Help with Periodic Limb Movement Disorder (PLMD/A)
I have had periodic Limb movement disorder for about 15 to 20 years and have been able to keep it under control with Mirapex.
Recently it has started affecting me during the day if I try to rest much less close my eyes.
I have had RLS prior to the onset of the PLMD which I took Mirapex, gabapentin, and Klonopin Eventually, I just cut back on all but the mirapex and did reasonably well for many years.
I’m 75 years old and have metastatic squamous cell carcinoma.
My other health issues are mostly joint related. Artificial knee, both Achilles tendon reattached three hernia three carpal tunnel surgeries
I’ve also had two heart attacks, a fib, any 11 1/2 cm abdominal aorta aneurysm..
I work almost every day at a grass airfield. I live at which includes maintaining a little over 30 acres including the runway so I stay very active and pretty much have to work until I’m exhausted in order to be able to sleep.
The only thing that interferes with my life at this point is the PLMD/A and most medical professionals that I have spoken to have never even heard of it. So finding help in Northwest Florida is nonexistent.
Anybody that is familiar with this and has a suggestion I am wide open 😎
Interested in more discussions like this? Go to the Parkinson's Disease Support Group.
Hello @johnchristoffer and welcome to Connect. I am glad that you found this forum. It sounds like you have maintained an active lifestyle despite many health issues. I found several posts from Connect members who have mentioned this disorder. Here is a link to those posts:
https://connect.mayoclinic.org/search/?search=PLMD%2FA
I would encourage you to read the posts and see what others are saying about their treatments. You mention that you are in NW Florida. If you are able to drive to Jacksonville, FL, there is a Mayo Clinic location there. Perhaps you can get a consultation there and see if they have any treatment suggestions. Here is a link with information on how to obtain an appointment at the Mayo Clinic: http://mayocl.in/1mtmR63.
I look forward to hearing from you again as you go through the process of meeting others who have this disorder and finding a treatment plan. Will you post again and let me know how you are doing?