Who else is HER2 positive?

Posted by zeerj @zeerj, Oct 9, 2022

Anyone here with her2 positive diagnosis? I was diagnosed with stage 2 back in April, did 6 chemo, bilateral mastectomy and will be doing radiation. Will start TDM1 treatment for 14 cycles. I am looking for success stories with people in similar situation.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@mssewest

That is good to hear. Do you know how many lesions were in your liver?

Jump to this post

The first lesion was there, looking innocent to the oncologist when I was first diagnosed. It was removed Feb 2021. The second and third lesion were removed July 2022. Hopefully, that is the end of it but the interventional radiologist keeps remind me of the fact that the cancer is systemic.

REPLY
@regina59

It was in the middle of chemo of all those as well as chemo treatment for the hormone positive cancer in the left breast. I began chemo in July 2015, had bi-lateral breast surgery in December 2015 and finished with the chemo in August 2016. To repeat, I have had no recurrence of the HER2. However, the chemo never completely cleared away the cancer in the left breast which metastasized to the liver. The lesions have been removed by microwave ablation and I am in a really good place.

Jump to this post

That is good to hear. Do you know how many lesions were in your liver?

REPLY
@auntieoakley

It is interesting to see you mention fear for the future. I am Her2+, diagnosed a whopping 18 years ago and have taken a host of treatments. I have not really been fearful of the future until recently. I can’t say why, but I am having to work harder to not let the worry about tomorrow steal my joy today. I am back to creating worrying times and forcing myself to keep my worry within those time limits. Do you have any tips you use?

Jump to this post

Thanks for mentioning the worry time. I will put that in my bag and use it when needed.

REPLY
@auntieoakley

It is interesting to see you mention fear for the future. I am Her2+, diagnosed a whopping 18 years ago and have taken a host of treatments. I have not really been fearful of the future until recently. I can’t say why, but I am having to work harder to not let the worry about tomorrow steal my joy today. I am back to creating worrying times and forcing myself to keep my worry within those time limits. Do you have any tips you use?

Jump to this post

I sat here on my couch, thinking about my life’s journey, wondering when I stopped worrying. Once I decided I wanted to live my life the best way I could, given what ever came my way, I felt free enough to enjoy each day. I’ve developed a good support system to help me squash small worries before they became big ones. I walk each day and enjoy the endorphins that exercise gives me. I laugh everyday, always finding something to smile about. I’m now listening to eastern philosophy experts to enhance my calmness.
I guess I don’t have one Avenue but many. I wonder if each of us need to find our own path(s) to worry less and enjoy more.

REPLY
@maggieb892

It's sad to realize that many of us, including me are fearful of the future. I try to live in the moment and my decisions thus far.
The wait to have reconstruction is very difficult and annoying. I'm in the same position. I found a physical therapist that is helping me with range of motion and strengthening my chest muscles to ready me for the next step. I want to live my best life and fear only takes that away from me. I wish you well in the decisions you make

Jump to this post

It is interesting to see you mention fear for the future. I am Her2+, diagnosed a whopping 18 years ago and have taken a host of treatments. I have not really been fearful of the future until recently. I can’t say why, but I am having to work harder to not let the worry about tomorrow steal my joy today. I am back to creating worrying times and forcing myself to keep my worry within those time limits. Do you have any tips you use?

REPLY

I’ve been recently diagnosed with Her2 positive. Surgery to remove cyst is next week. I’ve already had breast cancer in the same breast. I’m not sure if this is weird to post this but I was looking into vitamin C intravenously as I am unsure about doing chemotherapy. Anyone out there with knowledge of this?

REPLY
@zeerj

Would you mind sharing whether you had reconstructive surgery and if so, the type? Due to radiation, I had to do delayed reconstructive. I opted to have expanders in to be able to have nipple sparring mastectomy. I’m starting now to regret my decision as I’m scared if there was any breast tissues left due to the skin and nipple sparring.

Jump to this post

It's sad to realize that many of us, including me are fearful of the future. I try to live in the moment and my decisions thus far.
The wait to have reconstruction is very difficult and annoying. I'm in the same position. I found a physical therapist that is helping me with range of motion and strengthening my chest muscles to ready me for the next step. I want to live my best life and fear only takes that away from me. I wish you well in the decisions you make

REPLY
@zoeym93

Why did you have to get radiation after surgery?

Jump to this post

My margins were very small and a risk that the cancer wasn't all gone. I had small dosages of radiation daily, and was able to maintain my skin integrity. I had few side effects, at the time. There is a risk of thyroid issues later, but I thought it was worth it.

REPLY
@pbnew

For the Her2 positive breast did you have taxol, Herceptin and perjeta followed by a lumpectomy but no radiation or Herceptin after surgery?

Jump to this post

No. My mass at biopsy was 7mm. By the time I had surgery it was 1.5 cm. I had 12 weeks of Taxol and Herceptin post op. (Lumpectomy) soon to begin radiation plus Herceptin every 3 weeks.

REPLY
@zoeym93

Why did you have to get radiation after surgery?

Jump to this post

If you are asking me, I refused radiation therapy.

REPLY
Please sign in or register to post a reply.