Heart pounding since diagnosed with cancer: What can I do?

Posted by gbnana @gbnana, Nov 3, 2021

Too often throughout the day I am feeling my heart pounding. It makes me feel shaky and very uncomfortable. It must be a kind of anxiety that is bringing me an adrenaline overload. I do try to manage it with deep breathing but that is not helping enough.
Any ideas please

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@auntieoakley

Wow, this is quite a journey you have been on. I had a friend who moved back east in order to get HIPEC treatment. We had hunted for treatment for her, this is how I found out that this is rare enough to be considered an orphan cancer. It brings me hope for my barn friend when I hear how well you are doing. What kind of follow up program are you following? Any long term effects?

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Please make sure your friend is seeing an appendiceal cancer surgeon with experience with over 200 cases. This is a weird cancer with many presentations and needs a specialist. The gold treatment standard is CRS/HIPEC.

I have LAMN stage 2 which is not aggressive and very very slow growing. My only follow up is a CT scan every six months. More aggressive types of appendiceal cancer can be treated with IV chemo.

Because I had so many things removed or dissected or scraped, I find myself short of breath. My hair is thinning out. I am often tired. Recovery after surgery can be from three months to a year depending on the person.

I worked with an OT & PT in my home. I start outpatient PT in January. Recovery is very long and slow but worth it to be alive. I can share a link to the support group I belong to which might be helpful.

I wish your friend and you all the best in your journey towards better health.

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@cstaryos

Please make sure your friend is seeing an appendiceal cancer surgeon with experience with over 200 cases. This is a weird cancer with many presentations and needs a specialist. The gold treatment standard is CRS/HIPEC.

I have LAMN stage 2 which is not aggressive and very very slow growing. My only follow up is a CT scan every six months. More aggressive types of appendiceal cancer can be treated with IV chemo.

Because I had so many things removed or dissected or scraped, I find myself short of breath. My hair is thinning out. I am often tired. Recovery after surgery can be from three months to a year depending on the person.

I worked with an OT & PT in my home. I start outpatient PT in January. Recovery is very long and slow but worth it to be alive. I can share a link to the support group I belong to which might be helpful.

I wish your friend and you all the best in your journey towards better health.

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Thank you for sharing this! May I ask where you were treated?

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@auntieoakley

Thank you for sharing this! May I ask where you were treated?

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Mass General, Boston MA

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I am glad you are here! I believe the conversations we have here are helpful to not only us, but those who are reading and not posting.

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Day 5 post mastectomy!
Have been doing quite well physically. Pain has been well managed with Tramadol with acetaminophen. Sleeping has been very good.
I have reduced my pain meds down to 2 a day just fine.
HOWEVER today I am really down, I have no fight in me at all
I know the possible reasons but can't change them.
Bills piled up, income is small senior pension that I can't cover everything with, food is scarce and I really feel like something yummy!
Christmas season is here, people want to visit and don't accept that I don't want company. They all say you need support but visits stress me. I am an introvert and treasure my friends of course, but sometimes I just can't do it.
I just can't see my life getting any better at my age 70!
Today is HARD!

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@gbnana

Day 5 post mastectomy!
Have been doing quite well physically. Pain has been well managed with Tramadol with acetaminophen. Sleeping has been very good.
I have reduced my pain meds down to 2 a day just fine.
HOWEVER today I am really down, I have no fight in me at all
I know the possible reasons but can't change them.
Bills piled up, income is small senior pension that I can't cover everything with, food is scarce and I really feel like something yummy!
Christmas season is here, people want to visit and don't accept that I don't want company. They all say you need support but visits stress me. I am an introvert and treasure my friends of course, but sometimes I just can't do it.
I just can't see my life getting any better at my age 70!
Today is HARD!

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@gbnana Not everyday will be an "up" day. You're allowed to feel the way you do, no matter what others may say. Reach out to a trusted friend and get that yummy treat! You deserve it!.

As a fellow introvert, without the surgical you have gone through [five days ago!] I understand the not wanting to be burdened with putting out energy you need for yourself and healing. Tell those well-meaning people, that dr has ordered you to take it easy, and severely limit your exposure as you recover. They may respect that.

