Heart transplant recovery: What to expect?

Posted by dennisprater @dennisprater, Nov 25, 2019

In my 20th month of recovery of heart transplant. Big loss of muscle strength. Almost strong just before transplant but not few years before transplant. Is this time normal?

@danab

So true on the loss of muscle mass i celebrate 2 years today and i do work out 5 days a week but it has been a long road getting my fitness level back to where it was. So keep plugging its all worth it.

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@danab, Happy Transplant Anniversary! I hope that you had an enjoyable day. Did you do anything special?

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@rosemarya

@danab, Happy Transplant Anniversary! I hope that you had an enjoyable day. Did you do anything special?

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Thanks Rosemary, i had a beautiful day went to Church and was congraulated by all the great people that stood by me with there prayers and comfort during those months in the hospital and after. It can't be said enough that a great support system is crucial to a successful transplant. Of course i give double thanks to my Wife and Primary Caregiver and all the great support from the Mayo Doctors, Nurses, aides, dietary, social workers and all the behind the scenes people involved. But top of my list is God who i feel was the sole reason i got a new Heart and i thank God for people who even during there loss donate there loved ones Organs. So my 2 year check-up is the 21st and i don't expect any issues. I also always try and stop by and see some of the Nurses on duty and check-in i usually see one or two i remember.

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@danab

Thanks Rosemary, i had a beautiful day went to Church and was congraulated by all the great people that stood by me with there prayers and comfort during those months in the hospital and after. It can't be said enough that a great support system is crucial to a successful transplant. Of course i give double thanks to my Wife and Primary Caregiver and all the great support from the Mayo Doctors, Nurses, aides, dietary, social workers and all the behind the scenes people involved. But top of my list is God who i feel was the sole reason i got a new Heart and i thank God for people who even during there loss donate there loved ones Organs. So my 2 year check-up is the 21st and i don't expect any issues. I also always try and stop by and see some of the Nurses on duty and check-in i usually see one or two i remember.

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@danab I feel the same way, there were so many people praying for me that I’m sure that must have been a huge help. It really is a miracle and a blessing to be well again.
JK

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@danab

Thanks Rosemary, i had a beautiful day went to Church and was congraulated by all the great people that stood by me with there prayers and comfort during those months in the hospital and after. It can't be said enough that a great support system is crucial to a successful transplant. Of course i give double thanks to my Wife and Primary Caregiver and all the great support from the Mayo Doctors, Nurses, aides, dietary, social workers and all the behind the scenes people involved. But top of my list is God who i feel was the sole reason i got a new Heart and i thank God for people who even during there loss donate there loved ones Organs. So my 2 year check-up is the 21st and i don't expect any issues. I also always try and stop by and see some of the Nurses on duty and check-in i usually see one or two i remember.

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@danab, Thank you for sharing your anniversary here on Connect. All of us transplant folks either. are or have been on long difficult journeys, and I think it if fitting and appropriate to celebrate our victories! I wish you and your wife many more celebrations. Life is good.

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In this 6/1 I we’ll be 25 years out, I had my transplant in Salt Lake City in the now closed LDS hospital. I lost a lot of strength coming out of transplant because of prednisone it’s hard on the leg muscles, I don’t think I ever got all my strength back but i’m 63 now so remember your also aging now and that isn’t easy on anybody. If I can just say you got your life back enjoy it with your loved ones and make the best of it God bless you on your journey and enjoy your life, make the most of it
With love and best wish’s RK Clayton

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Thanks for your realistic info. I am hopefully getting my kidney transplant soon when my live donor completes her physical.

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@rosemarya

@chugly11, I am happy to welcome you and to thank you for sharing and encouraging us to try. try, try, to avoid getting sick. I have managed to avoid the flu since my transplant 10 years ago. Chugly, I have wondered how the flu is treated in transplant patients. Did you need to be hospitalized? Were you prescribed tamiflu?

I hope both you and your granddaughter will soon recover from this Christmas surprise. How are you feeling?

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Both myself. And granddaughter have both recovered and doing great. Yes we both were prescribed tamiful and it worked great, in fact I am at her house waiting for her to come home from school to celebrate her birthday today, I expect no problems and wonderful day she will be 9, something I never expected to see. God bless you all on this wonderful journey.
RK Clayton alias Chugly

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@chugly11

In this 6/1 I we’ll be 25 years out, I had my transplant in Salt Lake City in the now closed LDS hospital. I lost a lot of strength coming out of transplant because of prednisone it’s hard on the leg muscles, I don’t think I ever got all my strength back but i’m 63 now so remember your also aging now and that isn’t easy on anybody. If I can just say you got your life back enjoy it with your loved ones and make the best of it God bless you on your journey and enjoy your life, make the most of it
With love and best wish’s RK Clayton

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@chugly11, I think that you have found a terrific 'new' normal! I want say how much I enjoyed hearing about your celebratory cruise after your heart transplant and recovery. However, I especially like the birthday celebration with your granddaughter. I also have a granddaughter. She recently turned 7, and is an added bonus since my transplant. (liver/kidney 2009) I'm happy to hear how you are enjoying your life.

What did you do when your hospital closed?
And what kind of routine tests do you have to undergo now that you will be 25 years out? Are they the same or different from other years? (From my kidney perspective, I had my last protocol kidney biopsy at my 10 year eval, so I am just wondering)

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Good Morning.
As a transplant recipient, (liver and kidney), I know how much of an uphill journey we all face. It is never easy, and it is frightening and frustrating for us and for our caregivers. On Connect, no one has to be alone – beause of members like you – who share experiences and support others. Here is a newsfeed article that I would like to share with you. It is a heartwarming homecoming story about a remarkable patient who underwent both a heart and a kidney transplant.

Sweet Homecoming After Successful Heart and Kidney Transplants
https://connect.mayoclinic.org/champions/newsfeed-detail/?link_id=5536657
Do you remember when you learned that you were going home?
It is my most sincere desire that you will find inspiration in this article.

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@tucsonguy

Thanks for your realistic info. I am hopefully getting my kidney transplant soon when my live donor completes her physical.

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@tucsonguy, I recently saw your name in a reply. Maybe it is a convenient time for me to ask you how you are getting along? Have you heard anything about a possible kidney transplant?

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