Hemiplegic migraines with new atypical migraines?

Posted by hemichill @hemichill, 2 hours ago

I am 33 and started having Hemiplegic migraines in 2017. They are non familial and have completely taken over my life. I’ve take every med possible. I do Botox to help severity but not amount. Recently during a HP migraine attack, my body started violently thrashing. Arms just flailing and no control. I was conscious, but unable to speak (aphasia) or see very well. It lasted about an hour before administered benzodiazepine in ambulance, Dr. is calling it Atypical Migraine. And if I feel it coming on I try to take lorazepam quick enough or my parents have to hold me down until it kicks in. HP migraines or not, has anyone had their migraines turn in to something like this out of nowhere? I have been diagnosed with epilepsy since 13, but they are controlled. Nor would a person be awake for an hour during a seizure. I’m just looking for people going through things like me. It can be very lonely. I am seeing a line up of doctors.

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