose for stability to occur?

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Where can I find support directly from mayo or help with the above. These are questions for a professional. My experience with that med may not relate to your challenge.

Its a control drug, addictive, as you need more as you go on.

My experience is different. I used it to stop my thought and to go to sleep, but the next morning I felt awful. I have switched to Magnesiun Glycinate which does many things..look it up. I go right to sleep in minutes, just one. It affects the muscles to relax tho im researching if it takes muscles away because my legs are weak.

Id like to hear from mayo but I dont think they comment on med. Talk to a psychiatrist to learn about this.

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Profile picture for mcoleman1971 @mcoleman1971

I have been on Klonopin for 25 years at 2mg per day and want to get off of this horrible medication. My GP here doesn't know how to help me and since I live in a small town we don't have any therapists that would be able to help me as well. I do not wish to go to a rehab center and need support through what I am going to be going through over the next year.

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I just tried micro tapering of my Klonopin from 2mg to 1.8mg and am very sick after two days and that was only a 5% drop. I am praying for us to get off of these horrible benzos. You need to tell your doctor to educate themselves on not slowly tapering off of your drug. Your doctor has a responsibility to you as her patient to help you taper slowly at your own pace. My doctor finally gets that after asking him to please read the Ashton Manual. When do you see your doctor again?

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Profile picture for mcoleman1971 @mcoleman1971

I have been on Klonopin for 25 years at 2mg per day and want to get off of this horrible medication. My GP here doesn't know how to help me and since I live in a small town we don't have any therapists that would be able to help me as well. I do not wish to go to a rehab center and need support through what I am going to be going through over the next year.

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No, I have to slice the pills and weigh them. My online benzo coach told me to try to only drop by 2.5% vs 5%. I feel very sick!!! So, I will see how tonight goes at 2.5% drop vs 5%. I feel very frustrated with myself🥹

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Profile picture for mcoleman1971 @mcoleman1971

I have been on Klonopin for 25 years at 2mg per day and want to get off of this horrible medication. My GP here doesn't know how to help me and since I live in a small town we don't have any therapists that would be able to help me as well. I do not wish to go to a rehab center and need support through what I am going to be going through over the next year.

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As for going to anyone...no unfortunately not. The doctors and psychiatrists here are not prescribing benzos anymore. I am lucky that the doctor that I have will keep prescribing the Klonopin until I am done with tapering.

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Profile picture for mcoleman1971 @mcoleman1971

As for going to anyone...no unfortunately not. The doctors and psychiatrists here are not prescribing benzos anymore. I am lucky that the doctor that I have will keep prescribing the Klonopin until I am done with tapering.

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Open enrollment is coming in October for Medicare beneficiaries. Could you change insurance so u could see a different doctor?

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Profile picture for mcoleman1971 @mcoleman1971

I have been on Klonopin for 25 years at 2mg per day and want to get off of this horrible medication. My GP here doesn't know how to help me and since I live in a small town we don't have any therapists that would be able to help me as well. I do not wish to go to a rehab center and need support through what I am going to be going through over the next year.

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I was on klonopin for sleep disorder. Anxiety and PTSD. My dr didn't explain but I guess it is medical conditions like seizures that r too dangerous. I did have my first panic attack after years of klonopin when I was in my 2 weeks after last klonopin dose. Dr added hydroxyzine, antihistamine used for alcohol withdrawals. I have increased anxiety and needed to start my mindfulness, meditation, and crocheting to keep brain busy. It has helped. Yes, it is scary!! I did work thru it but it was horrible. I am trying to work thru without medication. Its easier to take pill, but i am determined to stop klonopin. My memory issues are more serious to me and my family, and I am taking it one day at a time. I will be giving myself grace, and try to keep off klonopin. My journey is hard, but it is the direction I chose. Keep trying.

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I am also withdrawing from Clonazepam like you but and here is the but I am doing it with the supervision of my doctor. We agreed about a year ago that it would be beneficial to my overall health to do so. I also take it for anxiety (panic attacks). I use to take .05 mg 3 times a day. I am now down to .05 (broken in 2} twice a day. I took the higher dose for 30 yrs! Who prescribed your meds and why would they not give you the refill that you needed. I can't think of any doctor who would essentially shut you off at the pharmacy. Stopping this med abruptly like you are doing would of course give you withdrawal that is not recommended. You need to find a doctor who would never think of doing this to you. It is dangerous. If you are still having withdrawal go to your ER where they will at least give you the name of a reputable doctor who will work with you to have a healthy and slow program if withdrawing. What you are experiencing is not healthy

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Profile picture for scain @scain

I am also withdrawing from Clonazepam like you but and here is the but I am doing it with the supervision of my doctor. We agreed about a year ago that it would be beneficial to my overall health to do so. I also take it for anxiety (panic attacks). I use to take .05 mg 3 times a day. I am now down to .05 (broken in 2} twice a day. I took the higher dose for 30 yrs! Who prescribed your meds and why would they not give you the refill that you needed. I can't think of any doctor who would essentially shut you off at the pharmacy. Stopping this med abruptly like you are doing would of course give you withdrawal that is not recommended. You need to find a doctor who would never think of doing this to you. It is dangerous. If you are still having withdrawal go to your ER where they will at least give you the name of a reputable doctor who will work with you to have a healthy and slow program if withdrawing. What you are experiencing is not healthy

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Good luck with your withdrawal, definitely do the slow withdrawal and hopefully all will go well. Clonazepam was a nightmare for me after only 7 months. Messed me up big time and had withdrawal symptoms for 18 or more months. Frankly I think I still feel subtle side effects after 30 months, go figure. With respect to you panic attacks (disorder) I found Propranolol to be a God send for panic attacks and preventing them in the first place. I developed panic attacks while giving presentations to groups of people, often hundreds, and thought my career was over. But discovered if I took this miracle beta blocker an hour before my presentation, I could sing like a canary. Tried Xanax as doctor advised, helped, but nowhere close to the calm with propranolol. I found out others used it as well for the same stage fright I developed. We all thought it was a life saver. Now that I'm retired I no longer need the med and only took it for presentations or higher work stress events. Best of luck!!

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