And, life will get better…..
Ginger

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@gbnana

Day 5 post mastectomy!
Have been doing quite well physically. Pain has been well managed with Tramadol with acetaminophen. Sleeping has been very good.
I have reduced my pain meds down to 2 a day just fine.
HOWEVER today I am really down, I have no fight in me at all
I know the possible reasons but can't change them.
Bills piled up, income is small senior pension that I can't cover everything with, food is scarce and I really feel like something yummy!
Christmas season is here, people want to visit and don't accept that I don't want company. They all say you need support but visits stress me. I am an introvert and treasure my friends of course, but sometimes I just can't do it.
I just can't see my life getting any better at my age 70!
Today is HARD!

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Days like this are the hardest ones. I hate it when I think of you going through this, mostly because I can remember exactly what these days feel like. Trust me when I say, things will get better, even if it does not seem that way now. Set those medical bills aside for now, this is not the time you should be worrying about those. Tell me what kind of yummy treat sounds good right now? I remember craving a gelato or a cannoli. Are you a cake or cream kind of girl?

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@auntieoakley

Days like this are the hardest ones. I hate it when I think of you going through this, mostly because I can remember exactly what these days feel like. Trust me when I say, things will get better, even if it does not seem that way now. Set those medical bills aside for now, this is not the time you should be worrying about those. Tell me what kind of yummy treat sounds good right now? I remember craving a gelato or a cannoli. Are you a cake or cream kind of girl?

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Thanks for your note, I am trying to trust that I will move into better days!
Not a cake or cream girl, savoury all the way. Problem is I don't know what it is that is yummy right now…not a big problem is it?
It helps to know you have come through this ok

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@gingerw

@gbnana Not everyday will be an "up" day. You're allowed to feel the way you do, no matter what others may say. Reach out to a trusted friend and get that yummy treat! You deserve it!.

As a fellow introvert, without the surgical you have gone through [five days ago!] I understand the not wanting to be burdened with putting out energy you need for yourself and healing. Tell those well-meaning people, that dr has ordered you to take it easy, and severely limit your exposure as you recover. They may respect that.

And, life will get better…..
Ginger

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Ginger you are SO correct that @gbnana is allowed to have a down day or even a bunch of them! We ALL hear that we need a positive attitude to beat cancer. Of course you are going to feel down! It is sad to get cancer. Taking care of yourself, asking friends to bring a “yummy” to you and leave you to just be is a great way to take care of yourself. You will heal. 70 is not too old. Sounds pretty young to me as I get closer to it every day!

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@gbnana I started same symptomps of heart pounding when I started having unusual discharge from my left breast following with swollen part of the lobuls. It became increasingly alarming when the pounding increased by just walking from my place to the elevator (short distance) and followed with diffiulty speaking (as if i ran a marathon) it stopped suddenly… when i discontinued the genesis prescription of Nexium: I took like less than a week (and allerg-tec(allergy sneezing& runny nose) i assumed the combination of theses 2 meds caused it. The pounding stopped but I still feel that the symptoms are coming back then it stops.
I tried drinking lemon water (no sugar), not sure if this is the reason that it stopped.
Thank you for menioning about the breathing @gbnana

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@simo

@gbnana I started same symptomps of heart pounding when I started having unusual discharge from my left breast following with swollen part of the lobuls. It became increasingly alarming when the pounding increased by just walking from my place to the elevator (short distance) and followed with diffiulty speaking (as if i ran a marathon) it stopped suddenly… when i discontinued the genesis prescription of Nexium: I took like less than a week (and allerg-tec(allergy sneezing& runny nose) i assumed the combination of theses 2 meds caused it. The pounding stopped but I still feel that the symptoms are coming back then it stops.
I tried drinking lemon water (no sugar), not sure if this is the reason that it stopped.
Thank you for menioning about the breathing @gbnana

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@gbnana
error : generic of Nexium
I have a daily walk of at least 2 miles twice a day or 3 miles at once, per day and I never felt the pounding, only after my symptoms in the breast started. Now i only have funny look of the lobules, changing shape then suddenly are back to normal.

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