Who else is HER2 positive?

Posted by zeerj @zeerj, Oct 9, 2022

Anyone here with her2 positive diagnosis? I was diagnosed with stage 2 back in April, did 6 chemo, bilateral mastectomy and will be doing radiation. Will start TDM1 treatment for 14 cycles. I am looking for success stories with people in similar situation.

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I’ve been recently diagnosed with Her2 positive. Surgery to remove cyst is next week. I’ve already had breast cancer in the same breast. I’m not sure if this is weird to post this but I was looking into vitamin C intravenously as I am unsure about doing chemotherapy. Anyone out there with knowledge of this?

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@maggieb892

It's sad to realize that many of us, including me are fearful of the future. I try to live in the moment and my decisions thus far.
The wait to have reconstruction is very difficult and annoying. I'm in the same position. I found a physical therapist that is helping me with range of motion and strengthening my chest muscles to ready me for the next step. I want to live my best life and fear only takes that away from me. I wish you well in the decisions you make

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It is interesting to see you mention fear for the future. I am Her2+, diagnosed a whopping 18 years ago and have taken a host of treatments. I have not really been fearful of the future until recently. I can’t say why, but I am having to work harder to not let the worry about tomorrow steal my joy today. I am back to creating worrying times and forcing myself to keep my worry within those time limits. Do you have any tips you use?

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@auntieoakley

It is interesting to see you mention fear for the future. I am Her2+, diagnosed a whopping 18 years ago and have taken a host of treatments. I have not really been fearful of the future until recently. I can’t say why, but I am having to work harder to not let the worry about tomorrow steal my joy today. I am back to creating worrying times and forcing myself to keep my worry within those time limits. Do you have any tips you use?

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I sat here on my couch, thinking about my life’s journey, wondering when I stopped worrying. Once I decided I wanted to live my life the best way I could, given what ever came my way, I felt free enough to enjoy each day. I’ve developed a good support system to help me squash small worries before they became big ones. I walk each day and enjoy the endorphins that exercise gives me. I laugh everyday, always finding something to smile about. I’m now listening to eastern philosophy experts to enhance my calmness.
I guess I don’t have one Avenue but many. I wonder if each of us need to find our own path(s) to worry less and enjoy more.

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@auntieoakley

It is interesting to see you mention fear for the future. I am Her2+, diagnosed a whopping 18 years ago and have taken a host of treatments. I have not really been fearful of the future until recently. I can’t say why, but I am having to work harder to not let the worry about tomorrow steal my joy today. I am back to creating worrying times and forcing myself to keep my worry within those time limits. Do you have any tips you use?

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Thanks for mentioning the worry time. I will put that in my bag and use it when needed.

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@regina59

It was in the middle of chemo of all those as well as chemo treatment for the hormone positive cancer in the left breast. I began chemo in July 2015, had bi-lateral breast surgery in December 2015 and finished with the chemo in August 2016. To repeat, I have had no recurrence of the HER2. However, the chemo never completely cleared away the cancer in the left breast which metastasized to the liver. The lesions have been removed by microwave ablation and I am in a really good place.

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That is good to hear. Do you know how many lesions were in your liver?

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@mssewest

That is good to hear. Do you know how many lesions were in your liver?

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The first lesion was there, looking innocent to the oncologist when I was first diagnosed. It was removed Feb 2021. The second and third lesion were removed July 2022. Hopefully, that is the end of it but the interventional radiologist keeps remind me of the fact that the cancer is systemic.

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Hello,
I am following many of treatment plans with HER2+ stage 3 grade 3 9/28.
Chemo prior to 3/22/22 dual mastectomy- and sentinel dissection 23 lymph nodes removed 2 affected.
Cancer free - 25 rounds of radiation, delayed reconstruction, (ok)
2 rounds of herceptin (handled easy) switched to T-DM1 and I am handling this very well.
I work, love my “new normal” and excited for the next 30 years! Doing the work and treatments are worth it! Stay positive and find your “new normal”
friends and Family and my kids treat me back to myself before cancer, I thrive off of that! Look ahead and gain strength from what we went through!!
No issues ever with depression, anxiety I am fortunate.
Reconstruction is January 2023.
I have a great team of Mayo Doctors.
Loving my life everyday!

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@boathouse

Hello,
I am following many of treatment plans with HER2+ stage 3 grade 3 9/28.
Chemo prior to 3/22/22 dual mastectomy- and sentinel dissection 23 lymph nodes removed 2 affected.
Cancer free - 25 rounds of radiation, delayed reconstruction, (ok)
2 rounds of herceptin (handled easy) switched to T-DM1 and I am handling this very well.
I work, love my “new normal” and excited for the next 30 years! Doing the work and treatments are worth it! Stay positive and find your “new normal”
friends and Family and my kids treat me back to myself before cancer, I thrive off of that! Look ahead and gain strength from what we went through!!
No issues ever with depression, anxiety I am fortunate.
Reconstruction is January 2023.
I have a great team of Mayo Doctors.
Loving my life everyday!

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May I ask who you see at Mayo?

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@janisbrede

May I ask who you see at Mayo?

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I have a team established with the breast clinic, Rochester, Mayo Clinic.
Through my treatment plan I have the following:
Oncology surgeon
Dr of radiology
Plastics surgeon
Primary breast oncologist DR
All working under one roof communicating together.
Which Doctor would you be looking for?

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My best friend had Her 2 Nu when she was in her 50's. She was seen at Stanford Medical and went through Chemo and Mastectomy, and Tamoxifin. She is now 93 and doing extremely well. Her only limitation is she no longer Drives.
Gina5009

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