Transverse Myelitis & Side-effects

Posted by heidebyrne911 @heidebyrne911, Sat, Jun 8 8:16am

Hi everyone, I ‘m looking for info about a connection between myelitis transverse and rapidly reducing vision.

Liked by Leonard

Hello @heidebyrne911, welcome to Connect. You may notice I changed the name of your discussion to "Transverse Myelitis & Side-effects," to let other Connect members know more specifically what you are sharing about. I'd like to invite @therannmann and @ann123 to this discussion as they have both posted recently about being diagnosed with transverse myelitis.

@heidebyrne911, while we wait for others to come and share their experiences, would you mind sharing a bit more yourself? If you are comfortable sharing, have you discussed this issue with your provider? Have they discussed the affects of transverse myelitis with you?

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Hi, @heidebyrne911 – just wanted to check in with you to see how things are going?

Here is some Mayo Clinic information on transverse myelitis that may be helpful https://www.mayoclinic.org/diseases-conditions/transverse-myelitis/symptoms-causes/syc-20354726.

I'd also like to invite @bettysue @reb2011 @adam782002 @julius to join this conversation. julius, you'd mentioned a gentleman who gave a website that showed a therapy for this disease. It's possible this could have been @johnbishop, or he may possibly know of other resources.

You'd talked about rapidly reducing vision and a connection to transverse myelitis. Assuming you were inquiring about yourself or for a loved one, what is your or their vision like currently?

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Hi, @heidebyrne911 – here is some information I've found out for transverse myelitis physical therapy.

Are there guidelines for exercising when you have TM?
https://myelitis.org/guidelines-exercising-tm/
Why a Person with TM Should Consider Physical Therapy
https://myelitis.org/resources/why-a-person-with-tm-should-consider-physical-therapy/
Physiotherapy for Transverse Myelitis
http://www.manchesterneurophysio.co.uk/adults/conditions-we-treat/mobility-and-walking/transverse-myelitis/physiotherapy-treatment-for-transverse-myelitis.php

There seems to be a connection between vision loss and transverse myelitis. Have you discussed it with your doctor?

NIH – Neuromyelitis optica
https://ghr.nlm.nih.gov/condition/neuromyelitis-optica

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