Help! I have a new diagnosis of Pituitary/adrenal insufficiency,

I had mild adrenal insufficiency and the docs treated thyroid, saying that would address the adrenal issue.

Are you on prednisone because of the insufficiency or do you have the insufficienty because you stopped prednisone?

Sorry you are feeling so poorly and not getting help!

Dr put me on flourocortisol for low adrenal Symptoms were sudden drops in blood pressure It’s solving symptoms

The pituitary gland is tiny (10 mm like a kidney bean). However, it is nicknamed the MASTER GLAND as everything is directed from the pituitary. I have the same conditions. I have been taking Levothyroxine for over 20 years. This is specialised. Hence, why your GP has no idea or understanding. Do what you can when you can, whatever task you do: washing up, out for lunch or changing the bed….. they all have a consequence. You need to work out how tired each activity makes you and work with it. Do not fight against it. I can’t/ don’t plan because I don’t know how well I will be. I now have a wheelchair for hospital trips. I spend at least 15 minutes a day doing something I enjoy (watching the flowers in the garden, watching tv, talk to a friend. You are not alone, allow yourself time to “grieve your old life”. It is normal to think back to what you used to be able to do. Your ability has changed so, be kind to yourself as you would someone else. 🥰

They started me on prednisone for adrenal insufficiency. Then they told me to double or triple the dose for anything stressful, or for any illness.

Prior to my diagnosis, I wasn't ever on corticosteroids. To be honest, I have had these
symptoms for over 30 years.

Thank you for the kind words. I have been fighting for a diagnosis for so long! I have been unable to work for the past 3 months due to the nature of my job and the symptoms of my illness. I am having a hard time getting any doctors to write for FMLA. They all act like I should just magically feel better. I don't. I have a few symptoms that have improved, but for the most part, I don't feel better. How in the world could I work 10-12 hours?

I believe I was born without a Pituitary gland and have been taking up to 15-20 mg of Cortef and 175 mcg of thyroid hormone. I also take one milligram of Humatrope (injected) each day. My energy levels are okay.

How exactly is adrenal insufficiency diagnosed?

We suffer with these symptoms for years and because invariably our symptoms are not measurable or found. The medical professional you see is doing what they think might work as they are blindsided by little to no official diagnosis. You are not alone. Take care and remember self care before we can do anything.

You can’t!!! I am not sure where you live. Are you able to do reduced hours? (Only if you are well enough to return). It is a shock when you have your first flare that completely halts your life/world. It is hard enough for you to understand what is happening to you (when you get zero guidance from the professionals). I don’t know how you feel mentally but you may find if you direct the conversation towards anxiety/depression you may get more help but you may also get labelled (just being honest). I wish you well.

Adrenals, pituitary and thyroid are all glands that produce hormones and are part of the endocrine system. I’ve. Also heard that the pituitary is the “master gland”. I know this from biology classes during college but I only have personal experience with thyroid. These are complex and can be interactive. A problem with any one of them makes diagnosis and treatment challenging. The specialty best suited to working with this is endocrinology. Do you have access to an endocrinologist?