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jmbjar
@jmbjar

Posts: 53
Joined: Oct 23, 2015

Does anyone have adrenal nodule?

Posted by @jmbjar, Oct 23, 2015

Hi all . Does anyone have adrenal nodule , know if they are common/normal ? I also have parathyroid disease + hypothyroidism and recently diagnosed with type 2 diabetes. One thing after another lately

REPLY

Hi @jmbjar
How are you? I hope you had a good holiday with family and friends. Does the festive season make healthy eating a challenge?

Hi Colleen

Actually no, Colleen the festive season doesn’t make healthy eating a challenge for me . Too ill to go out like most do. Other than spending X-mas at my daughter’s I am not near all the temptations.

PLEASE CONSIDER GOING FOR A THYROID CHECK AS IT CAN BE THE MAIN CAUSE OF ALOT OF YOUR PROBLEMS….I WAS CERTAINLY HELPED BY THE DIAGNOSIS MADE BY MY DR.

If you are referring to me, my thyroid has been checked and yes I am hypothyroid . But this has nothing to do with my diagnosis of Primary Hyperparathyroidism nor adrenal adenoma .

Welcome back to Connect, @jmbjar! I’m glad that @allegro‘s message reanimated this thread.
How are you?
For the sake of other people who may be following this thread, I’m providing information about:
– Hyperparathyroidism: http://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/basics/definition/con-20022086
– Hypothyroidism: http://www.mayoclinic.org/diseases-conditions/hypothyroidism/home/ovc-20155291

Can you briefly explain why being hypothyroid has nothing to do with a diagnosis of Primary Hyperparathyroidism? Hyper, hypo, it’s all so confusing.

@colleenyoung

Welcome back to Connect, @jmbjar! I’m glad that @allegro‘s message reanimated this thread.
How are you?
For the sake of other people who may be following this thread, I’m providing information about:
– Hyperparathyroidism: http://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/basics/definition/con-20022086
– Hypothyroidism: http://www.mayoclinic.org/diseases-conditions/hypothyroidism/home/ovc-20155291

Can you briefly explain why being hypothyroid has nothing to do with a diagnosis of Primary Hyperparathyroidism? Hyper, hypo, it’s all so confusing.

Jump to this post

That is impossible to explain briefly . The thyroid has it’s function , and the Parathyroid glands have a totally different function in the body. Think we all know what the thyroid does . The parathyroid glands are behind the thyroid , most have 4 pt glands , 2 on each side of back of thyroid which are the size of a grain of rice if not diseased

I have adenoma ( benign tumors ) on 2 of the 4 Parathyroid glands which means Primary HPT
The only treatment for primary hyperparathyroidism is surgery by an experienced endocrine surgery.

Left untreated as I have been, can & has caused kidney problems, heart issues, osteoporosis, gastrointestinal disorder + , due to calcium being leached from my bones , causing too high calcium in the blood ( due to the diseased pt glands ) The high calcium builds up in places such as the arteries, kidneys , intestines even the brain- places where it does harm, causes disease in other organs

The parathyroid glands make a hormone called PTH, which when not diseases ( are working as should )regulates the amounts of magnesium, calcium and phosphorous that enter your blood and your bones. When they are diseased it causes more symptoms than stated in the enclosed links .

The high parathyroid hormone (PTH) does damage as well. High PTH can also affect the function of a number of nonclassical organs and tissues besides the bone and kidney, including the brain, heart, smooth muscles, gastrointestinal , lungs, erythorcytes, lymphocytes, pancreas, adrenal glands, and testers

Several studies indicate increased risk of malignancy involving several sites and related mortality in primary hyperparathyroidism (PHPT) with the risk persisting for several years after surgery.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3603029/

http://www.niddk.nih.gov/health-information/health-topics/endocrine/primary-hyperparathyroidism/Pages/fact-sheet.aspx

http://eurheartj.oxfordjournals.org/content/25/20/1776

http://www.sciencedirect.com/science/article/pii/S0272638697904844

@colleenyoung

Welcome back to Connect, @jmbjar! I’m glad that @allegro‘s message reanimated this thread.
How are you?
For the sake of other people who may be following this thread, I’m providing information about:
– Hyperparathyroidism: http://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/basics/definition/con-20022086
– Hypothyroidism: http://www.mayoclinic.org/diseases-conditions/hypothyroidism/home/ovc-20155291

Can you briefly explain why being hypothyroid has nothing to do with a diagnosis of Primary Hyperparathyroidism? Hyper, hypo, it’s all so confusing.

Jump to this post

Thank you @jmbjar! Not easy to explain, but you did a great job. Amazing what we learn about our bodies when managing a chronic condition(s). Wish we didn’t have to.

I have nodules on both of my adrenal glands, but they are non-functioning, so my docs say don’t bother them if they don’t bother me. Sounded like good advice.

@gman007

I have nodules on both of my adrenal glands, but they are non-functioning, so my docs say don’t bother them if they don’t bother me. Sounded like good advice.

Jump to this post

Hi gman007. My name is Jan . How did they find out that the adrenal nodules were non- functioning ? 24 hr Urine tests ? I presume you have no symptoms of pheos ?
I agree, don’t bother them if they don’t bother you
Are they going to follow them on a yearly basis , like to see if they are growing in size ?

@colleenyoung

Welcome back to Connect, @jmbjar! I’m glad that @allegro‘s message reanimated this thread.
How are you?
For the sake of other people who may be following this thread, I’m providing information about:
– Hyperparathyroidism: http://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/basics/definition/con-20022086
– Hypothyroidism: http://www.mayoclinic.org/diseases-conditions/hypothyroidism/home/ovc-20155291

Can you briefly explain why being hypothyroid has nothing to do with a diagnosis of Primary Hyperparathyroidism? Hyper, hypo, it’s all so confusing.

Jump to this post

I keep forgetting , my name is Jan Colleen

@jmbjar Jan, this is Gman007 (Gary Manley). I have a ct scan done yearly to check my pancreas for any signs of pancreatic cancer or other structural changes. This gives the GI a look at the nodules to investigate whether they have changed and, yes, the test was a 24 hour urine test. We have known about mine for about 5 years now and there have been no changes. I don’t know if they ae hereditary, but my mother also has one on one of her adrenal glands that is non-functioning and has not changed in a couple of decades.

@gman007

@jmbjar Jan, this is Gman007 (Gary Manley). I have a ct scan done yearly to check my pancreas for any signs of pancreatic cancer or other structural changes. This gives the GI a look at the nodules to investigate whether they have changed and, yes, the test was a 24 hour urine test. We have known about mine for about 5 years now and there have been no changes. I don’t know if they ae hereditary, but my mother also has one on one of her adrenal glands that is non-functioning and has not changed in a couple of decades.

Jump to this post

Thanks Gary. Glad to hear they are keeping watch on you
I live way up in Northern Canada so I have to be my own advocate for health issues – no real Dr’s here

@jmbjar That is one great thing about the internet; we are far more able to research, understand or ask intelligent questions if we do see a healthcare provider. I live in SC where there are no real large urban centers, but our Medical University (about 3 hrs. away) is one of the beat pancreatic centers in the US, so I am well taken care of there. You take care.

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