Help: I want more information about stroke rehab
I had a bleeding stroke four months ago. I can find lots of information about stroke, but very little about what to expect if/when feeling returns. How will I know? And when can I expect the feeling in my right side, which I have extremely little of, to come back? Does it come back slowly? or do I just wake up one morning, and suddenly it has all returned? I am exercising on a rowing machine five or six days a week for thirty minutes a day, as well as various stretches. I have spasticity in my foot that I also can’t get rid of.
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Lol, I bought the rowing machine because it was good for working my arm and leg at the same time! I wanted anything that would help my body! I found a cheaper one on Amazon and have been pleased with it. My therapy is pretty much over as they don't feel they can help me anymore. OT helped me for a while, but as for sensation of hot/cold, well, they just say it will take time or might never come back.
As time is going on I am getting somewhat better about waiting, I have so wanted to be "normal," but perhaps that will never happen. I am 52 feeling like I am 65. I don't want to wear diapers (pelvic therapy is the only pt I am still in) and walk while dragging one leg around. But, as you said, I need to be thankful for each little thing. I am out of a wheelchair! I can walk!
I am doing puzzles, started with 50 pieces, and now am up to 300. I also do word searches, and try "finding words," for instance I pick a letter, usually going in order of the alphabet, set a timer for five minutes, and write each word I can find in my brain until the timer beeps. I started at about 4 words per minute. Now I do about 8, so not a ton of improvement, but some!
It is so wonderful when OT and PT tell us that we are doing so well that they can no longer help us. If I do not have the doctor I have and the PT who renamed the help I needed I would not be getting any more help. I asked to be re-evaluated to make sure I was not going backwards but progressing.
As far as the diapers, besides cost, you may want to see someone in Urology ASAP. I am taking pills to help control my bladder and do not have to be on diapers. There again, it could depend on the area of the brain that was damaged.
Being out of the chair is a BIG plus. Have you tried a walker? There are devices that could help with the foot dragging.
Up from a 50 piece puzzle to a 300 one is GREAT. Next you will have to try a 500. Just remember to use your right hand to put the puzzle together, I had to remind myself to use my right hand not my left. I was never good at word puzzles, I like Sudoku. Using a timer is a very good way to improve your brain muscle. Going from 4 to 8 is a very good improvement, you just doubled your score. Now you get to try for 16.
Do NOT think you are not improving, just remember where you were while you were in the hospital. Twenty to thirty years ago very few people lived more than days or weeks after a stroke, today it is years. However, the doctors have not caught up with the fact people are living with strokes and they don't know what to do with us. Our insurance companies don't want to spend money on rehab for us, especially if we are over 50, to have us never work again.
I hope this helps you. Good luck. mlmcg
I forgot to add, if the only puzzles you have are the 50 and 300 piece ones try putting the 50 piece puzzle again one row at a time. I use to do them one row at a time when I wanted to put a puzzle together and all I had were puzzles I had put together so many times I almost knew where every piece went. I never tried doing them upside down. You have the top of the puzzle next to you and the bottom away from you, if you were to look at the puzzle from the other side of the table it would be the way it should be. You could always do it row by row upside down. Be careful your family/friends might start to worry about you, or buy you more puzzles. Good luck. mlmcg
I'd like to invite you to join us today, Wednesday, May 1 at 12pm CT for a video Q&A. Drs. William (David) Freeman and Rabih Tawk will be discussing all aspects of stroke, and will answer questions during the live broadcast.
Simply click https://connect.mayoclinic.org/webinar/video-qa-about-stroke-2/ for details.
Drs. Freeman and Tawk will answer questions live. Post your questions before and during the broadcast.
Return to this page, https://connect.mayoclinic.org/webinar/video-qa-about-stroke-2/ to take part in the video Q&A live on May 1 at noon CT. It will also be archived on this page.