Having Seizures and Need Input

Posted by 1964chevyz @1964chevyz, Nov 3, 2019

Hey everyone i need advice

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I have sezuries can any one help me

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@1964chevyz

I have sezuries can any one help me

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@1964chevyz
Hi there,
What type of seizures do you have. How often do they occur? What medication are you on?.
Can you explain what happens before during & after? The more specific the details the better.
Jake

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@jakedduck1

@1964chevyz
Hi there,
What type of seizures do you have. How often do they occur? What medication are you on?.
Can you explain what happens before during & after? The more specific the details the better.
Jake

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Hello @1964chevyz, I'd like to add my welcome to @jakedduck1's. If you don't mind me asking, did you mean to post that picture as your profile picture? I could help get that in the right place if you'd like. If you are comfortable sharing, @jakedduck1 asked a good question to start with, do you know what type of seizures you are having?

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I have them m-f 3-4 times and I have them when I’m sleeping I’m on keppera a 1.000 msg a pill 2 pills in the morning and 2 at night

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I shake and stiffin and wet my self

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@1964chevyz

I shake and stiffin and wet my self

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@1964chevyz
Hi,
So your seizures sound characteristic of Tonic-Clonic seizures. Do you bite your tongue and/or cheeks? Do you remember anything after it’s over. Do you sleep afterwards. If so, are you confused, tired, feel nauseated, headache or ache when you wake up.
Have you tried other medications or a combination of medications? Has your Neurologist mentioned you have refractory or intractable Epilepsy? How long have you had them?
Jake

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Hi, @1964chevyz, I'd also like to add my welcome. I encourage you to upload your nice picture to your profile page. Here's how to update your profile.
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/how-to-update-your-profile/.
Here is some Mayo Clinic information on seizures that may be useful https://www.mayoclinic.org/diseases-conditions/seizure/symptoms-causes/syc-20365711

I'd also like to introduce you to @crstyday40 @dawn_giacabazi @theshewolf1 @passang @dap @bruceg, who have all mentioned having seizures personally or a loved one having them. Hoping they will have some thoughts for you on experiencing shaking, becoming stiff and and wetting yourself during a seizure, and also provide some support for you.

I'd be interested, as @jakedduck1 asked, more about what happens in your seizures, what medication you are taking and what your neurologist (if you have one at this point) has said about your diagnosis?

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@jakedduck1

@1964chevyz
Hi,
So your seizures sound characteristic of Tonic-Clonic seizures. Do you bite your tongue and/or cheeks? Do you remember anything after it’s over. Do you sleep afterwards. If so, are you confused, tired, feel nauseated, headache or ache when you wake up.
Have you tried other medications or a combination of medications? Has your Neurologist mentioned you have refractory or intractable Epilepsy? How long have you had them?
Jake

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Very tired after them they take a lot out of me and I don’t bite but when I wake up I don’t remember anything

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@lisalucier

Hi, @1964chevyz, I'd also like to add my welcome. I encourage you to upload your nice picture to your profile page. Here's how to update your profile.
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/how-to-update-your-profile/.
Here is some Mayo Clinic information on seizures that may be useful https://www.mayoclinic.org/diseases-conditions/seizure/symptoms-causes/syc-20365711

I'd also like to introduce you to @crstyday40 @dawn_giacabazi @theshewolf1 @passang @dap @bruceg, who have all mentioned having seizures personally or a loved one having them. Hoping they will have some thoughts for you on experiencing shaking, becoming stiff and and wetting yourself during a seizure, and also provide some support for you.

I'd be interested, as @jakedduck1 asked, more about what happens in your seizures, what medication you are taking and what your neurologist (if you have one at this point) has said about your diagnosis?

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I don’t have one and ask away

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@1964chevyz

I don’t have one and ask away

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Can you contact me by private message on Connect?

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@1964chevyz
Hello,
How have you been getting along? Not sure if I remember correctly but I thought you had your 1,000mg of Keppra increased to 4,000mg, is that right? If so is it working or are you still having seizures and if so how often. Are you seeing a Neurologist? It would be very helpful if you could share what type of seizures you’re having and when. I mean are you having them during the day or do you have them at night when you’re sleeping. One reason I’m curious is if you’re having them at night is the possibility they may be tonic seizures, although people don’t normally lose consciousness although it can happen. I thought you said that you lost consciousness. If you have any specific questions please feel free to ask although I don’t guarantee I’ll know the answer.
Jake

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