I was diagnosed with a neuroendocrine tumour on my small bowel in 2014. This was found as I went into crisis. In June 2014 my surgeon operated and removed the tumour and 2cm of my bowel and reconnected. He also removed some of my liver and removed my gall bladder and in his words “microwaved things on my liver. I then developed a large incisional hernia and blockage. Eventually they operated again found the blockage and repaired and re positioned things around the hernia and repaired 85% of the hernia as it was so large.. Since then unfortunately more “things” appeared on my liver and I am now told I have metatasis of the liver. I am treated with monthly injections of somalutine and so far I am not suffering too badly. I do have some bad times sometime during the monthly period. My major concern is that my own doctor says I must liaise with my cancer consultant with problems but my cancer nurse says I must go to my doctor if I am not well. I feel like a tennis ball. This concern is very real when I am feeling not very well. I become anxious as to how this is going to progress, how ill am I going to be and who do I contact should I need help. My cancer nurse says everyone is different but how am I suppose to know when it is a problem my GP can handle or whether it is indeed something to do with my condition? I sometimes get very frightened wondering just who will look after me (medically) when the time comes and just how this going present itself.
Liked by Teresa, Volunteer Mentor